Detalhe da pesquisa
1.
Investigating gender-based differential item functioning on the Kansas City Cardiomyopathy Questionnaire (KCCQ) using qualitative content analysis.
Qual Life Res
; 32(3): 841-852, 2023 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-36322269
2.
Recommended scoring approach for the pediatric patient-reported outcomes version of the Common Terminology Criteria for Adverse Events.
Pediatr Blood Cancer
; 69(6): e29452, 2022 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-34866311
3.
Longitudinal use of patient reported outcomes in pediatric leukemia and lymphoma reveals clinically relevant symptomatic adverse events.
Pediatr Blood Cancer
; 69(12): e29986, 2022 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-36151978
4.
The predictive trifecta? Fatigue, pain, and anxiety severity forecast the suffering profile of children with cancer.
Support Care Cancer
; 30(3): 2081-2089, 2022 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-34661748
5.
Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure.
Cancer
; 127(9): 1483-1494, 2021 05 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33332590
6.
Patients, caregivers, and clinicians differ in performance status ratings: Implications for pediatric cancer clinical trials.
Cancer
; 127(19): 3664-3670, 2021 10 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-34196962
7.
Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research.
Cancer
; 126(1): 140-147, 2020 01 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-31553494
8.
Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment.
Pediatr Blood Cancer
; 67(4): e28160, 2020 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-31904157
9.
The association of age, literacy, and race on completing patient-reported outcome measures in pediatric oncology.
Qual Life Res
; 28(7): 1793-1801, 2019 Jul.
Artigo
em Inglês
| MEDLINE | ID: mdl-30656534
10.
Capturing the young child's reports of cancer treatment tolerability: Does our practice reflect an assumption that they cannot report?
Pediatr Blood Cancer
; 70(1): e30028, 2023 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-36250991
11.
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review.
Qual Life Res
; 27(2): 291-319, 2018 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-28879501
12.
Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative.
Pediatr Blood Cancer
; 64(3)2017 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-27650708
13.
Concept-elicitation phase for the development of the pediatric patient-reported outcome version of the Common Terminology Criteria for Adverse Events.
Cancer
; 122(1): 141-8, 2016 Jan 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-26421973
14.
Understanding reliability of the observer-reported communication ability measure within Angelman syndrome through the lens of generalizability theory.
J Patient Rep Outcomes
; 8(1): 50, 2024 May 14.
Artigo
em Inglês
| MEDLINE | ID: mdl-38743304
15.
Faithful five: exploring African American faith leaders' perspectives on factors affecting childhood obesity.
Fam Community Health
; 36(4): 338-49, 2013.
Artigo
em Inglês
| MEDLINE | ID: mdl-23986074
16.
Quality of Life in Adults with Chronic Cough: A Mixed Methods Study Informing the Development of a Quantitative Patient Preference Study.
Patient
; 2023 Dec 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-38062222
17.
Patient experience of spontaneous intracranial hypotension (SIH): qualitative interviews for concept elicitation.
J Patient Rep Outcomes
; 7(1): 82, 2023 08 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-37581717
18.
Swahili translation and cultural adaptation of the pediatric patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE).
J Patient Rep Outcomes
; 7(1): 56, 2023 06 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-37306774
19.
Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome.
Am J Intellect Dev Disabil
; 128(3): 204-218, 2023 05 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-37104860
20.
Exploring Communication Ability in Individuals With Angelman Syndrome: Findings From Qualitative Interviews With Caregivers.
Am J Intellect Dev Disabil
; 128(3): 185-203, 2023 05 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-37104863