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Integrating community voices in the research continuum: Perspectives on a consultation service.
Evans, Crystal D; Nanda, Joy P; Ouyang, Pamela; Bone, Lee; Byiringiro, Samuel; Lacanienta, Cyd; Clark, Roger; Weston, Christine; Han, Hae-Ra; Terkowitz, Mia; Bates-Hopkins, Barbara; Galiatsatos, Panagis; Xu, Ashley Jingzhi; Stevens, Sarah; Himmelfarb, Cheryl R.
Affiliation
  • Evans CD; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
  • Nanda JP; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
  • Ouyang P; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
  • Bone L; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
  • Byiringiro S; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
  • Lacanienta C; The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
  • Clark R; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
  • Weston C; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
  • Han HR; The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
  • Terkowitz M; The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
  • Bates-Hopkins B; The Johns Hopkins University School of Nursing, Baltimore, MD, USA.
  • Galiatsatos P; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
  • Xu AJ; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
  • Stevens S; The Johns Hopkins University School of Nursing, Baltimore, MD, USA.
  • Himmelfarb CR; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
J Clin Transl Sci ; 7(1): e177, 2023.
Article in En | MEDLINE | ID: mdl-37654776
ABSTRACT
The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: J Clin Transl Sci Year: 2023 Document type: Article Affiliation country:
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Add to My VHL
Print
XML
PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: J Clin Transl Sci Year: 2023 Document type: Article Affiliation country: