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Development and validation of a patient-reported outcome measure for systemic sclerosis: the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire.
Becker, Mike O; Dobrota, Rucsandra; Garaiman, Alexandru; Debelak, Rudolf; Fligelstone, Kim; Tyrrell Kennedy, Ann; Roennow, Annelise; Allanore, Yannick; Carreira, Patricia E; Czirják, László; Denton, Christopher P; Hesselstrand, Roger; Sandqvist, Gunnel; Kowal-Bielecka, Otylia; Bruni, Cosimo; Matucci-Cerinic, Marco; Mihai, Carina; Gheorghiu, Ana Maria; Mueller-Ladner, Ulf; Sexton, Joseph; Kvien, Tore K; Heiberg, Turid; Distler, Oliver.
Afiliação
  • Becker MO; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland.
  • Dobrota R; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland.
  • Garaiman A; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland.
  • Debelak R; Department of Psychology, Psychological Methods, Evaluation and Statistics, University of Zurich, Zurich, Switzerland.
  • Fligelstone K; Department of Psychology, Psychological Methodology, University of Leipzig, Leipzig, Germany.
  • Tyrrell Kennedy A; Scleroderma and Raynaud's UK, London, UK.
  • Roennow A; Federation of the European Scleroderma Associations (FESCA) aisbl, Tournai, Belgium.
  • Allanore Y; Federation of European Scleroderma Associations (FESCA), Saint Maur, Belgium.
  • Carreira PE; Department of Rheumatology A, Descartes University, APHP, Cochin Hospital, Paris, France.
  • Czirják L; Department of Rheumatology, Hospital Universitario 12 de Octubre, Madrid, Spain.
  • Denton CP; Department of Rheumatology and Immunology, University of Pécs, Pécs, Hungary.
  • Hesselstrand R; Centre for Rheumatology, University College London, Royal Free Campus, London, UK.
  • Sandqvist G; Department of Rheumatology, Lund University, Lund, Sweden.
  • Kowal-Bielecka O; Department of Rheumatology, Lund University, Lund, Sweden.
  • Bruni C; Department of Rheumatology and Internal Medicine, Medical University of Bialystok, Bialystok, Poland.
  • Matucci-Cerinic M; Department of Experimental and Clinical Medicine, Division of Rheumatology AOUC, University of Florence, Florence, Italy.
  • Mihai C; Department of Experimental and Clinical Medicine, Division of Rheumatology AOUC, University of Florence, Florence, Italy.
  • Gheorghiu AM; IRCCS San Raffaele Hospital, Unit of Immunology, Rheumatology, Allergy and Rare diseases (UnIRAR), Milan, Italy.
  • Mueller-Ladner U; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland.
  • Sexton J; Department of Internal Medicine and Rheumatology, Cantacuzino Hospital, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania.
  • Kvien TK; Department of Internal Medicine and Rheumatology, Cantacuzino Hospital, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania.
  • Heiberg T; Department of Rheumatology and Clinical Immunology, Justus-Liebig University Giessen, Campus Kerckhoff, Bad Nauheim, Germany.
  • Distler O; Division of Rheumatology and Research, Diakonhjemmet Hospital, Oslo, Norway.
Ann Rheum Dis ; 81(4): 507-515, 2022 04.
Article em En | MEDLINE | ID: mdl-34824049

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Reumatologia / Esclerodermia Localizada / Escleroderma Sistêmico Tipo de estudo: Etiology_studies / Incidence_studies / Observational_studies / Risk_factors_studies Aspecto: Patient_preference Limite: Female / Humans / Male / Middle aged Idioma: En Revista: Ann Rheum Dis Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Suíça País de publicação: Reino Unido

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Reumatologia / Esclerodermia Localizada / Escleroderma Sistêmico Tipo de estudo: Etiology_studies / Incidence_studies / Observational_studies / Risk_factors_studies Aspecto: Patient_preference Limite: Female / Humans / Male / Middle aged Idioma: En Revista: Ann Rheum Dis Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Suíça País de publicação: Reino Unido