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Experiences of parents of children with disabilities with the health services in Jamaica - abstract
West Indian med. j ; 46(Suppl. 2): 39, Apr. 1997.
Artigo em Inglês | MedCarib | ID: med-2455
Biblioteca responsável: JM3.1
Localização: JM3.1; R18.W4
ABSTRACT
A survey was conducted in the parish of St Mary, Jamaica, in 1996, to gain a better understanding of experiences of parents of children with disabilities (CWDs) with health services, and to determine the attitudes of health care workers (HCWs) towards CWDs and their parents. Twenty-six personal interviews were conducted with the caregivers of clients (CWDs) of 3D Projects using a predefined checklist as a guideline, and 113 HCWs completed a questionnaire with closed and open-ended questions. The health services in St Mary do not offer much special help to CWDs, so doctors referred CWDs to hospitals in Kingston. After a while parents stopped going there because they did not see any improvement. Parents claimed the information given by medical personnel was too vague or too difficult to understand. They therefore have unrealistic ideas about the rehabilitaton possibilities for their children. It seemed that parents with a positive attitude towards their child and the disability had better experiences with health services. The majority of problems parents experience have to do with communication. HCWs are not adequately trained to manage all aspects of disability. Therefore they only feel responsible for medical care and treatment. There is also an educational barrier between doctors and parents. This, together with inadequate training, results in doctors not explaining at the parents' level of understanding. The findings have a wider implication than just the childhood disability field as it was found that many parents blame medical personnel for their children's disabilities, believing that unexplained procedures, treatment or neglect damaged their children. Clearly there is a need for more appropriate preparation of all health staff so that parents get full and clear information from the start. It is incumbent on medical staff to find ways to communicate more effectively so that parents can understand, use, follow through and get information even when no medical treatment is necessary. (AU)
Assuntos
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Coleções: Bases de dados internacionais Base de dados: MedCarib Assunto principal: Pais / Atitude do Pessoal de Saúde Tipo de estudo: Guia de prática clínica / Pesquisa qualitativa Limite: Adulto / Criança / Humanos País/Região como assunto: Caribe Inglês / Jamaica Idioma: Inglês Revista: West Indian med. j Ano de publicação: 1997 Tipo de documento: Artigo / Congresso e conferência
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Coleções: Bases de dados internacionais Base de dados: MedCarib Assunto principal: Pais / Atitude do Pessoal de Saúde Tipo de estudo: Guia de prática clínica / Pesquisa qualitativa Limite: Adulto / Criança / Humanos País/Região como assunto: Caribe Inglês / Jamaica Idioma: Inglês Revista: West Indian med. j Ano de publicação: 1997 Tipo de documento: Artigo / Congresso e conferência
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