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1.
J Community Health Nurs ; 38(4): 221-231, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34787042

RESUMO

Purpose: Explore if and how American Samoan cultural norms influence caregivers' knowledge, attitudes, and care choices for person's living with Alzheimer's Dementia (AD).Design: This pilot study used mixed methods.Methods: 1) Quantitative survey: measuring knowledge/attitudes towards AD (n = 80); 2) Qualitative techniques: a) Focus groups (n= 54) with caregivers; b) Semi-structured interviews (n=26) with health professionals; and c) In-depth interviews (n=3) with key informants. Emergent themes were created using data from all methods.Findings: Quantitative analyses revealed 50% of participants identified AD as normal aging, 83% as mental illness. The majority of participants believed elders with AD do not experience pain (70%) and should be cared for solely at home (74%). Qualitative evidence showed dissonance between cultural norms of respect for elders, familial caregiving duty, shame in others observing elders' dementia-related behaviours, and the current language used to describe AD.Conclusions: Our findings show a need for developing and disseminating culturally sensitive terminology for AD to destigmatize and transmute attitudes, knowledge and care choices for elders living with AD.Clinical Evidence: American Samoan terminology for dementia is discordant with its cultural norms, thus shaping caregivers' perceptions of AD and influencing care choices for managing AD symptoms.


Assuntos
Demência , Idioma , Idoso , Cuidadores , Humanos , Projetos Piloto , Pesquisa Qualitativa
2.
J Natl Compr Canc Netw ; 13(9): 1120-30, 2015 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-26358796

RESUMO

BACKGROUND: Structured care processes that provide a framework for how oncologists can incorporate geriatric assessment (GA) into clinical practice could improve outcomes for vulnerable older adults with cancer, a growing population at high risk of toxicity from cancer treatment. We sought to obtain consensus from an expert panel on the use of GA in clinical practice and to develop algorithms of GA-guided care processes. METHODS: The Delphi technique, a well-recognized structured and reiterative process to reach consensus, was used. Participants were geriatric oncology experts who attended NIH-funded U13 or Cancer and Aging Research Group conferences. Consensus was defined as an interquartile range of 2 or more units, or 66.7% or greater, selecting a utility/helpfulness rating of 7 or greater on a 10-point Likert scale. For nominal data, consensus was defined as agreement among 66.7% or more of the group. RESULTS: From 33 invited, 30 participants completed all 3 rounds. Most experts (75%) used GA in clinical care, and the remainder were involved in geriatric oncology research. The panel met consensus that "all patients aged 75 years or older and those who are younger with age-related health concerns" should undergo GA and that all domains (function, physical performance, comorbidity/polypharmacy, cognition, nutrition, psychological status, and social support) should be included. Consensus was met for how GA could guide nononcologic interventions and cancer treatment decisions. Algorithms for GA-guided care processes were developed. CONCLUSIONS: This Delphi investigation of geriatric oncology experts demonstrated that GA should be performed for older patients with cancer to guide care processes.


Assuntos
Avaliação Geriátrica , Neoplasias/terapia , Adulto , Idoso , Cognição , Consenso , Técnica Delphi , Teste de Esforço , Feminino , Indicadores Básicos de Saúde , Humanos , Masculino , Saúde Mental , Pessoa de Meia-Idade , Estado Nutricional , Seleção de Pacientes , Polimedicação , Apoio Social
3.
J Relig Health ; 53(1): 105-18, 2014 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-22528288

RESUMO

Churches provide an innovative and underutilized setting for diabetes self-management programs for Latinos. This study sought to formulate a conceptual framework for designing church-based programs that are tailored to the needs of the Latino community and that utilize church strengths and resources. To inform this model, we conducted six focus groups with mostly Mexican-American Catholic adults with diabetes and their family members (N = 37) and found that participants were interested in church-based diabetes programs that emphasized information sharing, skills building, and social networking. Our model demonstrates that many of these requested components can be integrated into the current structure and function of the church. However, additional mechanisms to facilitate access to medical care may be necessary to support community members' diabetes care.


Assuntos
Catolicismo , Diabetes Mellitus/reabilitação , Americanos Mexicanos/estatística & dados numéricos , Religião e Medicina , Autocuidado/métodos , Apoio Social , Chicago , Família , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Autocuidado/estatística & dados numéricos
4.
Health Commun ; 28(6): 616-23, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23050731

RESUMO

This study explores patient trust in physicians and its relationship to shared decision-making (SDM) among African-Americans with diabetes (types 1 and 2). We conducted a series of focus groups (n = 27) and in-depth interviews (n = 24). Topic guides were developed utilizing theoretical constructs. Each interview was audiotaped and transcribed verbatim. Each transcript was independently coded by two randomly assigned members of the research team; codes and themes were identified in an iterative fashion utilizing Atlas.ti software. The mean age of study participants was 62 years and 85% were female. We found that (1) race as a social construct has the potential to influence key domains of patient trust (interpersonal/relationship aspects and medical skills/technical competence), (2) the relationship between patient trust and shared decision-making is bidirectional in nature, and (3) enhancing patient trust may potentially increase or decrease SDM among African-Americans with diabetes. Mistrust of physicians among African-Americans with diabetes may partially be addressed through (1) patient education efforts, (2) physician training in interpersonal skills and cultural competence, and (3) physician efforts to engage patients in SDM. To help enhance patient outcomes among African-Americans with diabetes, physicians might consider incorporating strategies to simultaneously engender their patients' trust and encourage shared decision-making.


Assuntos
Negro ou Afro-Americano/psicologia , Tomada de Decisões , Diabetes Mellitus Tipo 1/psicologia , Diabetes Mellitus Tipo 2/psicologia , Participação do Paciente , Relações Médico-Paciente , Confiança , Adolescente , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Gravação em Fita , Adulto Jovem
5.
Ann Thorac Surg ; 109(3): 938-944, 2020 03.
Artigo em Inglês | MEDLINE | ID: mdl-31408644

RESUMO

BACKGROUND: Physician gender bias in surgical treatment recommendations is recognized but not well understood. This study hypothesized that gender differences may exist in interpretation of patients' physical behaviors and that these differences may be associated with decision making by providers and surrogate decision makers. METHODS: A pool of Amazon Mechanical Turk workers was solicited to participate in an online assessment. Workers viewed 3 short videos of standardized patients (SPs) trained to exhibit physical characteristics of vigorous, frail, and neither vigorous nor frail (average) behavior and then answered survey questions related to video characteristics and whether they would support the SP's decision to undergo an indicated major lung resection. RESULTS: There were 724 participating workers; their mean age was 42.6 ± 11.8 years, and 386 were women. Men judged the average SP to be younger (P = .025), and women were more likely to recognize weight loss in the frail SP (P = .009). Overall, men and women were equally supportive of lung resection when indicated. The likelihood of supporting a decision to proceed with resection was inversely related to SP distress (P < .001) and was directly related to increasing gait speed (P < .001), energy (P < .001), and strength (P < .001). Male participants were less likely to support resection related to higher energy (P = .02) and strength levels (P = .016). CONCLUSIONS: Gender differences exist in how video portrayal of patient frailty is perceived and affects surgical recommendations. Understanding such differences may aid in educational efforts directed at reducing gender-based biases in treatment recommendations by physicians and surrogate decision makers.


Assuntos
Tomada de Decisões , Fragilidade/epidemiologia , Médicos/estatística & dados numéricos , Pneumonectomia , Medição de Risco/métodos , Adulto , Feminino , Seguimentos , Humanos , Incidência , Masculino , Pessoa de Meia-Idade , Estudos Prospectivos , Fatores de Risco , Fatores Sexuais , Inquéritos e Questionários , Estados Unidos/epidemiologia
6.
JAMA Oncol ; 6(2): 196-204, 2020 02 01.
Artigo em Inglês | MEDLINE | ID: mdl-31697365

RESUMO

Importance: Older patients with cancer and their caregivers worry about the effects of cancer treatment on aging-related domains (eg, function and cognition). Quality conversations with oncologists about aging-related concerns could improve patient-centered outcomes. A geriatric assessment (GA) can capture evidence-based aging-related conditions associated with poor clinical outcomes (eg, toxic effects) for older patients with cancer. Objective: To determine whether providing a GA summary and GA-guided recommendations to oncologists can improve communication about aging-related concerns. Design, Setting, and Participants: This cluster-randomized clinical trial enrolled 541 participants from 31 community oncology practices within the University of Rochester National Cancer Institute Community Oncology Research Program from October 29, 2014, to April 28, 2017. Patients were aged 70 years or older with an advanced solid malignant tumor or lymphoma who had at least 1 impaired GA domain; patients chose 1 caregiver to participate. The primary outcome was assessed on an intent-to-treat basis. Interventions: Oncology practices were randomized to receive either a tailored GA summary with recommendations for each enrolled patient (intervention) or alerts only for patients meeting criteria for depression or cognitive impairment (usual care). Main Outcomes and Measures: The predetermined primary outcome was patient satisfaction with communication about aging-related concerns (modified Health Care Climate Questionnaire [score range, 0-28; higher scores indicate greater satisfaction]), measured after the first oncology visit after the GA. Secondary outcomes included the number of aging-related concerns discussed during the visit (from content analysis of audiorecordings), quality of life (measured with the Functional Assessment of Cancer Therapy scale for patients and the 12-Item Short Form Health Survey for caregivers), and caregiver satisfaction with communication about aging-related patient concerns. Results: A total of 541 eligible patients (264 women, 276 men, and 1 patient did not provide data; mean [SD] age, 76.6 [5.2] years) and 414 caregivers (310 women, 101 men, and 3 caregivers did not provide data; mean age, 66.5 [12.5] years) were enrolled. Patients in the intervention group were more satisfied after the visit with communication about aging-related concerns (difference in mean score, 1.09 points; 95% CI, 0.05-2.13 points; P = .04); satisfaction with communication about aging-related concerns remained higher in the intervention group over 6 months (difference in mean score, 1.10; 95% CI, 0.04-2.16; P = .04). There were more aging-related conversations in the intervention group's visits (difference, 3.59; 95% CI, 2.22-4.95; P < .001). Caregivers in the intervention group were more satisfied with communication after the visit (difference, 1.05; 95% CI, 0.12-1.98; P = .03). Quality of life outcomes did not differ between groups. Conclusions and Relevance: Including GA in oncology clinical visits for older adults with advanced cancer improves patient-centered and caregiver-centered communication about aging-related concerns. Trial Registration: ClinicalTrials.gov identifier: NCT02107443.


Assuntos
Avaliação Geriátrica , Comunicação em Saúde , Neoplasias/psicologia , Idoso , Idoso de 80 Anos ou mais , Envelhecimento/psicologia , Cuidadores/psicologia , Feminino , Humanos , Masculino , National Cancer Institute (U.S.) , Oncologistas , Satisfação do Paciente , Relações Médico-Paciente , Estados Unidos
7.
J Gen Intern Med ; 24(10): 1135-9, 2009 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-19578818

RESUMO

INTRODUCTION: Shared decision-making (SDM) between patients and their physicians is associated with improved diabetes health outcomes. African-Americans have less SDM than Whites, which may contribute to diabetes racial disparities. To date, there has been little research on SDM among African-Americans. OBJECTIVE: We explored the barriers and facilitators to SDM among African-Americans with diabetes. METHODS: Qualitative research design with a phenomenological methodology using in-depth interviews (n = 24) and five focus groups (n = 27). Each interview/focus group was audio-taped and transcribed verbatim, and coding was conducted using an iterative process. PARTICIPANTS: We utilized a purposeful sample of African-American adult patients with diabetes. All patients had insurance and received their care at an academic medical center. RESULTS: Patients identified multiple SDM barriers/facilitators, including the patient/provider power imbalance that was perceived to be exacerbated by race. Patient-related factors included health literacy, fear/denial, family experiences and self-efficacy. Reported physician-related barriers/facilitators include patient education, validating patient experiences, medical knowledge, accessibility and availability, and interpersonal skills. DISCUSSION: Barriers/facilitators of SDM exist among African-Americans with diabetes, which can be effectively addressed in the outpatient setting. Primary care physicians, particularly academic internists, may be uniquely situated to address these barriers/facilitators and train future physicians to do so as well.


Assuntos
Negro ou Afro-Americano/etnologia , Tomada de Decisões , Diabetes Mellitus/epidemiologia , Participação do Paciente , Relações Médico-Paciente , Adolescente , Adulto , Negro ou Afro-Americano/psicologia , Idoso , Diabetes Mellitus/psicologia , Diabetes Mellitus/terapia , Feminino , Humanos , Entrevistas como Assunto/métodos , Masculino , Pessoa de Meia-Idade , Educação de Pacientes como Assunto/métodos , Participação do Paciente/métodos , Participação do Paciente/psicologia , Adulto Jovem
8.
SAGE Open Nurs ; 5: 2377960819844670, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-33415239

RESUMO

Little is known about informal caregivers' challenges in medically underserved communities. This qualitative study explores their perceptions/experiences of caregiving in a medically underserved community in Midwest United States. Two focus groups (n = 12) were conducted and themes were extracted and analyzed. Theme 1 included perceived barriers/unmet needs; most prevalent of which were lack of informational resources and support groups. A second unsolicited and unanticipated theme highlighted how caregivers constructed meaning through reappraising challenges to create enriching experiences for themselves, reinforcing their evolving dyadic relationship with care-recipient. Challenging and enriching aspects of caregiving coexisted and were rooted in caregiver-care-recipient dyad. Caregivers used meaning-making as a coping strategy for challenges. Prior research corroborates caregivers' challenges and meaning-making; this study contributes by delineating how both become interrelated. Policy makers can (a) alleviate challenges by increasing informational resources and support groups and (b) provide training to optimize caregivers' meaning-making, thus enhancing their positive experiences.

9.
J Gen Intern Med ; 23(2): 175-9, 2008 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-18071829

RESUMO

OBJECTIVE: To assess weight-related beliefs and concerns of overweight urban, African-American children, their parents, and community leaders before developing a family-based intervention to reduce childhood overweight and diabetes risk. DESIGN: We conducted 13 focus groups with overweight children and their parents and eight semistructured interviews with community leaders. PARTICIPANTS AND SETTING: Focus group participants (N = 67) from Chicago's South Side were recruited through flyers in community sites. Interview participants (N = 9) were recruited to sample perspectives from health, fitness, education, civics, and faith leaders. RESULTS: Community leaders felt awareness was higher for acute health conditions than for obesity. Parents were concerned about their children's health, but felt stressed by competing priorities and constrained by lack of knowledge, parenting skills, time, and financial resources. Parents defined overweight in functional terms, whereas children relied upon physical appearances. Children perceived negative social consequences of overweight. Parents and children expressed interest in family-based interventions to improve nutrition and physical activity and offered suggestions for making programs interesting. CONCLUSIONS: This study provides insights into the perspectives of urban, African-American overweight children, their parents, and community leaders regarding nutrition and physical activity. The specific beliefs of these respondents can become potential leverage points in interventions.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Obesidade/psicologia , Pais , Adolescente , Negro ou Afro-Americano , Chicago , Criança , Diabetes Mellitus Tipo 2/etnologia , Diabetes Mellitus Tipo 2/prevenção & controle , Grupos Focais , Comportamentos Relacionados com a Saúde/etnologia , Humanos , Liderança , Atividade Motora , Estado Nutricional , Obesidade/etnologia , Características de Residência , População Urbana
10.
Patient Educ Couns ; 72(3): 411-7, 2008 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-18639997

RESUMO

OBJECTIVE: The health status and life experiences of older diabetes patients may be highly heterogeneous, thus making their perspectives particularly relevant for developing individualized self-management plans for this population. Our earlier research showed older diabetes patients' healthcare goals and self-management behaviors are frequently shaped through social comparisons with peers/family members. The present paper explores this role of social comparison in their self-management practices and develops a conceptual model depicting the process. METHODS: Data were collected using open-ended, semi-structured interviews to elicit 28 older, type 2 diabetes patients' healthcare goals and self-management practices. Qualitative techniques were used to extract salient themes. RESULTS: Social comparison plays a salient role in routinizing older patients' self-management practices. Almost all patients assess their self-management by making "downward" comparisons with individuals doing worse than them; "upward" comparisons are rarely invoked. Occasionally patients' social comparisons lead them to adopt "normalizing" behaviors resulting in deviations from medically recommended self-care. CONCLUSION: The findings formed the basis for developing a conceptual model delineating the role of social comparison in self-management that can be beneficial for providers in tailoring educational interventions for self-management. PRACTICE IMPLICATIONS: Fostering these comparisons can help providers enhance communication on initiating and sustaining self-management practices.


Assuntos
Diabetes Mellitus Tipo 2/terapia , Motivação , Grupo Associado , Autocuidado/psicologia , Identificação Social , Idoso , Idoso de 80 Anos ou mais , Chicago , Diabetes Mellitus Tipo 2/psicologia , Feminino , Comportamentos Relacionados com a Saúde , Humanos , Masculino , Modelos Psicológicos , Comportamento Social
11.
Patient Educ Couns ; 72(3): 450-8, 2008 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-18684581

RESUMO

OBJECTIVE: This study investigates how shared decision-making (SDM) is defined by African-American patients with diabetes, and compares patients' conceptualization of SDM with the Charles model. METHODS: We utilized race-concordant interviewers/moderators to conduct in-depth interviews and focus groups among a purposeful sample of African-American patients with diabetes. Each interview/focus group was audio-taped, transcribed verbatim and imported into Atlas.ti software. Coding was done using an iterative process and each transcription was independently coded by two members of the research team. RESULTS: Although the conceptual domains were similar, patient definitions of what it means to "share" in the decision-making process differed significantly from the Charles model of SDM. Patients stressed the value of being able to "tell their story and be heard" by physicians, emphasized the importance of information sharing rather than decision-making sharing, and included an acceptable role for non-adherence as a mechanism to express control and act on treatment preferences. CONCLUSION: Current instruments may not accurately measure decision-making preferences of African-American patients with diabetes. PRACTICE IMPLICATIONS: Future research should develop instruments to effectively measure decision-making preferences within this population. Emphasizing information-sharing that validates patients' experiences may be particularly meaningful to African-Americans with diabetes.


Assuntos
Negro ou Afro-Americano , Tomada de Decisões , Diabetes Mellitus/terapia , Participação do Paciente , Satisfação do Paciente/etnologia , Relações Médico-Paciente , Adolescente , Adulto , Negro ou Afro-Americano/psicologia , Idoso , Diabetes Mellitus/etnologia , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Cooperação do Paciente/etnologia , Cooperação do Paciente/psicologia , Assistência Centrada no Paciente , Estados Unidos
12.
Patient Educ Couns ; 66(2): 223-34, 2007 May.
Artigo em Inglês | MEDLINE | ID: mdl-17324551

RESUMO

OBJECTIVE: There are several measurement tools to assess verbal dimensions in clinical encounters; in contrast, there is no established tool to evaluate physical nonverbal dimensions in geriatric encounters. The present paper describes the development of a tool to assess the physical context of exam rooms in doctor-older patient visits. METHOD: Salient features of the tool were derived from the medical literature and systematic observations of videotapes and refined during current research. RESULTS: The tool consists of two main dimensions of exam rooms: (1) physical dimensions comprising static and dynamic attributes that become operational through the spatial configuration and can influence the manifestation of (2) kinesic attributes. CONCLUSION: Details of the coding form and inter-rater reliability are presented. The usefulness of the tool is demonstrated through an analysis of 50 National Institute of Aging videotapes. Physicians in exam rooms with no desk in the interaction, no height difference and optimal interaction distance were observed to have greater eye contact and touch than physicians' in exam rooms with a desk, similar height difference and interaction distance. PRACTICE IMPLICATIONS: The tool can enable physicians to assess the spatial configuration of exam rooms (through Parts A and B) and thus facilitate the structuring of kinesic attributes (Part C).


Assuntos
Idoso , Coleta de Dados/métodos , Decoração de Interiores e Mobiliário , Comunicação não Verbal , Visita a Consultório Médico , Relações Médico-Paciente , Adulto , Idoso/fisiologia , Idoso/psicologia , Idoso de 80 Anos ou mais , Coleta de Dados/normas , Feminino , Humanos , Decoração de Interiores e Mobiliário/métodos , Decoração de Interiores e Mobiliário/estatística & dados numéricos , Masculino , Pessoa de Meia-Idade , Meio-Oeste dos Estados Unidos , Comunicação não Verbal/fisiologia , Comunicação não Verbal/psicologia , Observação/métodos , Variações Dependentes do Observador , Espaço Pessoal , Pesquisa Qualitativa , Sudoeste dos Estados Unidos , Comportamento Espacial , Tato , Gravação de Videoteipe
13.
Patient Educ Couns ; 100(2): 231-241, 2017 02.
Artigo em Inglês | MEDLINE | ID: mdl-27591825

RESUMO

OBJECTIVES: 1) Identify themes arising from nurses' perceptions of assessing older-patients' pain; 2) use themes to guide development of optimal interventions to improve quality of pain assessment in the emergency department (ED). METHODS: Nurse interviews (n=20) were conducted until theme saturation. They were transcribed, coded, and analyzed using qualitative methodology. RESULTS: Two major themes-nurse 'challenges' and 'strategies' to overcome challenges, and their subthemes - classified as 'patient-related' or 'system-related,' were salient in nurses' perceptions. Strategies nurses reported for managing challenges were based in their own professional lived experiences. DISCUSSION AND CONCLUSION: A 2×2 framework was developed to conceptualize challenges, strategies, subthemes and their classifications, yielding 4 typologies comprising challenge types matched with appropriate strategy types. While emergent challenges and strategies are corroborated in the literature, the present study is the first to develop a scheme of typologies beneficial for guiding the development of optimal interventions to improve the quality of assessing pain in older-patients. PRACTICE IMPLICATIONS: The typology framework can guide the development of pain assessment tools and the needed combinations for assessing multidimensional pain in older-patients. Using the present findings, a new clinical intervention was shown to significantly improve pain management for older-patients in the ED.


Assuntos
Enfermagem em Emergência/métodos , Enfermeiras e Enfermeiros/psicologia , Recursos Humanos de Enfermagem Hospitalar/psicologia , Manejo da Dor/métodos , Manejo da Dor/enfermagem , Medição da Dor , Adulto , Atitude do Pessoal de Saúde , Serviço Hospitalar de Emergência/organização & administração , Feminino , Grupos Focais , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Percepção , Pesquisa Qualitativa
14.
J Geriatr Oncol ; 8(5): 368-373, 2017 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-28602711

RESUMO

OBJECTIVE: To compare patients' attitudes towards recurrent prostate cancer (PCa) and starting hormone therapy (HT) treatment in two groups-Decision-Aid (DA) (intervention) and Standard-of-care (SoC) (Control). METHODS: The present research was conducted at three academic clinics-two in the Midwest and one in the Northeast U.S. Patients with biochemical recurrence of PCa (n=26) and follow-up oncology visits meeting inclusion criteria were randomized to either the SoC or DA intervention group prior to their consultation. Analysts were blinded to group assignment. Semi-structured phone interviews with patients were conducted 1-week post consultation. Interviews were audio-taped and transcribed. Qualitative analytic techniques were used to extract salient themes and conduct a comparative analysis of the two groups. RESULTS: Four salient themes emerged-1) knowledge acquisition, 2) decision-making style, 3) decision-making about timing of HT, and 4) anxiety-coping mechanisms. A comparative analysis showed that patients receiving the DA intervention had a better comprehension of Prostate-specific antigen (PSA), an improved understanding of HT treatment implications, an external locus-of-control, participation in shared decision-making and, support-seeking for anxiety reduction. In contrast, SoC patients displayed worse comprehension of PSA testing and HT treatment implications, internal locus-of-control, unilateral involvement in knowledge-seeking and decision-making, and no support-seeking for anxiety-coping. CONCLUSIONS: The DA was more effective than the SoC group in helping PCa patients understand the full implications of PSA testing and treatment; motivating shared decision-making, and support-seeking for anxiety relief. DA DVD interventions can be a useful patient education tool for bringing higher quality decision-making to prostate cancer care.


Assuntos
Antineoplásicos Hormonais/uso terapêutico , Atitude Frente a Saúde , Recidiva Local de Neoplasia/tratamento farmacológico , Neoplasias da Próstata/tratamento farmacológico , Adaptação Psicológica , Idoso , Idoso de 80 Anos ou mais , Ansiedade/etiologia , Tomada de Decisão Clínica , Técnicas de Apoio para a Decisão , Humanos , Masculino , Pessoa de Meia-Idade , Recidiva Local de Neoplasia/sangue , Recidiva Local de Neoplasia/psicologia , Educação de Pacientes como Assunto , Percepção , Antígeno Prostático Específico/metabolismo , Neoplasias da Próstata/sangue , Neoplasias da Próstata/psicologia
15.
Arch Intern Med ; 165(1): 88-91, 2005 Jan 10.
Artigo em Inglês | MEDLINE | ID: mdl-15642880

RESUMO

BACKGROUND: Patients at times disagree with medical recommendations for religious reasons. Despite a lively debate about how physicians should respond to patients' religious concerns, little is known about how physicians actually respond. We explored the ways in which physicians interpret and respond to conflict between medical recommendations and patients' religious commitments. METHODS: One-to-one, in-depth, semistructured interviews with 21 physicians from a range of religious affiliations, specialties, and practice settings. Interviews were transcribed, coded, and analyzed for emergent themes through an iterative process of textual analysis informed by the principle of constant comparison. RESULTS: Conflict introduced by religion is common and occurs in 3 types of settings: (1) those in which religious doctrines directly conflict with medical recommendations, (2) those that involve an area in which there is extensive controversy within the broader society, and (3) settings of relative medical uncertainty in which patients "choose faith over medicine." In response to such conflict, physicians first seek to accommodate patients' ideas by remaining open-minded and flexible in their approach. However, if they believe patients' religiously informed decisions will cause them to suffer harm, physicians make efforts to persuade patients to follow medical recommendations. CONCLUSIONS: When religiously related conflict arises, physicians appear to intuitively navigate a tension between respecting patients' autonomy by remaining open-minded and flexible and seeking patients' good by persuading them to follow medical recommendations. In such contexts, religion and medicine are intertwined, and moral counsel inheres in physicians' medical recommendations.


Assuntos
Atitude do Pessoal de Saúde , Conflito Psicológico , Relações Médico-Paciente , Médicos/estatística & dados numéricos , Religião e Medicina , Adulto , Ética Clínica , Ética Médica , Feminino , Humanos , Masculino , Relações Médico-Paciente/ética , Inquéritos e Questionários , Estados Unidos
16.
J Am Geriatr Soc ; 53(2): 306-11, 2005 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-15673357

RESUMO

OBJECTIVES: New diabetes mellitus guidelines from the American Geriatrics Society promote the individualization of treatment goals and plans for patients aged 65 and older. Communicating with older patients about such complex medical decisions presents new challenges for providers. The self-reported healthcare goals, factors influencing these goals, and self-care practices of older patients with diabetes mellitus were explored. DESIGN: Exploratory study involving semistructured interviews. SETTING: Four clinics of a midwestern, urban academic medical center. PARTICIPANTS: Patients aged 65 and older with type II diabetes mellitus (N=28). MEASUREMENTS: Semistructured, one-on-one interviews were conducted. Interviews were audiotaped, transcribed, and evaluated for recurring themes using a grounded theory approach. RESULTS: The majority of patients expressed their healthcare goals in a social and functional language, in contrast to the biomedical language of risk factor control and complication prevention, even when specifically asked about goals for diabetes mellitus care. Patient's predominant healthcare goals centered on maintaining their independence and their activities of daily living (71%). Medical experiences of friends and family (50%), social comparison with peers (7%), and medical professionals (43%) shaped patients' goals. Self-reported medication adherence and glucose monitoring was high, but more than one-quarter of patients failed to adhere to any dietary recommendations, and one-third failed to adhere to their exercise regimens. CONCLUSION: As diabetes mellitus care recommendations for older patients grow more complex, providers could enhance their communication about such medical decisions by exploring patients' specific circumstances and reframing diabetes mellitus treatment goals in patients' own language. These may be crucial steps to developing successful individualized care plans.


Assuntos
Idoso/psicologia , Atenção à Saúde , Diabetes Mellitus Tipo 2/psicologia , Diabetes Mellitus Tipo 2/terapia , Objetivos , Autoavaliação (Psicologia) , Atividades Cotidianas , Idoso de 80 Anos ou mais , Feminino , Comportamentos Relacionados com a Saúde , Humanos , Acontecimentos que Mudam a Vida , Masculino , Autocuidado/psicologia
17.
Am J Manag Care ; 9(8): 564-71, 2003 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-12921234

RESUMO

BACKGROUND: Patients worry about financial conflicts of interest related to cost containment but may hesitate to share this concern with their physician. Little is known about how this issue affects encounters between doctors and patients, or about the communication strategies physicians endorse for responding to such concerns. OBJECTIVE: To understand physicians' perspectives on how managed care patients' concerns about conflicts of interest are impacting the physician-patient relationship in routine visits. STUDY DESIGN: Qualitative analysis of physician focus groups. Physicians also rated audiotaped dialogues of different communication strategies for discussing conflicts of interest with patients. PARTICIPANTS: Thirty-nine community physicians (25 general internists and 14 family practice physicians) in Portland, Oregon--a highly penetrated managed care market. Physicians' average age was 44 years; 36% were women. RESULTS: These physicians report that patient concern about financial conflicts of interest is implicit in many patient encounters. However, patients rarely ask directly about conflicts of interest. Physicians believe that patients' concerns about conflicts of interest are impairing doctor-patient relationships and damaging physicians' sense of professional worth. Physicians prefer communication strategies for discussing conflicts of interest that address patients' emotions or identify a common goal through negotiation. These physicians seldom initiate discussions with patients about conflicts of interest. CONCLUSIONS: Patient concern about conflicts of interest is adversely impacting the physician-patient interaction. Physicians should be alert to patients' implicit expressions of concern about conflicts of interest, and practice communication techniques for responding to these concerns effectively.


Assuntos
Comunicação , Conflito de Interesses , Programas de Assistência Gerenciada/ética , Relações Médico-Paciente/ética , Adulto , Medicina de Família e Comunidade/ética , Feminino , Grupos Focais , Pesquisa sobre Serviços de Saúde , Humanos , Medicina Interna/ética , Masculino , Programas de Assistência Gerenciada/organização & administração , Pessoa de Meia-Idade , Oregon , Médicos de Família/ética , Médicos de Família/psicologia , Pesquisa Qualitativa
18.
Am J Manag Care ; 8(7): 622-30, 2002 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-12125802

RESUMO

Despite changes in the healthcare system, the relationship between patients and physicians remains fundamental to high-quality care. Managed care rules and restrictions, such as constraints on choice of providers, review processes, and decreasing length of visits, are creating potential conflicts between patients and their physicians. To strengthen the patient-physician relationship, some managed care organizations are implementing communication skills training for physicians. This article provides case studies describing how 2 large managed care organizations successfully incorporated communication skills training into their environments. An organizational perspective is used to delineate the 3 stages--adoption, implementation, and institutionalization--that managed care organizations generally traverse in incorporating communication skills programs and making them an integral part of their organizational culture. Specific suggestions are provided for physician leaders and administrators who are considering similar programs in their settings.


Assuntos
Comunicação , Programas de Assistência Gerenciada/organização & administração , Corpo Clínico/educação , Inovação Organizacional , Relações Médico-Paciente , Competência Clínica , Humanos , Programas de Assistência Gerenciada/normas , Estudos de Casos Organizacionais , Garantia da Qualidade dos Cuidados de Saúde , Desenvolvimento de Pessoal , Estados Unidos
19.
J Palliat Med ; 17(6): 696-700, 2014 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-24754869

RESUMO

BACKGROUND: Despite an increase in the content of palliative medicine curricula in medical schools, students are rarely exposed to end-of-life (EOL) care through real-patient experiences during their preclinical education. OBJECTIVE: To evaluate the utility and impact of exposure to EOL care for first year medical students (MS-1s) through a hospice volunteer experience. METHODS: Patients and Families First (PFF), a hospice volunteer training program in EOL care, was piloted on three cohorts of MS-1s as an elective. Fifty-five students received 3 hours of volunteer training, and were then required to conduct at least two consecutive hospice visits on assigned patients to obtain course credit. Students' reflective essays on their experiences were analyzed using qualitative methodology and salient themes were extracted by two investigators independently and then collaboratively. RESULTS: The following five themes were identified from students' reflective essays: perceptions regarding hospice patients; reactions regarding self; normalcy of EOL care at home; impact of witnessing death and dying; and suggestions for improving EOL care education for medical students. CONCLUSION: Hospice volunteering during preclinical years may provide valuable experiential training for MS-1s in caring for seriously ill patients and their families by fostering personal reflection and empathic skills, thereby providing a foundation for future patient encounters during clinical training.


Assuntos
Atitude Frente a Morte , Educação de Graduação em Medicina/métodos , Cuidados Paliativos na Terminalidade da Vida/psicologia , Estudantes de Medicina/psicologia , Doente Terminal/psicologia , Voluntários/psicologia , Feminino , Humanos , Masculino , Meio-Oeste dos Estados Unidos , Pesquisa Qualitativa , Autoavaliação (Psicologia) , Assistência Terminal/métodos
20.
J Geriatr Oncol ; 5(1): 106-15, 2014 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-24484724

RESUMO

The aging of the U.S. population continues to highlight emerging issues in providing care generally for older adults and specifically for older adults with cancer. The majority of patients with cancer in the U.S. are currently 65 years of age or older; therefore, training and research in geriatrics and geriatric oncology are viewed to be integral in meeting the needs of this vulnerable population. Yet, the ways to develop and integrate best geriatrics training within the context of hematology/oncology fellowship remain unclear. Toward this end, the current study seeks to evaluate the prior and current geriatric experiences and perspectives of hematology/oncology fellows. To gain insight into these experiences, focus groups of hematology/oncology fellows were conducted. Emergent themes included: 1) perceived lack of formal geriatric oncology didactics among fellows; 2) a considerable amount of variability exists in pre-fellowship geriatric experiences; 3) shared desire to participate in a geriatric oncology-based clinic; 4) differences across training levels in confidence in managing older adults with cancer; and 5) identification of specific criteria on how best to approach older adults with cancer in a particular clinical scenario. The present findings will help guide future studies in evaluating geriatrics among hematology/oncology fellows across institutions. They will also have implications in the development of geriatrics curricula and competencies specific to hematology/oncology training.


Assuntos
Atitude do Pessoal de Saúde , Geriatria/educação , Hematologia/educação , Oncologia/educação , Adulto , Idoso , Currículo , Educação de Pós-Graduação em Medicina/métodos , Bolsas de Estudo , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Internato e Residência/métodos , Masculino , Percepção , Estados Unidos
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