RESUMO
Adjusting to life after transplant can be challenging to pediatric solid organ transplant recipients and their families. In this review, we discuss a number of important factors to consider during the first 2-3 yr after transplant (defined as the "early years"), including transitioning from hospital to home, returning to physical activity, feeding and nutrition, school reentry, potential cognitive effects of transplant, family functioning, and QOL. We highlight steps that providers can take to optimize child and family adjustment during this period.
Assuntos
Adaptação Psicológica , Família/psicologia , Transplante de Órgãos/psicologia , Transplante de Órgãos/reabilitação , Avaliação de Resultados em Cuidados de Saúde , Transtornos de Estresse Pós-Traumáticos/psicologia , Atividades Cotidianas , Criança , Desenvolvimento Infantil , Humanos , Apoio Nutricional , Qualidade de VidaRESUMO
The waiting period for an organ transplant has been described as a time of tremendous uncertainty and vulnerability, posing unique challenges and stressors for pediatric transplant candidates and their families. It has been identified as the most stressful stage of the transplant journey, yet little attention has been given to the physical, psychological, or social impact of the waiting period in the literature. In this review, we discuss the physical, nutritional, and psychosocial implications of the waiting period for child and adolescent transplant candidates and the impact on their parents and siblings. We identify areas for future research and provide recommendations for clinical practice to support children, adolescents, and families during the waiting period.