Detalhe da pesquisa
1.
Newborn screening for neurodevelopmental diseases: Are we there yet?
Am J Med Genet C Semin Med Genet
; 190(2): 222-230, 2022 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-35838066
2.
Aiming High: Monitoring Population Level Indicators of Child Wellbeing as a Goal of Community-Academic Partnerships.
Matern Child Health J
; 26(5): 970-977, 2022 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-34982344
3.
Foundation of the Newborn Screening Translational Research Network and its tools for research.
Genet Med
; 21(6): 1271-1279, 2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-30393376
4.
Including ELSI research questions in newborn screening pilot studies.
Genet Med
; 21(3): 525-533, 2019 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-30100612
5.
The Interprofessional/Family-Centered-Care Observation Rubric (I-FOR): Results of a Multicenter Study of a New Measure of Educational Outcomes.
Matern Child Health J
; 22(10): 1384-1392, 2018 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-30014376
6.
Child Rights and Clinical Bioethics: Historical Reflections on Modern Medicine and Ethics.
Perspect Biol Med
; 58(3): 356-64, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-27157355
7.
Phenylketonuria Scientific Review Conference: state of the science and future research needs.
Mol Genet Metab
; 112(2): 87-122, 2014 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-24667081
8.
Identifying the right outcomes to measure for children with medical complexity.
Dev Med Child Neurol
; 61(9): 1000, 2019 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-30585619
9.
An Expanded Approach to the Ascertainment of Children and Youth With Special Health Care Needs.
Pediatrics
; 153(6)2024 May 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-38712452
10.
Shared Decision-Making at the Intersection of Disability, Culture, and Language Accessibility: An Educational Session for Medical Students.
MedEdPORTAL
; 20: 11396, 2024.
Artigo
em Inglês
| MEDLINE | ID: mdl-38722734
11.
Quality of Life and Well-Being for Children and Youth With Special Health Care Needs and their Families: A Vision for the Future.
Pediatrics
; 149(Suppl 7)2022 06 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-35642872
12.
A Quality Improvement Network for Interdisciplinary Training in Developmental Disabilities.
Pediatrics
; 150(6)2022 12 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-36349516
13.
50 Years Ago in TheJournal ofPediatrics: Legislation and Advances in Medical Knowledge-Acceleration or Inhibition?
J Pediatr
; 175: 53, 2016 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-27507313
14.
Medical Student Choices Regarding Ventilator Allocation for People With Disabilities.
Intellect Dev Disabil
; 59(6): 441-445, 2021 12 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-34814168
15.
Ethics Education in COVID-19: Preclinical Medical Students' Approach to Ventilator Allocation.
Cureus
; 13(8): e16976, 2021 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-34540386
16.
Assessment of Disparities Associated With a Crisis Standards of Care Resource Allocation Algorithm for Patients in 2 US Hospitals During the COVID-19 Pandemic.
JAMA Netw Open
; 4(3): e214149, 2021 03 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33739434
17.
50 Years Ago in The Journal of Pediatrics: Phenylketonuria in a Negro Infant.
J Pediatr
; 167(2): 304, 2015 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-26210837
18.
COVID-19 Trial Enrollment for Those Who Cannot Consent: Ethical Challenges Posed by a Pandemic.
Pediatrics
; 146(5)2020 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-33028661
19.
Reconsideration of the Calculation of Children and Youth With Special Health Care Needs.
Pediatrics
; 153(6)2024 May 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-38712449
20.
Whose Odyssey Is It? Family-Centered Care in the Genomic Era.
Hastings Cent Rep
; 48 Suppl 2: S20-S22, 2018 Jul.
Artigo
em Inglês
| MEDLINE | ID: mdl-30133737