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Patients' and caregivers' perception of multidimensional and palliative care in amyotrophic lateral sclerosis - protocol of a German multicentre study.
Linse, Katharina; Weber, Constanze; Reilich, Peter; Schöberl, Florian; Boentert, Matthias; Petri, Susanne; Rödiger, Annekathrin; Posa, Andreas; Otto, Markus; Wolf, Joachim; Zeller, Daniel; Brunkhorst, Robert; Koch, Jan; Hermann, Andreas; Großkreutz, Julian; Schröter, Carsten; Groß, Martin; Lingor, Paul; Machetanz, Gerrit; Semmler, Luisa; Dorst, Johannes; Lulé, Dorothée; Ludolph, Albert; Meyer, Thomas; Maier, André; Metelmann, Moritz; Regensburger, Martin; Winkler, Jürgen; Schrank, Berthold; Kohl, Zacharias; Hagenacker, Tim; Brakemeier, Svenja; Weyen, Ute; Weiler, Markus; Lorenzl, Stefan; Bublitz, Sarah; Weydt, Patrick; Grehl, Torsten; Kotterba, Sylvia; Lapp, Hanna-Sophie; Freigang, Maren; Vidovic, Maximilian; Aust, Elisa; Günther, René.
Affiliation
  • Linse K; University Hospital Carl Gustav Carus at Technische Universität Dresden, Fetscherstrasse 74, 01307, Dresden, Germany. Katharina.linse@ukdd.de.
  • Weber C; German Center for Neurodegenerative Diseases Dresden, Tatzberg 41, 01307, Dresden, Germany. Katharina.linse@ukdd.de.
  • Reilich P; University Hospital Carl Gustav Carus at Technische Universität Dresden, Fetscherstrasse 74, 01307, Dresden, Germany.
  • Schöberl F; Department of Neurology with Friedrich-Baur-Institute, University Hospital, Ludwig-Maximilians-University (LMU), Marchioninistrasse 15, 81377, Munich, München, Germany.
  • Boentert M; Department of Neurology with Friedrich-Baur-Institute, University Hospital, Ludwig-Maximilians-University (LMU), Marchioninistrasse 15, 81377, Munich, München, Germany.
  • Petri S; University Hospital Münster (UKM), Albert-Schweitzer-Campus 1, 48149, Münster, Germany.
  • Rödiger A; Department of Medicine, UKM-Marienhospital Steinfurt, Mauritiusstr. 5, 48565, Steinfurt, Germany.
  • Posa A; Hannover Medical School, Carl-Neuberg-Strasse 1, 30625, Hannover, Germany.
  • Otto M; University Hospital Jena, Am Klinikum 1, 07747, Jena, Germany.
  • Wolf J; University Hospital Halle, Ernst-Grube-Strasse 40, 06120, Halle (Saale), Germany.
  • Zeller D; University Hospital Halle, Ernst-Grube-Strasse 40, 06120, Halle (Saale), Germany.
  • Brunkhorst R; Deaconess Hospital Mannheim, Speyerer Strasse 91-93, 68163, Mannheim, Germany.
  • Koch J; University Hospital Würzburg, Josef-Schneider-Strasse 11, 97080, Würzburg, Germany.
  • Hermann A; University Hospital RWTH Aachen, Pauwelsstrasse 30, 52074, Aachen, Germany.
  • Großkreutz J; University Medical Center Göttingen, Robert-Koch-Strasse 40, 37075, Göttingen, Germany.
  • Schröter C; University Medical Center Rostock, Translational Neurodegeneration Section "Albrecht Kossel", Gehlsheimer Strasse 20, 18147, Rostock, Germany.
  • Groß M; German Center for Neurodegenerative Diseases Rostock/Greifswald, Gehlsheimer Strasse 20, 18147, Rostock, Germany.
  • Lingor P; University of Lübeck, Ratzeburger Allee 160, 23538, Lübeck, Germany.
  • Machetanz G; Hospital Hoher Meißner, Hardtstrasse 36, 37242, Bad Sooden-Allendorf, Germany.
  • Semmler L; Evangelic Hospital Oldenburg, Steinweg 13-17, 26122, Oldenburg, Germany.
  • Dorst J; Klinikum rechts der Isar, TUM School of Medicine and Health, Technical University of Munich, Ismaninger Strasse 22, 81675, Munich, Germany.
  • Lulé D; German Center for Neurodegenerative Diseases Munich, Feodor-Lynen-Strasse 17, 81377, Munich, Germany.
  • Ludolph A; Klinikum rechts der Isar, TUM School of Medicine and Health, Technical University of Munich, Ismaninger Strasse 22, 81675, Munich, Germany.
  • Meyer T; Klinikum rechts der Isar, TUM School of Medicine and Health, Technical University of Munich, Ismaninger Strasse 22, 81675, Munich, Germany.
  • Maier A; University Hospital Ulm, Oberer Eselsberg 45, 89081, Ulm, Germany.
  • Metelmann M; University Hospital Ulm, Oberer Eselsberg 45, 89081, Ulm, Germany.
  • Regensburger M; University Hospital Ulm, Oberer Eselsberg 45, 89081, Ulm, Germany.
  • Winkler J; Charité - Universitätsmedizin Berlin, Augustenburger Platz 1, 13353, Berlin, Germany.
  • Schrank B; Charité - Universitätsmedizin Berlin, Augustenburger Platz 1, 13353, Berlin, Germany.
  • Kohl Z; University Hospital Leipzig, Liebigstrasse 20, 04103, Leipzig, Germany.
  • Hagenacker T; University Hospital Erlangen, Schwabachanlage 6, 91054, Erlangen, Germany.
  • Brakemeier S; University Hospital Erlangen, Schwabachanlage 6, 91054, Erlangen, Germany.
  • Weyen U; DKD Helios Clinic Wiesbaden, Aukammallee 33, 65191, Wiesbaden, Germany.
  • Weiler M; University Hospital Regensburg, Universitätsstrasse 84, 93053, Regensburg, Germany.
  • Lorenzl S; Department of Neurology, Center for Translational Neuro- and Behavioral Sciences (C-TNBS), University Hospital Essen, Hufelandstr. 55, 45147, Essen, Germany.
  • Bublitz S; Department of Neurology, Center for Translational Neuro- and Behavioral Sciences (C-TNBS), University Hospital Essen, Hufelandstr. 55, 45147, Essen, Germany.
  • Weydt P; BG University Hospital Bochum, Bürkle de la Camp-Platz 1, 44789, Bochum, Germany.
  • Grehl T; Department of Neurology, Heidelberg University Hospital, Im Neuenheimer Feld 400, 69120, Heidelberg, Germany.
  • Kotterba S; Hospital Agatharied, Norbert-Kerkel-Platz, 83734, Hausham, Germany.
  • Lapp HS; Institute of Palliative Care and Institute of Nursing Science, Paracelsus Medical University, Salzburg, Austria.
  • Freigang M; Department of Palliative Medicine, University Hospital, Ludwig-Maximilians-University (LMU), Marchioninistrasse 15, 81377, Munich, München, Germany.
  • Vidovic M; Hospital Agatharied, Norbert-Kerkel-Platz, 83734, Hausham, Germany.
  • Aust E; Institute of Palliative Care and Institute of Nursing Science, Paracelsus Medical University, Salzburg, Austria.
  • Günther R; University Hospital Bonn, Venusberg Campus 1, 53127, Bonn, Germany.
Neurol Res Pract ; 6(1): 34, 2024 Jul 04.
Article in En | MEDLINE | ID: mdl-38961496
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: Neurol Res Pract Year: 2024 Document type: Article Affiliation country: Country of publication:
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: Neurol Res Pract Year: 2024 Document type: Article Affiliation country: Country of publication: