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1.
Int Psychogeriatr ; 30(8): 1099-1107, 2018 08.
Artigo em Inglês | MEDLINE | ID: mdl-29143722

RESUMO

ABSTRACTBackground:Behavioral and psychological symptoms of dementia (BPSD) are a primary manifestation of brain dysfunction in dementia and a great challenge in caregiving. While BPSD are historically associated with caregiver distress, it is unclear whether there is an identifiable point where BPSD number is associated with heightened caregiver distress. The purpose of this study was to determine if such a tipping point exists to assist clinicians in identifying caregiver compromise. METHODS: Analyses were performed with three datasets totaling 569 community-dwelling persons with dementia and their caregivers. Each included identical demographic, BPSD, cognitive, and caregiver well-being measures. Linear regression was performed with 16 BPSD symptoms on caregiver well-being measures and predictive values determined with receiver operating characteristic (ROC) curves and pre-defined scores for clinically significant distress. RESULTS: Of the 569 persons with dementia, 549 (96%) displayed at least one BPSD, mean of 5.7 (SD = 3.06) symptoms in the past month. After controlling for covariates, BPSD symptom number was significantly associated with caregiver depression and burden (p < 0.01 for both models). Findings indicate ≥ 4 BPSD has strong predictive values for depression (sensitivity 85%, specificity 44%, area under ROC curve 0.62, p < 0.01), and burden (sensitivity 84%, specificity 43%, area under ROC curve 0.67, p < 0.01). CONCLUSIONS: Caring for persons with four or more BPSD appears to reflect a tipping point for clinically meaningful distress. Findings have implications for clinicians working with persons with dementia and their caregivers and suggest need for continuous monitoring of BPSD and identification of at risk caregivers.


Assuntos
Sintomas Comportamentais/epidemiologia , Sintomas Comportamentais/psicologia , Cuidadores/psicologia , Demência/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Demência/terapia , Depressão/complicações , Depressão/diagnóstico , Feminino , Humanos , Vida Independente , Modelos Lineares , Masculino , Pessoa de Meia-Idade , Escalas de Graduação Psiquiátrica , Qualidade de Vida , Curva ROC , Sensibilidade e Especificidade , Estados Unidos/epidemiologia
2.
Can J Occup Ther ; 83(1): 14-26, 2016 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-26755040

RESUMO

BACKGROUND: Social participation involves activities and roles providing interactions with others, including those within their social networks. PURPOSE: This study sought to characterize social networks and participation with others for 36 youth, ages 11 to 16 years, with (n = 19) and without (n = 17) learning disability, attention disorder, or high-functioning autism. METHOD: Social networks were measured using methods of personal network analysis. The Children's Assessment of Participation and Enjoyment With Whom dimension scores were used to measure participation with others. Youth from the clinical group were interviewed regarding their experiences within their social networks. FINDINGS: Group differences were observed for six social network variables and in the proportion of overall, physical, recreational, social, and informal activities engaged with family and/or friends. Qualitative findings explicated strategies used in building, shaping, and maintaining social networks. IMPLICATIONS: Social network factors should be considered when seeking to understand social participation.


Assuntos
Transtorno do Deficit de Atenção com Hiperatividade , Transtorno do Espectro Autista , Deficiências da Aprendizagem , Participação Social , Apoio Social , Adolescente , Estudos de Casos e Controles , Criança , Estudos Transversais , Feminino , Humanos , Masculino , Atividade Motora , Pesquisa Qualitativa , Recreação , Inquéritos e Questionários
3.
OTJR (Thorofare N J) ; 35(3): 151-9, 2015 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-26594737

RESUMO

The people who regularly interact with an adolescent form that youth's social network (SN), which may impact participation. We investigated the relationship of SNs to participation using personal network analysis and individual interviews. The sample included 36 youth, aged 11 to 16 years. Nineteen had diagnoses of learning disability, attention disorder, or high-functioning autism, and 17 were typically developing. Network analysis yielded 10 network variables, of which 8 measured network composition and 2 measured network structure, with significant links to at least I measure of participation using the Children's Assessment of Participation and Enjoyment (CAPE). Interviews from youth in the clinical group yielded description of strategies used to negotiate social interactions, as well as processes and reasoning used to remain engaged within SNs. Findings contribute to understanding the ways SNs are linked to youth participation and suggest the potential of SN factors for predicting rehabilitation outcomes.


