Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 8 de 8
Filtrar
1.
J Pediatr Hematol Oncol Nurs ; 40(4): 245-258, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37063060

RESUMO

Hope's role in the care of adolescents and young adults (AYAs) who have advanced cancer (AC) is not well understood. This study aimed to conceptualize the essence of hope among AYAs who have AC based on their lived experiences and illustrate hope through verbal and artistic depictions of the AYA's lived experiences. Fifteen AYAs, aged 12 to 21 years, diagnosed with AC completed two semistructured interviews to share their lived experiences of hope perspectives in the form of a descriptive narrative and a creative-art outcome. Participants who chose to draw pictures narrated the conceptual meanings based on elements of each picture. A board-certified art therapist performed a post hoc analysis of the drawings and participants' verbatim descriptions of their meanings. Five of the 15 AYA participants created drawings depicting their lived experiences of hope. The artistic process of mapping their cancer journey revealed distinct views of hope through nature landscapes and metaphors. Participants provided titles for their drawings such as "Over the Rainbow," "Growth in the Valley," and "The Light at the End of the Tunnel." The pictures embodied the AYAs' thoughts, perceptions, and lived experiences related to hope and its role during their cancer journey. Drawing is one simple art form that can facilitate an AYA's expression of well-being (including hope) beyond what may be verbally articulated. Creative art should be further researched as a screening tool to assess how AYAs with AC cope with an uncertain future and psychological and/or existential distress symptoms.


Assuntos
Arteterapia , Neoplasias , Adolescente , Humanos , Adulto Jovem , Neoplasias/terapia , Criança
2.
J Pain Symptom Manage ; 63(4): 581-589, 2022 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-34890726

RESUMO

OBJECTIVES: 1. Describe the concept of hope based on perspectives of AYAs who experienced advanced cancer. 2. Differentiate the role hope has for AYAs before, during, and after experiencing cancer. CONTEXT: In clinical care, addressing patients' hopes may stimulate conversations about their goals, concerns, and values; helping clinicians focus on patient-centered interventions to support the patient's psychological, spiritual, and existential needs. METHODS: This descriptive qualitative study used a phenomenology informed approach to depict experiences with hope by AYAs who have advanced cancer. The participants completed two semi-structured audio-recorded virtual interviews and co-created narratives and drawings about the role of hope before, during, and after experiencing cancer. Thematic analyses were performed on the narratives. RESULTS: Fifteen AYAs aged 12-21 years were recruited from an academic medical center and an online non-profit organization. During data collection participants had either completed treatments (60%), or were actively receiving treatments (40%). Approximately 67% of the sample experienced at least one relapse. A main theme identified from the narratives was Transitions of Hope. Participants described differences in their hope before and after experiencing cancer. Participants who experienced a relapse reported their past experiences helped them build hope during their relapse. Participants described a new sense of purpose after experiencing cancer, such as starting a non-profit organization, giving back to others, doing "what I'm passionate about", and honoring the legacies of others. CONCLUSION: Transitions in the role of hope occurred over time, becoming a source of mental sustenance during cancer treatment, and a source of altruism after experiencing cancer. This study adds to the understanding of hope for AYAs who have advanced cancer.


Assuntos
Neoplasias , Adolescente , Comunicação , Humanos , Narração , Neoplasias/psicologia , Neoplasias/terapia , Pesquisa Qualitativa , Recidiva , Adulto Jovem
3.
Hisp Health Care Int ; 16(3): 113-119, 2018 09.
Artigo em Inglês | MEDLINE | ID: mdl-30207164

RESUMO

INTRODUCTION: In the United States, Latino children are disproportionately affected by childhood obesity and related comorbidities. Stakeholder engagement has the potential to heighten the efficacy of interventions, thereby reducing the disparate prevalence of obesity among Latino children. The objective of this study was to identify stakeholders' opinions on factors influencing early childhood obesity in Latino children aged 0 to 5 years. METHOD: This study used the Delphi technique to gather and prioritize stakeholders' opinions about the factors and barriers considered most influential in early (age 0-5 years) childhood obesity intervention or prevention within the Latino community. Three sequential phases were used. Participants included Latina women as well as staff from community organizations serving Denver metropolitan's Latino population. RESULTS: Study results revealed that stakeholders value the role of the child's primary care provider in the identification of overweight children and desire more educational support to reduce intake of nonnutritious foods. Participants further determined that obesity-related knowledge gaps and affordability of healthy foods and activities were the largest barriers to helping Latino children maintain healthy weights. CONCLUSION: Use of this stakeholder-informed data could assist in the development of future culturally tailored interventions aimed at reducing the rates of early childhood obesity in the Latino population.


Assuntos
Agentes Comunitários de Saúde , Técnica Delphi , Conhecimentos, Atitudes e Prática em Saúde , Promoção da Saúde/métodos , Hispânico ou Latino , Obesidade Infantil/prevenção & controle , Pré-Escolar , Colorado , Feminino , Humanos , Lactente , Masculino , Mães , Obesidade Infantil/etiologia
4.
J Spec Pediatr Nurs ; 21(2): 84-93, 2016 04.
Artigo em Inglês | MEDLINE | ID: mdl-27079822

RESUMO

PURPOSE: The purpose of this study was to examine the accuracy of Hispanic parents' perceptions of their preschool children's weight status. DESIGN AND METHODS: A cross-sectional descriptive design with Hispanic parent-child dyads (n = 83) from a Head Start setting was used to compare parents' perceptions of their children's weight status with their 2- to 5-year-old children's body mass index (BMI) and weight categories. Methods included a word choice from five response options, and varying body size silhouettes presented in a linear fashion and a random circular pattern. Parents' perceptions were compared with the children's BMI, and in relationship to parents' demographic characteristics and BMI. RESULTS: Approximately half of parents underestimated their child's weight status, and overweight/obese parents tended to underestimate their overweight/obese children's weight status. PRACTICE IMPLICATIONS: Eliciting parent perception of their child's weight is one way providers can engage in obesity prevention dialogue.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Hispânico ou Latino/psicologia , Sobrepeso/psicologia , Pais/psicologia , Obesidade Infantil/psicologia , Adulto , Atitude Frente a Saúde , Índice de Massa Corporal , Pré-Escolar , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários , Estados Unidos
5.
Child Obes ; 11(5): 549-59, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-26218438

RESUMO

BACKGROUND: Obesity continues to disproportionately affect ethnic minorities. Parents play an integral role in early childhood, and parental perceptions regarding their child's weight are key to obesity prevention. Cultural differences contribute to parental perceptions, and increased understandings of these characteristics provide a basis to address obesity in high-risk populations at an earlier age. The aim of this integrative review was to analyze extant literature to identify Hispanic parental perceptions of their preschool-aged child's weight status. METHODS: An integrative review of studies measuring Hispanic parental perception was conducted. Computerized searches were completed using MEDLINE, PubMed, CINHAL, Eric, and PsychINFO. Articles were included if they were English, included children 2-5 years of age, included a Hispanic population, and evaluated parental perception of their child's weight status. A total of 14 articles (n=8 qualitative; n=6 quantitative) met criteria and were included in the review. Cooper's integrative review methodology was used, and articles were evaluated for quality using Polit and Beck's evidence hierarchy leveling system. RESULTS: The results revealed six themes of Hispanic parental perceptions relative to their preschool-aged child's weight: parental perception of body weight; relationship between child weight and health; causes and consequences of overweight; familial roles and influences on child weight; prevention of overweight; and cultural influences within the United States. CONCLUSIONS: This review highlights the importance of developing sociocultural approaches to addressing childhood obesity within the Hispanic population. Additional research is needed to incorporate what is known about Hispanic parental perceptions to positively influence behavior change during early childhood.


Assuntos
Imagem Corporal/psicologia , Características Culturais , Comportamentos Relacionados com a Saúde/etnologia , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Hispânico ou Latino/psicologia , Sobrepeso/psicologia , Pais/psicologia , Percepção Social , Adulto , Índice de Massa Corporal , Pré-Escolar , Feminino , Humanos , Masculino , Estado Nutricional , Pais/educação , Fatores Socioeconômicos , Estados Unidos/epidemiologia
6.
PLoS Negl Trop Dis ; 9(7): e0003937, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-26196686

RESUMO

BACKGROUND: Few studies of dengue have shown group-level associations between demographic, socioeconomic, or geographic characteristics and the spatial distribution of dengue within small urban areas. This study aimed to examine whether specific characteristics of an urban slum community were associated with the risk of dengue disease. METHODOLOGY/PRINCIPAL FINDINGS: From 01/2009 to 12/2010, we conducted enhanced, community-based surveillance in the only public emergency unit in a slum in Salvador, Brazil to identify acute febrile illness (AFI) patients with laboratory evidence of dengue infection. Patient households were geocoded within census tracts (CTs). Demographic, socioeconomic, and geographical data were obtained from the 2010 national census. Associations between CTs characteristics and the spatial risk of both dengue and non-dengue AFI were assessed by Poisson log-normal and conditional auto-regressive models (CAR). We identified 651 (22.0%) dengue cases among 2,962 AFI patients. Estimated risk of symptomatic dengue was 21.3 and 70.2 cases per 10,000 inhabitants in 2009 and 2010, respectively. All the four dengue serotypes were identified, but DENV2 predominated (DENV1: 8.1%; DENV2: 90.7%; DENV3: 0.4%; DENV4: 0.8%). Multivariable CAR regression analysis showed increased dengue risk in CTs with poorer inhabitants (RR: 1.02 for each percent increase in the frequency of families earning ≤1 times the minimum wage; 95% CI: 1.01-1.04), and decreased risk in CTs located farther from the health unit (RR: 0.87 for each 100 meter increase; 95% CI: 0.80-0.94). The same CTs characteristics were also associated with non-dengue AFI risk. CONCLUSIONS/SIGNIFICANCE: This study highlights the large burden of symptomatic dengue on individuals living in urban slums in Brazil. Lower neighborhood socioeconomic status was independently associated with increased risk of dengue, indicating that within slum communities with high levels of absolute poverty, factors associated with the social gradient influence dengue transmission. In addition, poor geographic access to health services may be a barrier to identifying both dengue and non-dengue AFI cases. Therefore, further spatial studies should account for this potential source of bias.


Assuntos
Dengue/epidemiologia , Áreas de Pobreza , Adolescente , Adulto , Brasil/epidemiologia , Criança , Feminino , Humanos , Masculino , Fatores de Risco , Fatores Socioeconômicos , Adulto Jovem
7.
J Spec Pediatr Nurs ; 18(3): 202-10, 2013 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-23822844

RESUMO

PURPOSE: A concept analysis was undertaken to examine the attributes, characteristics, and uses of the concept of obesogenic environment within a pediatric context. CONCLUSIONS: Utilizing a modified version of Walker and Avant's method, the attributes and characteristics of obesogenic environment were identified as it pertains to children. Based on the review of the literature and previous definitions applied to adults, a definition of the concept of obesogenic environment within a pediatric context was developed; examples of sample cases illustrate the concept further. PRACTICE IMPLICATIONS: Defining the concept of obesogenic environment has utility for nursing theory development, practice, research, and education.


Assuntos
Meio Ambiente , Teoria de Enfermagem , Obesidade/etiologia , Obesidade/enfermagem , Enfermagem Pediátrica , Adolescente , Criança , Humanos , Obesidade/epidemiologia , Fatores de Risco
SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA