Detalhe da pesquisa
1.
Burden and benefit-A mixed methods study of informal Amyotrophic Lateral Sclerosis caregivers in Ireland and the Netherlands.
Int J Geriatr Psychiatry
; 37(5)2022 Mar 14.
Artigo
em Inglês
| MEDLINE | ID: mdl-35362219
2.
Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English-speaking regions: Before and during the COVID-19 pandemic.
Int J Geriatr Psychiatry
; 37(6)2022 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-35574817
3.
Discrete choice experiment for eliciting preference for health services for patients with ALS and their informal caregivers.
BMC Health Serv Res
; 21(1): 213, 2021 Mar 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-33750360
4.
Providing inclusive, person-centred care for LGBT+ older adults: A discussion on health and social care design and delivery.
J Nurs Manag
; 29(1): 104-108, 2021 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-33051942
5.
Individual quality of life in spousal ALS patient-caregiver dyads.
Health Qual Life Outcomes
; 18(1): 371, 2020 Nov 23.
Artigo
em Inglês
| MEDLINE | ID: mdl-33225955
6.
Caregiving in ALS - a mixed methods approach to the study of Burden.
BMC Palliat Care
; 15(1): 81, 2016 Sep 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-27596749
7.
A Model-Based Economic Evaluation of Hypothetical Treatments for Amyotrophic Lateral Sclerosis in the UK: Implications for Pricing of New and Emerging Health Technologies.
Pharmacoeconomics
; 2024 May 31.
Artigo
em Inglês
| MEDLINE | ID: mdl-38819717
8.
Care, burden and self-described positive aspects of caring in amyotrophic lateral sclerosis: an exploratory, longitudinal, mixed-methods study.
BMJ Open
; 13(1): e064254, 2023 01 20.
Artigo
em Inglês
| MEDLINE | ID: mdl-36669844
9.
Epidemiologic Trends of Amyotrophic Lateral Sclerosis in Ireland, 1996-2021.
Neurology
; 101(19): e1905-e1912, 2023 11 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-37748881
10.
IMPACT-ALS: summary of results from a European survey of people living with ALS.
Amyotroph Lateral Scler Frontotemporal Degener
; : 1-10, 2023 Sep 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-37661426
11.
PRECISION ALS-an integrated pan European patient data platform for ALS.
Amyotroph Lateral Scler Frontotemporal Degener
; 24(5-6): 389-393, 2023 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-37221648
12.
A Clinical Decision Support System for the Prediction of Quality of Life in ALS.
J Pers Med
; 12(3)2022 Mar 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-35330435
13.
Prediction of caregiver quality of life in amyotrophic lateral sclerosis using explainable machine learning.
Sci Rep
; 11(1): 12237, 2021 06 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-34112871
14.
Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties.
Brain Sci
; 11(8)2021 Aug 20.
Artigo
em Inglês
| MEDLINE | ID: mdl-34439713
15.
Prediction of caregiver burden in amyotrophic lateral sclerosis: a machine learning approach using random forests applied to a cohort study.
BMJ Open
; 10(2): e033109, 2020 02 28.
Artigo
em Inglês
| MEDLINE | ID: mdl-32114464
16.
To live and age as who we really are: Perspectives from older LGBT+ people in Ireland.
HRB Open Res
; 3: 6, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32296753
17.
Understanding the needs of people with ALS: a national survey of patients and caregivers.
Amyotroph Lateral Scler Frontotemporal Degener
; 21(5-6): 355-363, 2020 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-32396393
18.
Group interventions for amyotrophic lateral sclerosis caregivers in Ireland: a randomised controlled trial protocol.
BMJ Open
; 9(9): e030684, 2019 09 20.
Artigo
em Inglês
| MEDLINE | ID: mdl-31542756
19.
Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis.
Amyotroph Lateral Scler Frontotemporal Degener
; 20(1-2): 74-81, 2019 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-30789031
20.
Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis.
BMJ Open
; 8(1): e018721, 2018 01 27.
Artigo
em Inglês
| MEDLINE | ID: mdl-29374665