Detalhe da pesquisa
1.
Genomic sequencing research in pediatric cancer care: Decision-making, attitudes, and perceived utility among adolescents and young adults and their parents.
Genet Med
; : 101168, 2024 May 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-38767058
2.
Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".
J Genet Couns
; 2024 Jan 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-38225886
3.
Parents' decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project.
Genet Med
; 25(3): 100002, 2023 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-36549595
4.
Assessment of COVID-19 Website Communication in Languages Other than English by Local Health Departments in the United States.
Health Commun
; 38(8): 1519-1529, 2023 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-34965822
5.
Responsibility, culpability, and parental views on genomic testing for seriously ill children.
Genet Med
; 21(12): 2791-2797, 2019 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-31186522
6.
Spanish-Language Communication of COVID-19 Information Across US Local Health Department Websites.
J Racial Ethn Health Disparities
; 10(5): 2482-2489, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-36227453
7.
Key drivers of family-level utility of pediatric genomic sequencing: a qualitative analysis to support preference research.
Eur J Hum Genet
; 31(4): 445-452, 2023 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-36434257
8.
Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.
J Adolesc Young Adult Oncol
; 12(5): 773-781, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-36595372
9.
Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability.
Front Big Data
; 6: 1095119, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-36814524
10.
Creating accessible Spanish language materials for Clinical Sequencing Evidence-Generating Research consortium genomic projects: challenges and lessons learned.
Per Med
; 18(5): 441-454, 2021 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-34448595
11.
Pediatric Oncologists' Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care.
J Pers Med
; 11(6)2021 Jun 18.
Artigo
em Inglês
| MEDLINE | ID: mdl-34207141
12.
Psychological Distress Among the U.S. General Population During the COVID-19 Pandemic.
Front Psychiatry
; 12: 642918, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-34239459
13.
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.
J Clin Transl Sci
; 5(1): e193, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-34888063
14.
A Right to Privacy and Confidentiality: Ethical Medical Care for Patients in United States Immigration Detention.
J Law Med Ethics
; 48(1): 161-168, 2020 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-32342781
15.
Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.
Patient Educ Couns
; 102(5): 895-901, 2019 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-30581014
16.
Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.
Patient Educ Couns
; 102(4): 680-686, 2019 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-30482469
17.
Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.
Pediatrics
; 143(Suppl 1): S6-S13, 2019 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-30600265
18.
Parental Perspectives on Whole Exome Sequencing in Pediatric Cancer: A Typology of Perceived Utility.
JCO Precis Oncol
; 12017.
Artigo
em Inglês
| MEDLINE | ID: mdl-31886451
19.
Do privacy and security regulations need a status update? Perspectives from an intergenerational survey.
PLoS One
; 12(9): e0184525, 2017.
Artigo
em Inglês
| MEDLINE | ID: mdl-28926626
20.
Portero versus portador: Spanish interpretation of genomic terminology during whole exome sequencing results disclosure.
Per Med
; 14(6): 503-514, 2017 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-29749861