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Development of a Maturity Model for Medical Patient Registries - A Community Approach.
Niemeyer, Anna; Regierer, Anne C; Hartz, Tobias; Veit, Christof; van den Berg, Neeltje; Beckedorf, Irina; Schlünder, Irene; Neubauer, Emily; Hoffmann, Wolfgang; Semler, Sebastian C; Röhrig, Rainer.
Affiliation
  • Niemeyer A; TMF e.V., Berlin, Germany.
  • Regierer AC; TMF e.V., Berlin, Germany.
  • Hartz T; German Rheumatism Research Centre (DRFZ), Berlin, Germany.
  • Veit C; TMF e.V., Berlin, Germany.
  • van den Berg N; Clinical Cancer Registry Lower Saxony, Hannover, Germany.
  • Beckedorf I; BQS Institute for Quality & Patient Safety GmbH, Hamburg, Germany.
  • Schlünder I; Institute of community Medicine, Academic Medical Center Greifswald, Germany.
  • Neubauer E; TMF e.V., Berlin, Germany.
  • Hoffmann W; TMF e.V., Berlin, Germany.
  • Semler SC; TMF e.V., Berlin, Germany.
  • Röhrig R; TMF e.V., Berlin, Germany.
Stud Health Technol Inform ; 316: 1262-1263, 2024 Aug 22.
Article in En | MEDLINE | ID: mdl-39176611
ABSTRACT

OBJECTIVE:

Development of a generic model to visualize the potential for use and further development of registries to assess the suitability of the registry for a specific purpose.

METHODS:

Multi-stage community approach.

RESULTS:

The maturity model has 9 categories with 105 items. The purpose of the registry is mapped via potential usage dimensions.

CONCLUSION:

Important for acceptance is the appropriateness of the requirements in relation to the purposes.
Subject(s)
Key words

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Registries Limits: Humans Language: En Journal: Stud Health Technol Inform Journal subject: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Year: 2024 Document type: Article Affiliation country: Country of publication:

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Registries Limits: Humans Language: En Journal: Stud Health Technol Inform Journal subject: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Year: 2024 Document type: Article Affiliation country: Country of publication: