Detalhe da pesquisa
1.
Speaking genomics to parents offered germline testing for cancer predisposition: Use of a 2-visit consent model.
Cancer
; 125(14): 2455-2464, 2019 07 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-30901077
2.
Parent-child communication surrounding genetic testing for Li-Fraumeni syndrome: Living under the cloud of cancer.
Pediatr Blood Cancer
; 65(11): e27350, 2018 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-30009566
3.
"Being a good patient" during times of illness as defined by adolescent patients with cancer.
Cancer
; 122(14): 2224-33, 2016 07 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-27141846
4.
Children with minimal chance for cure: parent proxy of the child's health-related quality of life and the effect on parental physical and mental health during treatment.
J Neurooncol
; 129(2): 373-81, 2016 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-27344555
5.
Feasibility of Pegylated Interferon in Children and Young Adults With Resected High-Risk Melanoma.
Pediatr Blood Cancer
; 63(7): 1207-13, 2016 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-27038395
6.
Adolescents' preferences for treatment decisional involvement during their cancer.
Cancer
; 121(24): 4416-24, 2015 Dec 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-26348790
7.
Bereaved parents' intentions and suggestions about research autopsies in children with lethal brain tumors.
J Pediatr
; 163(2): 581-6, 2013 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-23433673
8.
Parental Understanding of Their Child's Germline Genomic Testing: Intent of Disclosure to Their Child and Family.
J Pers Med
; 13(12)2023 Nov 28.
Artigo
em Inglês
| MEDLINE | ID: mdl-38138883
9.
Parent Quality of Life After Disclosure of Pediatric Oncology Germline Sequencing Results.
JCO Precis Oncol
; 7: e2300159, 2023 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-37944075
10.
Pediatric Early Warning Systems (PEWS) improve provider-family communication from the provider perspective in pediatric cancer patients experiencing clinical deterioration.
Cancer Med
; 12(3): 3634-3643, 2023 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-36128882
11.
Parental Preferences Surrounding Timing and Content of Consent Conversations for Clinical Germline Genetic Testing Following a Child's New Cancer Diagnosis.
JCO Precis Oncol
; 6: e2200323, 2022 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-36265116
12.
Multidisciplinary Clinician Perspectives on Embedded Palliative Care Models in Pediatric Cancer.
J Pain Symptom Manage
; 64(3): 222-233, 2022 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-35649459
13.
Managing Pandora's Box: Familial Expectations around the Return of (Future) Germline Results.
AJOB Empir Bioeth
; 13(3): 152-165, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-35471132
14.
Knowledge Is Power: Benefits, Risks, Hopes, and Decision-Making Reported by Parents Consenting to Next-Generation Sequencing for Children and Adolescents with Cancer.
Semin Oncol Nurs
; 37(3): 151167, 2021 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-34127338
15.
Never Enough Time: Mixed Methods Study Identifies Drivers of Temporal Demand That Contribute to Burnout Among Physicians Who Care for Pediatric Hematology-Oncology Patients.
JCO Oncol Pract
; 17(7): e958-e971, 2021 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-33720755
16.
Clinician Emotions Surrounding Pediatric Oncology Patient Deterioration.
Front Oncol
; 11: 626457, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-33718195
17.
Impact of PEWS on Perceived Quality of Care During Deterioration in Children With Cancer Hospitalized in Different Resource-Settings.
Front Oncol
; 11: 660051, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-34249696
18.
Qualitative Study of Pediatric Early Warning Systems' Impact on Interdisciplinary Communication in Two Pediatric Oncology Hospitals With Varying Resources.
JCO Glob Oncol
; 6: 1079-1086, 2020 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-32673079
19.
Factors Associated with Declining to Participate in a Pediatric Oncology Next Generation Sequencing Study.
JCO Precis Oncol
; 4: 202-211, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32395682
20.
Health-Related Quality of Life and Survival Outcomes of Pediatric Patients With Nonmetastatic Osteosarcoma Treated in Countries With Different Resources.
J Glob Oncol
; 4: 1-11, 2018 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-30241221