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1.
Support Care Cancer ; 30(1): 647-657, 2022 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-34363493

RESUMO

PURPOSE: Patients who undergo haematopoietic stem cell transplantation (HSCT) often have multiple health issues following hospital discharge. In many centres, outpatient follow-up is solely conducted by specialist physicians. We aimed to implement and describe the outcomes of a nurse-allied health multidisciplinary clinic. METHODS: The clinic consisted of six disciplines-nursing, pharmacy, dietetics, physiotherapy, occupational therapy and social work. All allogeneic and high risk autologous HSCT patients were reviewed at 2 weeks after discharge and on day 100 post HSCT, with additional reviews as needed. Occasions of service, interventions, readmission data and physician satisfaction survey were collected prior to and after implementation. Additionally, patient feedback and quality of life survey (FACT-BMT) were collected during the first 6 months. RESULTS: From July to December 2019, 57 patients were reviewed in the clinic (475 reviews, average 8.3 reviews per patient). Common interventions included the following: exercise programs by physiotherapist (n = 111), diet prescription (n = 103), counselling by social worker (n = 53), medication lists provision (n = 51), fatigue management (n = 43) and nurse education (n = 22). The clinic did not reduce patients' readmission rate; however, positive feedback from patients and physicians were reported. FACT-BMT results demonstrated that there are unmet needs, particularly fatigue management, sexual education and support, body images, back to work support and quality of life improvement. From discharge to day 100, there was no significant improvement in quality of life. CONCLUSIONS: This clinic provides an innovative approach to patient-centred care in HSCT. It has been well received by patients who were supported by multidisciplinary interventions.


Assuntos
Transplante de Células-Tronco Hematopoéticas , Qualidade de Vida , Humanos , Alta do Paciente , Readmissão do Paciente , Transplante Autólogo
2.
Clin Child Fam Psychol Rev ; 27(2): 509-522, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38632150

RESUMO

Fears and phobias are a common mental health concern for youth, and particularly for autistic youth. The following review briefly summarizes the extant literature on specific phobias and specific phobias in autistic youth. The evidence base is briefly highlighted pointing to the strong base behind behavioral and cognitive-behavioral treatments and techniques. A broad discussion of key evidence-based treatment findings is presented, leading up to the impactful work of Thomas H. Ollendick in researching Öst's One-Session Treatment (OST) with children and adolescents. OST for child specific phobias is discussed, and particular emphasis is given to this treatment's ongoing adaptation for use with youth on the autism spectrum.


Assuntos
Transtorno do Espectro Autista , Medo , Transtornos Fóbicos , Humanos , Transtorno do Espectro Autista/terapia , Transtorno do Espectro Autista/fisiopatologia , Adolescente , Criança , Transtornos Fóbicos/terapia , Transtornos Fóbicos/fisiopatologia , Terapia Cognitivo-Comportamental , Terapia Comportamental/métodos
3.
Artigo em Inglês | MEDLINE | ID: mdl-39160428

RESUMO

Parental self-efficacy (PSE) assesses a parent's expectations and beliefs about their ability to effectively parent their child. PSE has implications for a parent's well-being, parenting practices, mental health, the parent-child relationship, and child adjustment. While PSE has been extensively examined within the broader parenting literature, the examination of PSE specifically for parents of autistic children has gained increasing attention in recent years. The following systematic review aimed to investigate the role of PSE for parents of autistic children by examining variables that predict PSE or are predicted by PSE in relation to how they align with the broader parenting literature and are unique to autism. Utilizing PRISMA guidelines, peer-reviewed articles were included if (a) participants included caregivers of autistic children, (b) at least one quantitative outcome measure of PSE was utilized, and (c) the role of PSE was examined as an outcome, predictor, or variable in an explanatory model. A total of 53 studies were included in the review and the role of PSE was examined regarding family (e.g., parental characteristics, parent stress, well-being, and support) and child factors (e.g., autism symptomology, problem behaviors, interventions). Several themes emerged including a positive relationship between PSE and support, and a negative relationship between PSE and parenting stress, parent mental health outcomes (e.g., anxiety, depression), and autism symptomology. Findings were compared to the broader parenting and PSE literature to examine how increased considerations and challenges (e.g., child problem behaviors, social impairment, and caregiver strain) associated with raising an autistic child might impact PSE.

4.
Behav Anal Pract ; 14(4): 1079-1084, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34868815

RESUMO

This study used an alternating treatments embedded within a nonconcurrent multiple baseline across participants design to evaluate the effects of a stability ball chair on the on-task and in-seat behavior for three children with autism in a clinic setting. Results indicated increases for both in-seat and on-task behavior with the stability ball chair compared to a standard table chair, however, results varied across participants. On-task behavior had a greater increase across participants compared to in-seat behavior with the stability ball chair. Social validity results found that therapists had an overall positive view of stability ball chairs. This study provides clinicians with options for alternative seating to increase the on-task and in-seat behavior of children with autism. This study extends the use and evaluation of alternative seating, from typically studied settings and contexts, such as classrooms, to clinic settings with younger populations.

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