Perceção dos pais sobre o futuro da criança com cancro / Perception of parents about the future of the child with cancer
Rev. Rol enferm
; 43(1,supl): 458-463, ene. 2020. graf
Artigo
em Português
| IBECS
| ID: ibc-193421
Biblioteca responsável:
ES1.1
Localização: BNCS
ABSTRACT
Cancer in the child affects the whole family, which experiences the uncertainty of the prognosis, projecting itself into an unpredictable future. Parents come to live with the disease, the treatments and their effects, in a sinuous path lined by the uncertainty of the next day. The aim was to identify parents' perceptions regarding the future of children / adolescents with cancer undergoing chemotherapy. A qualitative, exploratory, descriptive and transversal study was developed. Eleven parents of children with cancer who underwent chemotherapy after their homecare were enrolled. Data were collected by semi-structured interview and analyzed according to Bardin. From the content analysis emerged the domain "Future Uncertain", which integrates the category "Syndrome of Damocles" and the subcategories "Fear" and "Unpredictability of the Future". Fear is a negative emotion experienced by parents of children with cancer, from the time of diagnosis and throughout the course of the disease. The unpredictability of the future is a constant in the life of parents, generating a continuous concern, so they resort to the strategy of thinking and living only in the present. However, uncertainty can catalyze psychological growth, leading them to value small moments, and to incorporate uncertainty as an integral part of life. Nurses must carry out interventions aimed at better management of uncertainty, as they help in the process of adaptation and management of stress. These interventions should lead to a "new normality" in family life, in which confrontation with adversity leads to a whole new meaning of existence
RESUMO
No disponible
Texto completo:
Disponível
Coleções:
Bases de dados nacionais
/
Espanha
Base de dados:
IBECS
Assunto principal:
Enfermagem Oncológica
/
Cuidado da Criança
/
Educação Infantil
/
Expectativa de Vida
/
Assistência Domiciliar
/
Neoplasias
/
Cuidados de Enfermagem
Limite:
Criança
/
Humanos
Idioma:
Português
Revista:
Rev. Rol enferm
Ano de publicação:
2020
Tipo de documento:
Artigo
Instituição/País de afiliação:
Centro Hospitalar Universitário de São João/Portugal
/
Escola Superior de Enfermagem do Porto (ESEP)/Portugal