Assuntos
Transtorno do Deficit de Atenção com Hiperatividade , Transtorno Autístico , Deficiências da Aprendizagem , Participação Social , Apoio Social , Adolescente , Estudos de Casos e Controles , Criança , Feminino , Humanos , Relações Interpessoais , Masculino , Pesquisa Qualitativa
4.
BMC Geriatr ; 13: 96, 2013 Sep 23.
Artigo em Inglês | MEDLINE | ID: mdl-24060106

RESUMO

BACKGROUND: Behavioral symptoms accompanying dementia are associated with increased health care costs, reduced quality of life and daily functioning, heightened family caregiver burden, and nursing home placement. Standard care typically involves pharmacologic agents, but these are, at best, modestly effective, carry serious risks, including mortality, and do not address behavioral symptoms families consider most distressful and which may prompt nursing home placement. Given dementia's devastating effects and the absence of an imminent cure, the Veterans Administration has supported the development and testing of new approaches to manage challenging behaviors at home. METHODS/DESIGN: The Tailored Activity Program - Veterans Administration is a Phase III efficacy trial designed to reduce behavioral symptoms in Veterans with dementia living with their caregivers in the community. The study uses a randomized two-group parallel design with 160 diverse Veterans and caregivers. The experimental group receives a transformative patient-centric intervention designed to reduce the burden of behavioral symptoms in Veterans with dementia. An occupational therapist conducts an assessment to identify a Veteran's preserved capabilities, deficit areas, previous roles, habits, and interests to develop activities tailored to the Veteran. Family caregivers are then trained to incorporate activities into daily care. The attention-control group receives bi-monthly telephone contact where education on topics relevant to dementia is provided to caregivers. Key outcomes include reduced frequency and severity of behavioral symptoms using the 12-item Neuropsychiatric Inventory (primary endpoint), reduced caregiver burden, enhanced skill acquisition, efficacy using activities, and time spent providing care at 4 months; and long-term effects (8 months) on the Veteran's quality of life and frequency and severity of behavioral symptoms, and caregiver use of activities. The programs' impact of Veterans Administration cost is also examined. Study precision will be increased through face-to-face research team trainings with procedural manuals and review of audio-taped interviews and intervention sessions. DISCUSSION: The Tailored Activity Program - Veterans Administration is designed to improve the quality of life of Veterans with dementia and lessen the burden of care on caregivers. Activities are tailored to reflect the Veteran's preserved capabilities and interests to enhance active engagement, while not taxing areas of cognition that are most impaired.


Assuntos
Atividades Cotidianas/psicologia , Demência/psicologia , Demência/terapia , Qualidade de Vida/psicologia , United States Department of Veterans Affairs , Veteranos/psicologia , Cuidadores/psicologia , Demência/diagnóstico , Humanos , Características de Residência , Estados Unidos
5.
Am J Occup Ther ; 65(4): 419-27, 2011.
Artigo em Inglês | MEDLINE | ID: mdl-21834457

RESUMO

OBJECTIVE: We determined differences in driving errors between combat veterans with mild traumatic brain injury and posttraumatic stress disorder and healthy control participants. METHOD: We compared 18 postdeployed combat veterans with 20 control participants on drivingerrors in a driving simulator. RESULTS: Combat veterans were more likely to be male; were younger; and had more racial diversity, less formal education, and lower cognitive scores than control participants. Control participants made more signaling errors (t [19] = -2.138, p = .046, SE = 0.395), but combat veterans made more overspeeding (t [17.3] = 4.095, p = .001, SE = 0.708) and adjustment-to-stimuli (t [17] = 2.380, p = .029, SE = 0.140) errors. Young age was related to overspeeding. CONCLUSION: Combat veterans made more critical driving errors than did control participants. Such errors made on the road may lead to crashes or injuries. Although limited in generalizability, these findings provide early support for developing safe driving interventions for combat veterans.


Assuntos
Condução de Veículo , Lesões Encefálicas/complicações , Transtornos de Estresse Pós-Traumáticos/complicações , Veteranos , Adulto , Campanha Afegã de 2001- , Fatores Etários , Feminino , Humanos , Guerra do Iraque 2003-2011 , Masculino , Projetos Piloto , Fatores Sexuais , Fatores Socioeconômicos , Estados Unidos
6.
Med Care ; 48(6): 558-62, 2010 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-20125048

RESUMO

BACKGROUND: The increase in provision of assistive technology devices (ATDs) has spurred controversy over Medicare policy aimed at reducing cost-policy that forces social isolation and conflicts with legislation, facilitating participation for individuals with disabilities. In contrast, Department of Veterans Affairs (VA) policy does not limit provision of AT to "in home" use only but rather, states "all enrolled and some non-enrolled veterans are eligible for all needed prosthetics." OBJECTIVES: Examine ATD provision policy by comparing 2 systems, Medicare and VA. Empirically analyze differences in ATDs provided, cost, and duplication in provision. RESEARCH DESIGN: Retrospective study of VA databases, including VA Medicare data. SUBJECTS: A population based study of 12,0461 veterans post-stroke. MEASURES: Frequency of provision of ATDs by Health Care Common Procedural Code, purchase price, and capped rental payments. RESULTS: Of the poststroke veteran cohort, 39% received no AT, 56% received AT from the VA only, 1% received AT from Medicare only, and 3% received AT from both the VA and Medicare. Most ATDs were for activities of daily living, followed by walkers/canes/crutches. In specific ATD comparisons, VA costs were substantially lower than Medicare for purchased items and slightly lower than Medicare for capped rental payments. CONCLUSION: VA provides a broader variety of ATDs at a lesser cost than Medicare. Analyses of policy differences between VA and Medicare suggest VA policy is driven by veteran need whereas Medicare policy is driven at least in part, by containing costs that have skyrocketed as a result of fraudulent claims.


Assuntos
Custos de Cuidados de Saúde/estatística & dados numéricos , Medicare/economia , Tecnologia Assistiva/economia , Reabilitação do Acidente Vascular Cerebral , Acidente Vascular Cerebral/economia , Veteranos/estatística & dados numéricos , Adulto , Idoso , Equipamentos e Provisões/economia , Feminino , Hospitais de Veteranos/economia , Humanos , Masculino , Medicare/estatística & dados numéricos , Pessoa de Meia-Idade , Avaliação de Resultados em Cuidados de Saúde , Setor Privado/economia , Estudos Retrospectivos , Tecnologia Assistiva/estatística & dados numéricos , Estados Unidos/epidemiologia , United States Department of Veterans Affairs/economia
7.
Arch Phys Med Rehabil ; 91(3): 369-377.e1, 2010 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-20298826

RESUMO

OBJECTIVES: To examine variation in provision of assistive technology (AT) devices and the extent to which such variation may be explained by patient characteristics or Veterans Health Administration (VHA) administrative region. DESIGN: Retrospective population-based study. SETTING: VHA. PARTICIPANTS: Veterans poststroke in fiscal years 2001 and 2002 (N=12,046). INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURE: Provision of 8 categories of AT devices. RESULTS: There was considerable regional variation in provision of AT. For example, differences across administrative regions in the VHA ranged from 5.1 to 28.1 standard manual wheelchairs per 100 veterans poststroke. Using logistic regression, with only demographic variables as predictors of standard manual wheelchair provision, the c statistic was .62, and the pseudo R(2) was 2.5%. Adding disease severity increased the c statistic to .67 and the pseudo R(2) to 6.2%, and adding Veteran Integrated Network System further increased the c statistic to .72 and pseudo R(2) to 9.8%. CONCLUSIONS: Our research showed significant variation in the provision of AT devices to veterans poststroke, and it showed that patient characteristics accounted for only 6.2% of the variation. VHA administrative region and disability severity accounted for equivalent amounts of the variation. Our findings suggest the need for improvements in the process for providing AT and/or provider education concerning device provision.


Assuntos
Alocação de Recursos/estatística & dados numéricos , Tecnologia Assistiva/estatística & dados numéricos , Reabilitação do Acidente Vascular Cerebral , United States Department of Veterans Affairs/estatística & dados numéricos , Veteranos/estatística & dados numéricos , Atividades Cotidianas , Idoso , Estudos de Coortes , Feminino , Humanos , Modelos Logísticos , Masculino , Análise Multivariada , Recuperação de Função Fisiológica , Estudos Retrospectivos , Índice de Gravidade de Doença , Acidente Vascular Cerebral/classificação , Estados Unidos , Cadeiras de Rodas/estatística & dados numéricos
8.
Telemed J E Health ; 15(1): 31-8, 2009 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-19199845

RESUMO

Chronic illnesses account for approximately 75% of all healthcare costs in the United States today, resulting in functional limitations and loss of independence, as well as increased medical expenditures. The elderly population is at a higher risk for developing chronic conditions, increasing their risk for disabilities. Given the rapid growth of the aging population, and the chronic illnesses, disabilities, and loss of functional independence endemic to elders, novel methods of rehabilitation and care management are urgently needed. Telehealth models that combine care coordination with communications technology offer a means for managing chronic illnesses, thereby decreasing healthcare costs. We examined the effects of a Veterans Administration (VA) telerehabilitation program (Low Activities of Daily Living [ADL] Monitoring Program-LAMP) on healthcare costs. LAMP is based on a rehabilitative model of care. LAMP patients received adaptive equipment and environmental modifications, which focused on self-care and safety within the home. LAMP Care Coordinators remotely monitored their patient's vital signs and provided education and self-management strategies for decreasing the effects of chronic illnesses and functional decline. The matched comparison group (MCG) received standard VA care. Healthcare costs 12 months preenrollment and 12 months post-enrollment were examined through a difference-in-differences multivariable model. Using actual costs totaled for these analyses, no significant differences were detected in post-enrollment costs between LAMP and the MCG. For LAMP patients, the provision of adaptive equipment and environmental modifications, plus intensive in-home monitoring of patients, led to increases in clinic visits post-intervention with decreases in hospital and nursing home stays.


Assuntos
Pessoas com Deficiência/reabilitação , Avaliação Geriátrica/estatística & dados numéricos , Serviços de Assistência Domiciliar/economia , Terapia Ocupacional/economia , Centros de Reabilitação/economia , Telemedicina/economia , Atividades Cotidianas , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Doença Crônica , Análise Custo-Benefício , Pessoas com Deficiência/estatística & dados numéricos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Modelos Teóricos , Análise Multivariada , Terapia Ocupacional/métodos , Avaliação de Programas e Projetos de Saúde/economia , Estudos Retrospectivos , Fatores de Tempo , Estados Unidos , United States Department of Veterans Affairs/economia , United States Department of Veterans Affairs/tendências
9.
Am J Occup Ther ; 63(5): 580-91, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-19785257

RESUMO

OBJECTIVE: We conducted a literature review of assessment tools predicting driving performance for people with traumatic brain injury (TBI). METHOD: Data sources were Web of Science, EBSCOhost, PubMed, and recently published literature from experts and team members not yet catalogued in the databases. We used the American Academy of Neurology's classification criteria to extract data from 13 studies, and we assigned a class (I-IV, with I being the highest level of evidence) to each study. We grouped primary studies into categories of driving assessment (neuropsychological; simulator; off-road; self-report, other report, and postinjury disability status; and comprehensive driving evaluation) and synthesized the predictability of these tools as it relates to driving performance for people with TBI. CONCLUSIONS: To assist clinicians and researchers in making decisions regarding testing the driving performance of people with TBI, we provide recommendations for neuropsychological tests; off-road tests; self-report, other report, and postinjury disability status; and comprehensive driving evaluation.


Assuntos
Condução de Veículo , Lesões Encefálicas/reabilitação , Lesões Encefálicas/fisiopatologia , Tomada de Decisões , Humanos , Testes Neuropsicológicos , Análise e Desempenho de Tarefas
10.
Assist Technol ; 21(4): 196-207, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-20066886

RESUMO

Nearly 14% of people over age 71 have some form of dementia, with prevalence increasing to nearly 40% of those over age 90. As dimentia progresses, it impacts a person's independent functions and can increase the burden on caregivers. The use of assistive devices can help individuals with dementia live more independently. However, older individuals with cognitive impairment have difficulties using assistive technology devices because the devices are not designed to address their needs. The development of "smart devices" has potential in assisting older adults with cognitive impairment. Eleven community-dwelling seniors with moderate cognitive impairment (Mini-Mental State Examination scores ranging from 12-20) participated in this study. The Functional Independence Measure scores of participants were also collected to determine participants' current level of independence on selected tasks. Three tasks were selected to represent three levels of complexity: drinking water, brushing teeth, and upper body dressing. Participants were prompted through these tasks with simulated smart machine-based prompting. The need for prompts was highly individual, but given appropriate machine-delivered messages, participants completed the tasks an average of 86% of the time across the three self-care tasks. Machine-based prompting devices could aid caregivers as well as increase independence in some tasks.


Assuntos
Atividades Cotidianas , Demência/reabilitação , Tecnologia Assistiva , Interface Usuário-Computador , Idoso , Envelhecimento , Cognição , Transtornos Cognitivos/reabilitação , Estudos de Viabilidade , Feminino , Humanos , Masculino , Psicometria , Análise e Desempenho de Tarefas
11.
Games Health J ; 8(2): 129-143, 2019 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-30273002

RESUMO

OBJECTIVE: This study compared older adults' gains in cognitive and everyday functioning after a 60-session home-based videogame intervention with gains seen under formal cognitive training and usual care/no intervention. MATERIALS AND METHODS: Participants were randomized to one of three groups: one group played an off-the-shelf videogame (i.e., Crazy Taxi), the second group engaged in a computerized training program focused on visual attention and processing speed (i.e., PositScience InSight), and the third group received no training. Training in the two intervention conditions consisted of 60 training sessions of 1 hour each, which were completed in 3 months (5 hours a week). Participants received a broad battery of cognitive and everyday functioning assessments immediately before (pretest), after (post-test), and 3 months after (follow-up) training. RESULTS: Both training conditions improved on direct assessments of trained outcomes. In the InSight-trained group, we found transfer to untrained measures of visual attention and processing speed that were similar to the trained tasks, and these gains endured for up to 3 months. Participants in the videogame condition showed small additional benefits, not emerging until 3 months after intervention completion, on a measure of both attention and mood. No trained groups showed gain on visuospatial skills or memory. CONCLUSION: Training effects were highly specific to the target of training. Training effects to visual attention and processing speed were, as expected, larger for InSight-trained participants but were also seen for videogame participants. Given that past research has shown that videogame training leads to greater engagement than cognitive training, videogame interventions may represent a choice for more modest gains in a more engaging context.


Assuntos
Atividades Cotidianas , Cognição/fisiologia , Jogos de Vídeo/psicologia , Idoso , Envelhecimento , Feminino , Humanos , Masculino
12.
J Safety Res ; 39(1): 1-7, 2008.
Artigo em Inglês | MEDLINE | ID: mdl-18325410

RESUMO

PROBLEM: As the number of older drivers grows, it is increasingly important to accurately identify at-risk drivers. This study tested clinical assessments predictive of real-time driving performance. METHOD: Selected assessment tools considered important in the identification of at-risk older drivers represented the domains of vision, cognition, motor performance, and driving knowledge. Participants were administered the battery of assessments followed by an on-road test. A univariate analysis was conducted to identify significant factors (<.05) to be included in a multivariate regression model. RESULTS: Assessments identified as independently associated with driving performance in the regression model included: FACTTM Contrast sensitivity slide-B, Rapid Pace Walk, UFOV rating, and MMSE total score. DISCUSSION: The domains of vision, cognitive, and motor performance were represented in the predictive model. SUMMARY: Due to the dynamic nature of the driving task, it is not likely that a single assessment tool will identify at risk drivers. IMPACT ON INDUSTRY: By standardizing the selection of clinical assessments used in driving evaluations, practitioners should be able to provide services more efficiently, more objectively, and more accurately to identify at-risk drivers.


Assuntos
Condução de Veículo/legislação & jurisprudência , Automóveis/legislação & jurisprudência , Cognição , Conhecimento , Desempenho Psicomotor , Visão Ocular , Fatores Etários , Idoso , Condução de Veículo/normas , Automóveis/normas , Feminino , Florida , Humanos , Masculino , Modelos Estatísticos , Valor Preditivo dos Testes , Testes Psicológicos , Psicometria , Medição de Risco , Transtornos da Visão/diagnóstico , Testes Visuais
13.
Am J Occup Ther ; 62(1): 9-17, 2008.
Artigo em Inglês | MEDLINE | ID: mdl-18254426

RESUMO

OBJECTIVE: We sought to understand how functional status, impairment level, and use of assistive devices change over 3 years for older adults with depressive symptoms. We further explored factors that predict change in severity of depressive symptoms. METHOD: This study used data from the Rehabilitation Engineering Research Center on Aging Consumer Assessment Study, a longitudinal study of coping strategies of elders with disabilities. Seventy-three participants with depressive symptoms were interviewed at baseline and 3 years later. RESULTS: During 3 years, participants experienced increased physical disability (p = .001), a decline in severity of depressive symptoms (p = .03), and an increase in the total number of assistive devices owned. CONCLUSION: A significant number of older adults will experience a decrease in depressive symptoms over 3 years, despite an increase in physical disability. They also will obtain more assistive devices as they age.


Assuntos
Atividades Cotidianas , Depressão/fisiopatologia , Pessoas com Deficiência , Tecnologia Assistiva/psicologia , Adaptação Psicológica , Idoso , Idoso de 80 Anos ou mais , Feminino , Seguimentos , Humanos , Entrevistas como Assunto , Masculino , Tecnologia Assistiva/estatística & dados numéricos , Índice de Gravidade de Doença , Estados Unidos
14.
Rehabil Nurs ; 33(5): 215-20, 2008.
Artigo em Inglês | MEDLINE | ID: mdl-18767403

RESUMO

The Low Activities of Daily Living Monitoring Program (LAMP) at the North Florida/South Georgia Veterans Health System is a telerehabilitation program that promotes independence for veterans experiencing difficulties with activities of daily living by focusing on a combination of care coordination, assistive technology/adaptive equipment, and home environmental modifications. Initially designed to serve elders at risk of institutionalization, LAMP now is being adapted to the needs of veterans living with the effects of multisystem polytrauma. This article provides an overview of telehealth, explains the LAMP model, and presents a case history of a veteran who sustained complete tetraplegia and traumatic transfemoral amputation as the result of a blast injury and who lives successfully at home with the support of LAMP. A recent cost analysis of LAMP patients compared to a matched cohort receiving standard care also is presented. The LAMP model shows promise as a method for home-based management of combat-wounded veterans who experience multisystem polytrauma.


Assuntos
Atividades Cotidianas , Serviços de Assistência Domiciliar/organização & administração , Modelos Organizacionais , Traumatismo Múltiplo/reabilitação , Telemedicina/organização & administração , Veteranos , Adulto , Continuidade da Assistência ao Paciente , Análise Custo-Benefício , Florida , Georgia , Acessibilidade aos Serviços de Saúde , Pesquisa sobre Serviços de Saúde , Humanos , Guerra do Iraque 2003-2011 , Assistência de Longa Duração , Masculino , Objetivos Organizacionais , Quadriplegia/reabilitação , Estados Unidos , United States Department of Veterans Affairs , Veteranos/estatística & dados numéricos
15.
J Am Geriatr Soc ; 66(2): 339-345, 2018 02.
Artigo em Inglês | MEDLINE | ID: mdl-29192967

RESUMO

BACKGROUND/OBJECTIVES: Dementia-related behavioral symptoms and functional dependence result in poor quality of life for persons with dementia and their caregivers. The goal was to determine whether a home-based activity program (Tailored Activity Program; TAP-VA) would reduce behavioral symptoms and functional dependence of veterans with dementia and caregiver burden. DESIGN: Single-blind (interviewer), parallel, randomized, controlled trial (Clinicaltrials.gov: NCT01357564). SETTING: Veteran's homes. PARTICIPANTS: Veterans with dementia and their family caregivers (N = 160 dyads). INTERVENTION: Dyads in TAP-VA underwent 8 sessions with occupational therapists to customize activities to the interests and abilities of the veterans and educate their caregivers about dementia and use of customized activity. Caregivers assigned to attention control received up to 8 telephone-based dementia education sessions with a research team member. MEASUREMENTS: Primary outcomes included number of behaviors and frequency of their occurrence multiplied by severity of occurrence; secondary outcomes were functional dependence, pain, emotional well-being, caregiver burden (time spent caregiving, upset with behaviors) and affect at 4 (primary endpoint) and 8 months. RESULTS: Of 160 dyads (n = 76 TAP-VA; n = 84 control), 111 completed 4-month interviews (n = 51 TAP-VA; n = 60 control), and 103 completed 8-month interviews (n = 50 TAP-VA; n = 53 control). At 4 months, compared to controls, the TAP-VA group showed reductions in number (difference in mean change from baseline = -0.68, 95% CI = -1.23 to -0.13) and frequency by severity (-24.3, 95% CI = -45.6 to -3.1) of behavioral symptoms, number of activities needing assistance with (-0.80, 95% CI = -1.41 to -0.20), functional dependence level (4.09, 95% CI = 1.06, 7.13), and pain (-1.18, 95% CI = -2.10 to -0.26). Caregivers of veterans in TAP-VA reported less behavior-related distress. Benefits did not extend to 8 months. CONCLUSION: TAP-VA had positive immediate effects and no adverse events. Because TAP-VA reduces behavioral symptoms, slows functional dependence, and alleviates pain and caregiver distress, it is a viable treatment option for families.


Assuntos
Sintomas Comportamentais/terapia , Cuidadores/educação , Demência/terapia , Veteranos/estatística & dados numéricos , Adulto , Idoso , Cuidadores/psicologia , Feminino , Serviços de Assistência Domiciliar , Humanos , Masculino , Pessoa de Meia-Idade , Terapia Ocupacional/métodos , Avaliação de Resultados em Cuidados de Saúde , Método Simples-Cego , Veteranos/psicologia
16.
Front Psychol ; 9: 1466, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-30174632

RESUMO

Learning disabilities are highly prevalent on college campuses, yet students with learning disabilities graduate at lower rates than those without disabilities. Academic and psychosocial supports are essential for overcoming challenges and for improving postsecondary educational opportunities for students with learning disabilities. A holistic, multi-level model of campus-based supports was established to facilitate culture and practice changes at the institutional level, while concurrently bolstering mentors' abilities to provide learning disability-knowledgeable support, and simultaneously creating opportunities for students' personal and interpersonal development. Mixed methods were used to investigate implementation of coordinated personal, interpersonal, and institutional level supports for undergraduate science, technology, engineering, and math (STEM) students with learning disabilities. A one-group pre-test post-test strategy was used to examine undergraduate outcomes. Participants included 52 STEM undergraduates with learning disabilities, 57 STEM graduate student mentors, 34 STEM faculty mentors, and 34 university administrators and personnel as members of a university-wide council. Enrolled for 2 years, undergraduates were engaged in group meetings involving psychoeducation and reflective discussions, development of self-advocacy projects, and individual mentorship. Undergraduates reported improved self-efficacy (p = 0.001), campus connection (p < 0.001), professional development (p ≤ 0.002), and self-advocacy (p < 0.001) after two academic years. Graduate student mentors increased their understanding about learning disabilities and used their understanding to support both their mentees and other students they worked with. Council members identified and created opportunities for delivering learning disability-related trainings to faculty, mentors and advisors on campus, and for enhancing coordination of student services related to learning and related disorders. Disability-focused activities became integrated in broader campus activities regarding diversity. This research explicates a role that college campuses can play in fostering the wellbeing and the academic and career development of its students with developmental learning and related disorders. It offers an empirically tested campus-based model that is multilevel, holistic, and strengths-based for supporting positive outcomes of young people with learning disabilities in STEM. Moreover, findings advance the knowledge of supports and skills that are important for self-regulating and navigating complex and multi-faceted disability-related challenges within both the postsecondary educational environment and the young adults' sociocultural context.

17.
J Racial Ethn Health Disparities ; 3(4): 676-686, 2016 12.
Artigo em Inglês | MEDLINE | ID: mdl-27294762

RESUMO

Assistive technologies (AT) are tools that enhance the independence, safety, and quality of life of older people with functional limitations. While AT may extend independence in ageing, there are racial and ethnic disparities in late-life AT use, with lower rates reported among Hispanic older populations. The aim of this study was to identify barriers experienced by Hispanic community-living older adults for using AT. Sixty Hispanic older adults (70 years and older) with functional limitations participated in this study. A descriptive qualitative research design was used guided by the principles of the Human Activity Assistive Technology Model to gain in-depth understanding of participants' perspectives regarding barriers to using AT devices. Individual in-depth semi-structure interviews were conducted, using the Assistive Technology Devices Cards (ATDC) assessment as a prompt to facilitate participants' qualitative responses. Data analysis included descriptive statistics and rigorous thematic content analysis. Lack of AT awareness and information, cost of AT, limited coverage of AT by heath care plans, and perceived complexity of AT were the predominant barriers experienced by the participants. A multi-level approach is required for a better understanding of the barriers for using AT devices. The personal, contextual, and activity-based barriers found in this study can be used to develop culturally sensitive AT interventions to reduce existent disparities in independent living disabilities among older Hispanics.


Assuntos
Hispânico ou Latino , Qualidade de Vida , Tecnologia Assistiva , Adulto , Idoso , Idoso de 80 Anos ou mais , Barreiras de Comunicação , Competência Cultural , Pessoas com Deficiência , Etnicidade , Feminino , Humanos , Masculino
18.
Am J Occup Ther ; 59(4): 398-408, 2005.
Artigo em Inglês | MEDLINE | ID: mdl-16124206

RESUMO

OBJECTIVE: Dressing is an important activity of daily living, yet many older adults have difficulty due to impairments. The purpose of this study was to explore the use of assistive devices for dressing by older persons with impairments, and to look at differences among frail elders with no dressing difficulty, upper-extremity-only dressing difficulty, lower-extremity-only dressing difficulty, and both upper- and lower-extremity dressing difficulty. METHOD: We conducted in-home interviews and functional assessments with 1,101 elderly persons with activities of daily living and/or instrumental activities of daily living limitations in Western New York and Northern Florida. Participants were assigned to one of four groups based on Functional Independence Measure item scores for upper-extremity dressing and lower-extremity dressing. Descriptive statistics were used to report results. RESULTS: Compared to women, there were relatively more men with lower-extremity dressing difficulty than with upper-extremity dressing difficulty. The group with both upper- and lower-extremity dressing difficulty reported the highest level of pain and scored lowest on all measures of functional status and mental status. The most commonly used dressing devices were associated with lower-extremity dressing. CONCLUSION: There are differences in gender, health status, functional status, and mental status among elderly persons grouped by upper- or lower-extremity dressing difficulty. Results suggest that therapists should consider such differences as gender and type of difficulty (upper- or lower-extremity dressing) in both therapeutic approaches and recommendations for assistive devices. Pain is another important consideration, but it can often be reduced during dressing by using assistive devices.


Assuntos
Atividades Cotidianas , Vestuário , Pessoas com Deficiência/psicologia , Idoso Fragilizado/psicologia , Avaliação Geriátrica , Tecnologia Assistiva/estatística & dados numéricos , Idoso , Idoso de 80 Anos ou mais , Feminino , Florida/epidemiologia , Humanos , Entrevistas como Assunto , Masculino , New York/epidemiologia , Dor/epidemiologia , Dor/psicologia , Qualidade de Vida , Autoimagem , Fatores Sexuais , Perfil de Impacto da Doença
19.
Assist Technol ; 17(1): 82-8, 2005.
Artigo em Inglês | MEDLINE | ID: mdl-16121648

RESUMO

This article describes how older persons perceive and use personal emergency response systems (PERSs), including issues related to device design, and report reasons for nonuse of PERSs. Data for this study were collected through a semistructured questionnaire that included fixed and open-ended response questions. Six hundred six participants 60 years and older were surveyed. Descriptive statistics were used to report sample characteristics. The most often-stated reason for using a PERS was related to concerns with falling (40% of responses). Asked how a PERS has been helpful, 75.6% of participants expressed an enhanced feeling of security with their PERS. Lack of perceived need (57.0% of responses), cost (37.0%), and lack of knowledge of the device (23.7%) were the most frequently stated reasons for not using a PERS. This study found that, while PERSs provide benefits for many elders, there appear to be many older persons who could benefit who do not have one. Only 16% of participants in this study, all of whom had disabilities, used a PERS.


Assuntos
Pessoas com Deficiência/psicologia , Sistemas de Comunicação entre Serviços de Emergência , Idoso , Comportamento do Consumidor , Coleta de Dados , Desenho de Equipamento , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estados Unidos
20.
Int J Rehabil Res ; 26(2): 141-3, 2003 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-12799609

RESUMO

Pressure sores are a medical problem for wheelchair users worldwide. In developing countries this problem is more critical because of lack of access to specialized technologies and medical assessment. Seat cushions to relieve pressure represent one of best ways to prevent pressure sores for people with spinal cord injury, amputation, cerebral palsy, and other disabilities that require use of wheelchairs for long periods of time. The purpose of this study was to evaluate the performance of a low cost cushion, called the Tuball, designed for low-income communities in developing countries. The Tuball is made from bicycle inner tubes and plastic balls. Its durability and pressure-relieving characteristics were compared with the ROHOTM cushion and the foam cushions now used in Brazil. A sample of 30 participants tested the three cushions: 15 persons with paraplegia and 15 matched able-bodied persons evaluated the capacity of the cushions to distribute pressure. This study also addressed the use of samples of persons without disabilities to test wheelchair cushions.The Tuball cushion provided significantly better pressure distribution than the foam cushion. A t-test was used to compare disabled persons and non-disabled persons as samples in testing cushions. No difference between pressure distribution between non-disabled and disabled participants was found in testing the ROHO cushion or the foam cushion. However, both capacities of pressure distribution and HICPR varied between non-disabled and disabled participants for the Tuball cushion. To determine the useful life of the Tuball cushion, a fatigue test was conducted to simulate sitting and transfer. Both the Tuball and ROHO cushions withstood the equivalent of at least 1 year of use, whereas the foam cushion broke down.


Assuntos
Teste de Materiais , Úlcera por Pressão/prevenção & controle , Cadeiras de Rodas/economia , Brasil , Estudos de Casos e Controles , Países em Desenvolvimento , Desenho de Equipamento , Humanos , Masculino , Paraplegia/reabilitação , Cadeiras de Rodas/normas
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