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Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance.
Kuijlaars, Isolde A R; Teela, Lorynn; van Vulpen, Lize F D; Timmer, Merel A; Coppens, Michiel; Gouw, Samantha C; Peters, Marjolein; Kruip, Marieke J H A; Cnossen, Marjon H; Muis, Jelmer J; van Hoorn, Evelien S; Haverman, Lotte; Fischer, Kathelijn.
Affiliation
  • Kuijlaars IAR; Van Creveldkliniek University Medical Center Utrecht Utrecht University Utrecht The Netherlands.
  • Teela L; Amsterdam University Medical Centers Emma Children's Hospital Child and Adolescent Psychiatry & Psychosocial Care Amsterdam Reproduction and Development Amsterdam Public Health University of Amsterdam Amsterdam The Netherlands.
  • van Vulpen LFD; Van Creveldkliniek University Medical Center Utrecht Utrecht University Utrecht The Netherlands.
  • Timmer MA; Van Creveldkliniek University Medical Center Utrecht Utrecht University Utrecht The Netherlands.
  • Coppens M; Department of Vascular Medicine Amsterdam Cardiovascular Sciences Amsterdam University Medical Centers University of Amsterdam Amsterdam The Netherlands.
  • Gouw SC; Emma Children's Hospital Amsterdam University Medical Centers Pediatric Hematology University of Amsterdam Amsterdam The Netherlands.
  • Peters M; Department of Clinical Epidemiology Leiden University Medical Center Leiden The Netherlands.
  • Kruip MJHA; Emma Children's Hospital Amsterdam University Medical Centers Pediatric Hematology University of Amsterdam Amsterdam The Netherlands.
  • Cnossen MH; Erasmus MC Department of Hematology Erasmus University Medical Center Rotterdam Rotterdam The Netherlands.
  • Muis JJ; Erasmus MC Department of Pediatric Hematology Sophia Children's Hospital Erasmus University Medical Center Rotterdam Rotterdam The Netherlands.
  • van Hoorn ES; Amsterdam University Medical Centers Emma Children's Hospital Child and Adolescent Psychiatry & Psychosocial Care Amsterdam Reproduction and Development Amsterdam Public Health University of Amsterdam Amsterdam The Netherlands.
  • Haverman L; Emma Children's Hospital Amsterdam University Medical Centers Pediatric Hematology University of Amsterdam Amsterdam The Netherlands.
  • Fischer K; Erasmus MC Department of Public Health Erasmus University Medical Center Rotterdam Rotterdam The Netherlands.
Res Pract Thromb Haemost ; 5(8): e12621, 2021 Dec.
Article in En | MEDLINE | ID: mdl-34849449

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Observational_studies Aspects: Patient_preference Language: En Journal: Res Pract Thromb Haemost Year: 2021 Document type: Article Country of publication:

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Observational_studies Aspects: Patient_preference Language: En Journal: Res Pract Thromb Haemost Year: 2021 Document type: Article Country of publication: