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1.
Pain Manag Nurs ; 20(6): 519-525, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31473169

RESUMO

BACKGROUND: In patients with cognitive impairments who are unable to self-report pain, nurses must rely on behavioral observation tools to assess and manage pain. Although frequently employed in medical-surgical units, evidence supporting the psychometric efficacy of the Pain in Advanced Dementia (PAINAD) for pain screening in older adults with delirium is lacking. AIM: To examine the psychometrics of the PAINAD for older adults with delirium in medical-surgical settings. DESIGN: A descriptive repeated measures design. SETTING: Medical-surgical units in an urban tertiary care hospital. PARTICIPANTS: Sixty-eight older adults with delirium. METHODS: Patients with delirium unable to self-report pain were screened by two data collectors with the PAINAD and the Critical Care Pain Observation Tool (CPOT). Patients with a PAINAD score ≥3 or a CPOT score ≥2 received a pain intervention. Pain assessments were repeated 30 minutes post baseline or pain intervention. RESULTS: Patients were predominately female (58.8%) with dementia (71%). Thirty-nine patients screened positive for pain and received a pain intervention. PAINAD reliability was strong (Cronbach's α = 0.81-0.87; interrater intraclass coefficients [ICC] = 0.91-0.94; test-retest ICC = 0.76-0.77). Construct validity was supported by a statistically significant interaction effect between time (baseline versus follow-up) and condition (pain intervention versus no pain group; Rater 1: F(1,66) = 8.31, p = 0.005, ηp2 = 0.11; Rater 2: F(1,66) = 8.22, p = 0.006, ηp2 = 0.11. CONCLUSIONS: The PAINAD is a reliable and valid tool for pain screening for older adults with delirium in medical-surgical settings. CLINICAL IMPLICATIONS: Pain and delirium frequently co-occur in the older adult population. Best practices require a holistic assessment for contributing pain and non-pain factors in patients exhibiting distress.


Assuntos
Delírio/complicações , Medição da Dor/métodos , Psicometria/normas , Idoso , Idoso de 80 Anos ou mais , Análise de Variância , Feminino , Humanos , Masculino , Psicometria/instrumentação , Psicometria/métodos , Reprodutibilidade dos Testes , Centros de Atenção Terciária/organização & administração , Centros de Atenção Terciária/estatística & dados numéricos
2.
J Natl Black Nurses Assoc ; 28(1): 60-63, 2017 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-29932570

RESUMO

The purpose of this integrative review was to synthesize the existing evidence on diabetes care within a Patient-Centered Medical Home (PCMH) model to evaluate its effectiveness on quality outcomes. Literature published in English between 2005 and 2015 was searched using thefollowing keywords: PCMH and diabetes, comprehensive care, care coordination, patient-centered care, quality and safety, and accessible care. The following databases were searched: Cumulative Index to Nursing and Allied Health Literature (CINAHL), PubMed, Cochrane Review, Academic Premier (EBSCO), and Psych INFO. The search yielded 96 articles; 11 were selectedfor review. The effects of the PCMH model on diabetes outcomes varied. The heterogeneity of the research designs, practice settings, and quality outcomes limited the generalizability of the findings. The evidence related to diabetes type 2 quality outcomes in a PCMH model is limited yet encouraging. However, future studies should consider longitudinal designs, where outcomes can be observed over a period of time.


Assuntos
Diabetes Mellitus Tipo 2/enfermagem , Equipe de Assistência ao Paciente/organização & administração , Assistência Centrada no Paciente/organização & administração , Qualidade da Assistência à Saúde/organização & administração , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Resultado do Tratamento , Estados Unidos
3.
Appl Nurs Res ; 31: 29-33, 2016 08.
Artigo em Inglês | MEDLINE | ID: mdl-27397815

RESUMO

BACKGROUND: Malnutrition among skilled nursing facility (SNF) patients can lead to hospital readmissions and multiple complications. PURPOSE: To evaluate the effect of an existing malnutrition screening and management program on prealbumin levels of patients in skilled nursing facilities. METHODS: A retrospective design was used to evaluate baseline admission data including a prealbumin level. Patients with malnutrition received an oral protein supplement according to protocol. A comparison prealbumin level was obtained at 30days. RESULTS: Nearly half of the patients were severely malnourished on admission. Patients receiving the prescribed protocol had significantly increased prealbumin levels at 30days than those patients that did not receive the protocol as prescribed. CONCLUSION: A prealbumin level upon admission at a SNF could represent a reliable tool to evaluate malnutrition. Initiation of an early malnutrition screening and protein supplement program in this setting is essential to identifying and treating at-risk patients before complications occur.


Assuntos
Proteínas Alimentares/administração & dosagem , Desnutrição/dietoterapia , Desnutrição/diagnóstico , Instituições de Cuidados Especializados de Enfermagem , Idoso , Idoso de 80 Anos ou mais , Proteínas Alimentares/economia , Feminino , Humanos , Masculino , Desnutrição/complicações , Readmissão do Paciente , Estudos Retrospectivos
4.
J Pain Symptom Manage ; 64(4): 349-358, 2022 10.
Artigo em Inglês | MEDLINE | ID: mdl-35803554

RESUMO

CONTEXT: Patient experiences should be considered by healthcare systems when implementing care practices to improve quality of end-of-life care. Families and caregivers of recent in-patient decedents may be best positioned to recommend practices for quality improvement. OBJECTIVES: To identify actionable practices that bereaved families highlight as contributing to high quality end-of-life care. METHODS: We conducted qualitative content analysis of narrative responses to the Bereaved Family Surveys Veterans Health Administration inpatient decedents. Out of 5964 completed surveys in 2017, 4604 (77%) contained at least one word in response to the open-ended questions. For feasibility, 1500/4604 responses were randomly selected for analysis. An additional 300 randomly selected responses were analyzed to confirm saturation. RESULTS: Over 23% percent (355/1500) of the initially analyzed narrative responses contained actionable practices. By synthesizing narrative responses to the BFS in a national healthcare system, we identified 98 actionable practices reported by the bereaved families that have potential for implementation in QI efforts. Specifically, we identified 67 end-of-life practices and 31 practices in patient-centered care domains of physical environment, food, staffing, coordination, technology and transportation. The 67 cluster into domains including respectful care and communication, emotional and spiritual support, death benefits, symptom management. Sorting these practices by target levels for organizational change illuminated opportunities for implementation. CONCLUSION: Narrative responses from bereaved family members can yield approaches for systematic quality improvement. These approaches can serve as a menu in diverse contexts looking for approaches to improve patient quality of death in in-patient settings.


Assuntos
Cuidados Paliativos na Terminalidade da Vida , Assistência Terminal , Comunicação , Família/psicologia , Humanos , Cuidados Paliativos/psicologia , Assistência Terminal/psicologia
5.
J Palliat Med ; 24(3): 423-427, 2021 03.
Artigo em Inglês | MEDLINE | ID: mdl-32833526

RESUMO

Background: Latinos are the largest minority group in the United States and when compared with non-Latino whites suffer from higher rates of certain chronic diseases. Latino community health workers (promotores de salud) are successful in improving the health of their communities. However, evidence of their effectiveness in increasing awareness of palliative care (PC) is limited. Objective: To evaluate the feasibility of applying a promotores de salud model to improve PC awareness among Latinos within the context of chronic disease management. Methods: Bilingual promotores from Familias en Acción trained 76 southern California promotores on PC and chronic disease management. Promotores agreed to disseminate the information learned to 10+ Latino community members. The strengths of the curriculum and the community's needs were identified during phone interviews six months post-training. Results: In 406 diverse settings, 69 promotores trained 2734 community members. Interviews with promotores at follow-up established four themes: (1) holistic health in chronic disease management; (2) communication with doctors; (3) shared decision making, patients' rights, and control; and (4) need for PC information (awareness, access, and support groups). Conclusion:Promotores proved effective at disseminating information related to PC within chronic disease management to Latino community members. Future training should include information on support groups and where caregivers can seek help while caring for those with a terminal disease.


Assuntos
Agentes Comunitários de Saúde , Cuidados Paliativos , Doença Crônica , Gerenciamento Clínico , Hispânico ou Latino , Humanos , Poder Psicológico , Estados Unidos
6.
J Gen Intern Med ; 25(9): 900-5, 2010 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-20229139

RESUMO

BACKGROUND: Routine numeric screening for pain is widely recommended, but its association with overall quality of pain care is unclear. OBJECTIVE: To assess adherence to measures of pain management quality and identify associated patient and provider factors. DESIGN: A cross-sectional visit-based study. PARTICIPANTS: One hundred and forty adult VA outpatient primary care clinic patients reporting a numeric rating scale (NRS) of moderate to severe pain (four or more on a zero to ten scale). Seventy-seven providers completed a baseline survey regarding general pain management attitudes and a post-visit survey regarding management of 112 participating patients. MEASUREMENT AND MAIN RESULTS: We used chart review to determine adherence to four validated process quality indicators (QIs) including noting pain presence, pain character, and pain control, and intensifying pharmacological intervention. The average NRS was 6.7. Seventy-three percent of charts noted the presence of pain, 13.9% the character, 23.6% the degree of control, and 15.3% increased pain medication prescription. Charts were more likely to include documentation of pain presence if providers agreed that "patients want me to ask about pain" and "pain can have negative consequences on patient's functioning". Charts were more likely to document character of pain if providers agreed that "patients are able to rate their pain". Patients with musculoskeletal pain were less likely to have chart documentation of character of pain. CONCLUSIONS: Despite routine pain screening in VA, providers seldom documented elements considered important to evaluation and treatment of pain. Improving pain care may require attention to all aspects of pain management, not just screening.


Assuntos
Analgésicos/uso terapêutico , Atitude do Pessoal de Saúde , Hospitais de Veteranos , Medição da Dor , Padrões de Prática Médica , Indicadores de Qualidade em Assistência à Saúde , Estudos Transversais , Feminino , Pesquisas sobre Atenção à Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Ambulatório Hospitalar , Satisfação do Paciente , Relações Médico-Paciente
7.
Pain Med ; 11(9): 1365-72, 2010 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-20807347

RESUMO

BACKGROUND: Pain is a common, often undertreated problem among patients with palliative needs. OBJECTIVES: To evaluate clinician factors associated with intention to address diverse aspects of pain. DESIGN: Clinicians reviewed a clinical vignette describing a frail elderly patient with advanced hormone-refractory metastatic prostate cancer, depression, and pain not on analgesic therapy. Clinicians were surveyed about their intentions for treatment. PARTICIPANTS: All 280 primary care and specialist clinicians working in 19 hospital and community-based primary care, oncology, and cardiology clinics at eight geographically dispersed sites in two large VA hospital systems. MAIN MEASURES: Endpoints were clinician intention to deliver guideline-concordant care: prescribe opioids/antidepressants, assess existential wellbeing, and offer mental health referral. Demographic and behavioral measures were evaluated in association with endpoints. KEY RESULTS: Of 208 (74%) responding practitioners, 189 were responsible for prescribing decisions. Of those, 86, 77, 75, and 69 were "very"/"somewhat likely" to prescribe opioids, antidepressants, refer to a mental health specialist, or assess existential wellbeing, respectively. Factors associated with greater intent to prescribe an opioid or antidepressant included female gender, being an attending physician, being a primary care clinician, and greater confidence in pain management skills. Greater trust in the validity of pain ratings was associated with intent to prescribe an antidepressant and assess existential wellbeing. Prescribing opioids was less likely if perceived as an administrative burden. Assessing existential wellbeing was less likely if time constraints were perceived a barrier to evaluating pain. Female gender was the only factor associated with intent to refer to a mental health specialist. CONCLUSIONS: Our findings suggest useful targets for improving pain management include bolstering clinician confidence in pain management and their trust in pain ratings.


Assuntos
Analgésicos/uso terapêutico , Atitude do Pessoal de Saúde , Pacientes Ambulatoriais , Dor/tratamento farmacológico , Médicos/psicologia , Padrões de Prática Médica , Adulto , Idoso , Analgésicos Opioides/uso terapêutico , Antidepressivos/uso terapêutico , Coleta de Dados , Depressão/tratamento farmacológico , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Índice de Gravidade de Doença
8.
Pain Manag Nurs ; 11(2): 92-8, 2010 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-20510839

RESUMO

Fear of engendering addiction is frequently reported as both a provider and a patient barrier to effective pain management. In this study, a clinical scenario ascertained nursing staff members' usual practice in addressing addiction fears for patients with concerns about the addictive potential of pain medication. One hundred forty-five Veterans Health Administration nursing staff members from eight ambulatory care sites were queried to identify variables associated with proclivity to address patient fears about addiction risks in a population where pain is prevalent and the risk for substance abuse is high. Regarding addressing addiction concerns, 66% of nursing staff were very likely, 16% somewhat likely, 9% unsure, 6% somewhat unlikely, and 2% very unlikely to take action. Health technicians were less likely to address addiction concerns than registered or licensed vocational nurses (odds ratio [OR] 0.116; p=.004). Nursing staff with more years' experience (OR 1.070; p=.005) and higher levels of self-efficacy/confidence (OR 1.380; p=.001) were more likely to engage in discussions related to addiction risks. Targeted efforts to improve pain management activities should focus on retaining experienced nursing staff in initial assessment positions and improving the skills and confidence of less experienced and less skilled staff.


Assuntos
Atitude do Pessoal de Saúde , Atitude Frente a Saúde , Recursos Humanos de Enfermagem/psicologia , Dor/psicologia , Transtornos Relacionados ao Uso de Substâncias , Adulto , Idoso , Competência Clínica , Medo , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Modelos Logísticos , Los Angeles , Masculino , Pessoa de Meia-Idade , Análise Multivariada , Papel do Profissional de Enfermagem/psicologia , Pesquisa Metodológica em Enfermagem , Recursos Humanos de Enfermagem/educação , Recursos Humanos de Enfermagem/organização & administração , Dor/complicações , Dor/tratamento farmacológico , Educação de Pacientes como Assunto , Padrões de Prática em Enfermagem/organização & administração , Fatores de Risco , Autoeficácia , Transtornos Relacionados ao Uso de Substâncias/etiologia , Transtornos Relacionados ao Uso de Substâncias/prevenção & controle , Estados Unidos , United States Department of Veterans Affairs
9.
J Adv Pract Oncol ; 11(8): 825-834, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-33489423

RESUMO

BACKGROUND: Quality cancer care includes routine screening for psychosocial distress. This quality improvement project focused on the implementation of distress screening at a licensed affiliate of Cancer Support Community, a community-based non-profit organization that provides professionally led cancer support. METHODS: An advanced practice oncology nurse assisted the staff in implementing and evaluating the process of distress screening. CancerSupportSource (CSS), a validated web-based distress screening program developed by Cancer Support Community for use in community cancer settings, was employed to screen for distress, identify potential resources, and improve in-house and community referrals. For purposes of this quality improvement project, CSS was administered in interview format by staff. The Plan-Do-Study-Act (PDSA) quality improvement approach was used to implement CSS. RESULTS: To implement the practice of distress screening, 21 patient participants were initially screened and evaluated for distress, including risk for clinically significant levels of depression, using CSS. The tool identified participant concerns and flagged thirteen persons as at risk for depression. After implementation and evaluation of distress screening using PDSA, in a year, 51 participants were screened. Participants stated that distress screening allowed for discussion of intimate questions that may not have otherwise occurred in an intake interview. CONCLUSION: It was demonstrated that CSS identified psychosocial and practical needs, facilitating the referral process and identification of community resources. Application of the PDSA model was an effective quality improvement model that can be used for the implementation and sustainability of distress screening across settings.

10.
J Pain Symptom Manage ; 60(4): 699-708, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-32428664

RESUMO

CONTEXT: Although bereaved family surveys (BFS) are routinely used quantitatively for quality assessment, open-ended and narrative responses are rarely systematically analyzed. Analysis of narrative responses may identify opportunities for improving end-of-life (EOL) care delivery. OBJECTIVES: To highlight the value of routine and systematic analysis of narrative responses and to thematically summarize narrative responses to the BFS of Veterans Affairs. METHODS: We analyzed more than 4600 open-ended responses to the BFS for all 2017 inpatient decedents across Veterans Affairs facilities. We used a descriptive qualitative approach to identify major themes. RESULTS: Thematic findings clustered into three domains: patient needs, family needs, and facility and organizational characteristics. Patient needs include maintenance of veteran's hygiene, appropriately prescribing medications, adhering to patient wishes, physical presence in patient's final hours, and spiritual and religious care at EOL. Family and caregiver needs included enhanced communication with the patient's care team, assistance with administrative and logistical challenges after death, emotional support, and displays of respect and gratitude for the patient's life. Facility and organizational characteristics included care team coordination, optimal staffing, the importance of nonclinical staff to care, and optimizing facilities to be welcoming, equipped for individuals with disabilities, and able to provide high-quality food. CONCLUSION: Systematic analysis of narrative survey data yields unique findings not routinely available through quantitative data collection and analysis. Organizations may benefit from the collection and regular analysis of narrative survey responses, which facilitate identification of needed improvements in palliative and EOL care that may improve the overall experiences for patients and families.


Assuntos
Assistência Terminal , Veteranos , Família , Hospitais de Veteranos , Humanos , Cuidados Paliativos , Inquéritos e Questionários , Estados Unidos
11.
J Card Fail ; 15(1): 24-30, 2009 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-19181290

RESUMO

BACKGROUND: Progress has been made in addressing pain in specific diseases such as cancer, but less attention has focused on understanding pain in nonmalignant states, including heart failure (HF). METHODS AND RESULTS: From March 2006 to June 2007, 672 veterans were surveyed and scores for the Brief Pain Inventory, pain distress, clinically significant pain levels (moderate to severe pain), and pain locations were compared using univariate and multivariate models. Fifteen percent of the final sample had HF (95/634). In our study, the HF patients were older (P < .000), reported lower levels of general health (P = .018), had more co-morbidities (P < .000), were more likely to have a history of cancer (P = .035), and suffered more chest pain and fewer headaches (P = .026, P = .03, respectively) than their non-HF cohorts. When controlling for age, co-morbidity and cancer disorders, HF and non-HF patients did not differ in pain severity, interference, distress or locations. Of the patients currently experiencing pain, 67.3% of HF patients and 68.4% of non-HF patients rated their pain as moderate or severe (pain >or=4 on a 0 to 10 scale). CONCLUSIONS: Although HF has not been identified as a painful condition, this study suggests the burden of pain is significant for both HF and non-HF ambulatory care patients.


Assuntos
Insuficiência Cardíaca/fisiopatologia , Dor/etiologia , Veteranos/estatística & dados numéricos , Adulto , Idoso , Idoso de 80 Anos ou mais , Assistência Ambulatorial/estatística & dados numéricos , Análise de Variância , California/epidemiologia , Doença Crônica , Comorbidade , Progressão da Doença , Feminino , Insuficiência Cardíaca/complicações , Insuficiência Cardíaca/epidemiologia , Humanos , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Análise Multivariada , Dor/diagnóstico , Medição da Dor , Cuidados Paliativos , Projetos Piloto , Estados Unidos/epidemiologia , Adulto Jovem
12.
J Gen Intern Med ; 24(5): 620-5, 2009 May.
Artigo em Inglês | MEDLINE | ID: mdl-19308333

RESUMO

BACKGROUND: Depression and anxiety frequently co-occur with pain and may affect treatment outcomes. Early identification of these co-occurring psychiatric conditions during routine pain screening may be critical for optimal treatment. OBJECTIVE: To determine aspects of pain related to psychological distress, and, among distressed patients, to determine whether pain factors are related to provider identification of distress. DESIGN: Cross-sectional interview of primary care patients and their providers participating in a Veteran's Administration HELP-Vets study. SUBJECTS: A total of 528 predominately male Veterans MEASUREMENTS AND MAIN RESULTS: We measured self-reported pain, including a 0-10 numeric rating scale and interference items from the Brief Pain Inventory. To evaluate distress, brief indicators of depression, anxiety and PTSD were combined. A substantial number of patients had psychological distress (41%), which was even higher (62%) among patients with moderate-severe current pain. Only 29% of those with distress reported talking to their provider about emotional problems during their visit. In multivariate analyses, other pain factors related to distress included interference with enjoyment of life and relationships with others, pain in multiple locations and joint pains. Prior diagnoses of depression and anxiety were also related to current distress. Only prior diagnosis and patient reported headaches and sleep interference because of pain were related to provider identification of distress. CONCLUSIONS: VA patients with moderate-severe pain are at high risk for psychological distress, which often goes unrecognized. Providers need to be more vigilant to mental health problems in patients experiencing high pain levels. Targeted screening for co-occurring conditions is warranted.


Assuntos
Ansiedade/complicações , Ansiedade/diagnóstico , Depressão/complicações , Depressão/diagnóstico , Dor/complicações , Dor/diagnóstico , Idoso , Ansiedade/psicologia , Estudos Transversais , Depressão/psicologia , Diagnóstico Precoce , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Dor/psicologia , Estresse Psicológico/complicações , Estresse Psicológico/diagnóstico , Estresse Psicológico/psicologia
13.
Pain Med ; 10(7): 1291-9, 2009 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-19818039

RESUMO

OBJECTIVE: To evaluate potential alternatives to the numeric rating scale (NRS) for routine pain screening. DESIGN: Cross-sectional. SETTING: Nineteen Veterans Affairs outpatient clinics in Southern California at two hospitals and six community sites. PATIENTS: Five hundred twenty-eight veterans from primary care, cardiology, and oncology clinics sampled in proportion to the total number of visits made to each clinic during the previous year. METHODS: Veterans were approached following clinic visits to complete researcher-administered surveys about their clinic experience. Using the Brief Pain Inventory (BPI) interference scale of > or =5 as a reference standard for important unrelieved pain, we evaluated potential alternative pain screening items and item combinations by analyzing sensitivity and specificity, area under the receiver operating curve (AUC), and likelihood ratios. RESULTS: Of the veterans, 43.6% had unrelieved pain as measured by the reference standard. Approximately half had painful musculoskeletal diagnoses and one-third had comorbid mental health or substance use disorders. The fifth vital sign detected pain less accurately than did an NRS with a 1-week timeframe and an item assessing pain-related bother over the past week. AUCs were 0.79, 0.86, and 0.86, respectively. A sequential approach combining the pain-related bother and NRS with a 1-week timeframe items had good discriminatory ability. CONCLUSIONS: Alternative single or combined pain screening strategies assessing pain-related bother may improve routine pain detection.


Assuntos
Programas de Rastreamento/métodos , Pacientes Ambulatoriais/estatística & dados numéricos , Medição da Dor/métodos , Dor/diagnóstico , Dor/epidemiologia , Veteranos/estatística & dados numéricos , California/epidemiologia , Feminino , Humanos , Masculino , Programas de Rastreamento/estatística & dados numéricos , Pessoa de Meia-Idade , Medição da Dor/estatística & dados numéricos , Prevalência , Reprodutibilidade dos Testes , Sensibilidade e Especificidade
14.
J Hosp Palliat Nurs ; 21(6): 475-481, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31568110

RESUMO

Heart failure affects 6.5 million Americans, with 1 million hospitalizations annually, a 22% readmission rate, and $31 billion in health care costs. Palliative care decreases symptom burden, readmissions, and costs. Many elderly patients have difficulty recognizing and reporting heart failure symptoms to their providers in a timely manner. Self-management tools with color-coded zones (green = "all clear," yellow = "caution," red = "take action") help patients recognize and respond to heart failure symptoms and reduce readmissions. The purpose of this quality improvement project was to develop, implement, and evaluate a low-literacy zone tool for heart failure self-management with home-based palliative care patients. An interdisciplinary palliative care team developed this zone tool. Health literacy was prescreened with the Newest Vital Sign instrument. Nurses provided the zone tool to patients and caregivers and instructed them in use of this tool for daily self-monitoring. In postimplementation surveys, participants rated the zone tool as easy to understand and helpful in recognizing and reporting symptoms. This project demonstrated feasibility of a new zone tool for heart failure self-management, resulting in a practice change for this home-based palliative care program. The interdisciplinary team eventually developed similar zone tools for cancer, cirrhosis, chronic obstructive pulmonary disease, dementia, and frailty self-management.


Assuntos
Insuficiência Cardíaca/terapia , Alfabetização/normas , Autogestão/métodos , Idoso , Idoso de 80 Anos ou mais , California , Feminino , Insuficiência Cardíaca/complicações , Insuficiência Cardíaca/psicologia , Humanos , Alfabetização/psicologia , Masculino , Cuidados Paliativos/métodos , Cuidados Paliativos/psicologia , Cuidados Paliativos/tendências , Projetos Piloto , Melhoria de Qualidade , Inquéritos e Questionários
16.
J Palliat Med ; 19(9): 995-1008, 2016 09.
Artigo em Inglês | MEDLINE | ID: mdl-27533892

RESUMO

IMPORTANCE: Evidence supports palliative care effectiveness. Given workforce constraints and the costs of new services, payers and providers need help to prioritize their investments. They need to know which patients to target, which personnel to hire, and which services best improve outcomes. OBJECTIVE: To inform how payers and providers should identify patients with "advanced illness" and the specific interventions they should implement, we reviewed the evidence to identify (1) individuals appropriate for palliative care and (2) elements of health service interventions (personnel involved, use of multidisciplinary teams, and settings of care) effective in achieving better outcomes for patients, caregivers, and the healthcare system. EVIDENCE REVIEW: Systematic searches of MEDLINE, EMBASE, PsycINFO, Web of Science, and Cochrane Database of Systematic Reviews databases (1/1/2001-1/8/2015). RESULTS: Randomized controlled trials (124) met inclusion criteria. The majority of studies in cancer (49%, 38 of 77 studies) demonstrated statistically significant patient or caregiver outcomes (e.g., p < 0.05), as did those in congestive heart failure (CHF) (62%, 13 of 21), chronic obstructive pulmonary disease (COPD; 58%, 11 of 19), and dementia (60%, 15 of 25). Most prognostic criteria used clinicians' judgment (73%, 22 of 30). Most interventions included a nurse (70%, 69 of 98), and many were nurse-only (39%, 27 of 69). Social workers were well represented, and home-based approaches were common (56%, 70 of 124). Home interventions with visits were more effective than those without (64%, 28 of 44; vs. 46%, 12 of 26). Interventions improved communication and care planning (70%, 12 of 18), psychosocial health (36%, 12 of 33, for depressive symptoms; 41%, 9 of 22, for anxiety), and patient (40%, 8 of 20) and caregiver experiences (63%, 5 of 8). Many interventions reduced hospital use (65%, 11 of 17), but most other economic outcomes, including costs, were poorly characterized. Palliative care teams did not reliably lower healthcare costs (20%, 2 of 10). CONCLUSIONS: Palliative care improves cancer, CHF, COPD, and dementia outcomes. Effective models include nurses, social workers, and home-based components, and a focus on communication, psychosocial support, and the patient or caregiver experience. High-quality research on intervention costs and cost outcomes in palliative care is limited.


Assuntos
Assistência Terminal , Cuidadores , Demência , Custos de Cuidados de Saúde , Humanos , Cuidados Paliativos
17.
Am J Hosp Palliat Care ; 32(8): 869-75, 2015 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-25228642

RESUMO

CONTEXT: Approximately 1 in 10 infants require neonatal intensive care unit (NICU) hospitalization, which causes parental stress. Palliative care (PC) provides an opportunity to alleviate suffering and stress. OBJECTIVES: This study examines the effects of PC on NICU parent stress and satisfaction. METHODS: A prospective cohort design compares stress and satisfaction among families receiving or not receiving PC. RESULTS: No significant differences in stress scores were found (P = .27-1.00). Palliative care parents (100%) were more likely to report being "extremely satisfied" with care than usual-care parents (50%). CONCLUSION: This study supports the feasibility of evaluating NICU PC services. Infants referred for PC typically have higher morbidity/mortality; therefore, higher parental stress scores may be expected. Stress levels were similar in both cohorts, thus PC did not increase stress and may decrease PC parent stress.


Assuntos
Terapia Intensiva Neonatal/métodos , Cuidados Paliativos/métodos , Pais/psicologia , Satisfação Pessoal , Adolescente , Adulto , Estudos de Viabilidade , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Estudos Prospectivos , Adulto Jovem
18.
J Palliat Med ; 17(3): 266-73, 2014 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-24548178

RESUMO

BACKGROUND: Increasing emphasis in performance-based payment, public reporting, and quality improvement (QI) has led to widespread interest in measuring and improving the quality of care. By 2014, hospice programs will be required to report quality data to the federal government or incur financial penalties. With this increased interest in quality reporting comes an opportunity to develop informatics tools to capture data that reflect the complex practices involved in palliative care (PC). Therefore, there is a need to disseminate information on developing tools that facilitate capturing data and fostering improved performance. The Veterans Health Care Administration, a national leader in health information technology (HIT) and PC, established the Quality Improvement Resource Center (QuIRC) to develop innovative HIT tools to standardize and improve PC practices throughout the 153 Department of Veterans Affairs (VA) medical centers nationwide. OBJECTIVE: The aim of the paper is to describe the development of the Palliative Care-National Clinical Template (PC-NCT) for documenting initial PC consults. RESULTS: Domains of quality of life provided the foundation for this template. Principles of user-centered informatics design guided development activities. A national consensus panel of PC experts prioritized quality indicators as targets for QI. An interdisciplinary team of PC providers identified desired aspects of template functionality. QuIRC balanced PC providers' desired aspects of functionality against the feasibility within the VA HIT system. Formal pilot and usability testing contributed to numerous iterations of the PC-NCT currently piloted in five geographically distributed sites. CONCLUSION: This paper presents a robust approach to developing an informatics tool for PC practice. Data collected via the PC-NCT will bring variations in current practice into view and assist in directing resources at "important targets" for QI. Although the development of HIT tools to quantify PC practice is complex, there is enormous potential to improve the quality of care for patients and families facing serious illnesses.


Assuntos
Benchmarking , Sistemas de Informação , Cuidados Paliativos/normas , Indicadores de Qualidade em Assistência à Saúde , Registros Eletrônicos de Saúde , Cuidados Paliativos na Terminalidade da Vida , Humanos , Notificação de Abuso , Estados Unidos , United States Department of Veterans Affairs , Interface Usuário-Computador
19.
Am J Hosp Palliat Care ; 30(3): 231-8, 2013 May.
Artigo em Inglês | MEDLINE | ID: mdl-22669935

RESUMO

AIM: To understand provider practices around dyspnea assessment to inform the development of an electronic medical record (EMR)-based dyspnea assessment module in an inpatient palliative care consultation template. DESIGN: Qualitative analysis of palliative care provider interviews. RESULTS: Three themes emerged: (1) integration of patient self-report of breathlessness with a clinical observation of dyspnea; (2) identification of patients for dyspnea assessment based on perceived patient need; and (3) variability in preferences for and use of existing severity scales for dyspnea. CONCLUSIONS: The assessment approaches described by providers underscore the challenge of developing an informatics tool that supports the natural clinical experience and facilitates standardized care. The complexity of the dyspnea assessment process and variation in provider practices necessitate a level of flexibility and choice to be built into a computer-based tool.


Assuntos
Diagnóstico por Computador , Dispneia/diagnóstico , Cuidados Paliativos/métodos , Diagnóstico por Computador/métodos , Registros Eletrônicos de Saúde , Humanos , Médicos , Índice de Gravidade de Doença
20.
J Pain Symptom Manage ; 41(5): 848-58, 2011 May.
Artigo em Inglês | MEDLINE | ID: mdl-21256706

RESUMO

CONTEXT: Efforts to promote awareness and management of chronic pain have been accompanied by a troubling increase in prescription medication abuse. At the same time, some patients may misuse substances in an effort to manage chronic pain. OBJECTIVES: This study examines self-reported substance misuse for pain management among veterans and identifies the contributing factors. METHODS: We analyzed cross-sectional data from the Help Veterans Experience Less Pain study. RESULTS: Of 343 veterans, 35.3% reported an aberrant pain management behavior (24% reported using alcohol, 11.7% reported using street drugs, and 16.3% reported sharing prescriptions to manage pain). Poorer mental health, younger age, substance use disorders (SUDs), number of nonpain symptoms, and greater pain severity and interference were associated with aberrant pain management behaviors. In multivariate analysis, SUDs (odds ratio [OR]: 3.9, 95% confidence interval [CI]: 2.3-6.7, P<0.000) and poorer mental health (OR: 2.3, 95% CI: 1.3-4.3, P=0.006) were associated with using alcohol or street drugs to manage pain; SUDs (OR: 2.4, 95% CI: 1.3-4.4, P=0.006) and pain interference (OR: 1.1, 95% CI: 1.0-1.2, P=0.047) were associated with prescription sharing; and SUDs (OR: 3.6, 95% CI: 2.2-6.1, P<0.000) and number of nonpain symptoms (OR: 6.5, 95% CI: 1.2-35.4, P=0.031) were associated with any aberrant pain management behavior. CONCLUSION: Veterans with a history of SUDs, greater pain interference, more nonpain symptoms, and mental health concerns should be carefully managed to deter substance misuse for pain management.


Assuntos
Bebidas Alcoólicas/estatística & dados numéricos , Mau Uso de Serviços de Saúde/estatística & dados numéricos , Drogas Ilícitas , Dor/epidemiologia , Dor/prevenção & controle , Medicamentos sob Prescrição/uso terapêutico , Veteranos/estatística & dados numéricos , Adulto , Idoso , Idoso de 80 Anos ou mais , Analgésicos/uso terapêutico , California/epidemiologia , Humanos , Pessoa de Meia-Idade , Prevalência
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