Detalhe da pesquisa
1.
Provider prescription of hydroxyurea in youth and adults with sickle cell disease: A review of prescription barriers and facilitators.
Br J Haematol
; 203(5): 712-721, 2023 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-37691131
2.
Attitudes toward COVID-19 vaccine among pediatric patients with sickle cell disease and their caregivers.
Pediatr Blood Cancer
; 70(5): e30274, 2023 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-36860093
3.
Gene therapy in sickle cell disease: Attitudes and informational needs of patients and caregivers.
Pediatr Blood Cancer
; 70(6): e30319, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36975201
4.
Developmental screening of three-year-old children with sickle cell disease compared to controls.
Br J Haematol
; 195(4): 621-628, 2021 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-34396511
5.
Engaging the Sickle Cell Community in Participatory Research.
Am J Bioeth
; 21(10): 51-53, 2021 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-34554074
6.
Caregiver Perspectives of Stigma Associated With Sickle Cell Disease in Adolescents.
J Pediatr Nurs
; 31(1): 55-63, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-26534838
7.
Genetic education and sickle cell disease: feasibility and efficacy of a program tailored to adolescents.
J Pediatr Hematol Oncol
; 36(7): 572-7, 2014 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-25089602
8.
Pediatric to adult care co-location transitional model for youth with sickle cell disease.
Am J Hematol
; 93(1): E30-E32, 2018 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-29067725
9.
Strategies to increase access to basic sickle cell disease care in low- and middle-income countries.
Expert Rev Hematol
; 15(4): 333-344, 2022 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-35400264
10.
Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study.
JMIR Res Protoc
; 10(4): e24818, 2021 Apr 16.
Artigo
em Inglês
| MEDLINE | ID: mdl-33861209
11.
Therapy preference and decision-making among patients with severe sickle cell anemia and their families.
Pediatr Blood Cancer
; 48(7): 705-10, 2007 Jun 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-16732581