Detalhe da pesquisa
1.
Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: Insights from Germany, Greece, Latvia and Sweden.
Semin Cancer Biol
; 84: 271-283, 2022 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-34896635
2.
Implementation of precision medicine in healthcare-A European perspective.
J Intern Med
; 294(4): 437-454, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-37455247
3.
Minding Rights: Mapping Ethical and Legal Foundations of 'Neurorights'.
Camb Q Healthc Ethics
; : 1-21, 2023 May 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-37183686
4.
[Protecting the rights and freedoms of individuals with regard to health data processing: the risk approach of the EU General Data Protection Regulation (GDPR)]. / Schutz der Rechte und Freiheiten von Personen bei der Datenverarbeitung im Gesundheitsbereich: Der Risikoansatz der EU-Datenschutz-Grundverordnung (DGSVO).
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz
; 66(2): 143-153, 2023 Feb.
Artigo
em Alemão
| MEDLINE | ID: mdl-36648500
5.
Bridging the European Data Sharing Divide in Genomic Science.
J Med Internet Res
; 24(10): e37236, 2022 10 19.
Artigo
em Inglês
| MEDLINE | ID: mdl-36260387
6.
Genomics: data sharing needs an international code of conduct.
Nature
; 578(7793): 31-33, 2020 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-32025008
7.
Germany: a fair balance between scientific freedom and data subjects' rights?
Hum Genet
; 137(8): 619-626, 2018 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-30116955
8.
Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.
BMC Med Ethics
; 17(1): 39, 2016 07 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-27405974
9.
INTEGRATING NEXT-GENERATION SEQUENCING INTO MEDICAL DIAGNOSTICS--A SNAPSHOT OF NORMATIVE CHALLENGES.
Med Law
; 33(4): 115-25, 2014 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-27351049
10.
Implementing the human right to science in the context of health-related data processing.
J Law Biosci
; 11(1): lsae004, 2024.
Artigo
em Inglês
| MEDLINE | ID: mdl-38495856
11.
Purpose definition as a crucial step for determining the legal basis under the GDPR: implications for scientific research.
J Law Biosci
; 11(1): lsae001, 2024.
Artigo
em Inglês
| MEDLINE | ID: mdl-38313429
12.
Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory.
Eur J Hum Genet
; 32(1): 69-76, 2024 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-37322132
13.
FAIR, ethical, and coordinated data sharing for COVID-19 response: a scoping review and cross-sectional survey of COVID-19 data sharing platforms and registries.
Lancet Digit Health
; 5(10): e712-e736, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-37775189
14.
The international data governance landscape.
J Law Biosci
; 9(1): lsac005, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-35382430
15.
Genomic data sharing in Europe is stumbling-Could a code of conduct prevent its fall?
EMBO Mol Med
; 12(3): e11421, 2020 03 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-32072760
16.
Dynamic Consent: An Evaluation and Reporting Framework.
J Empir Res Hum Res Ethics
; 15(3): 175-186, 2020 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31729900
17.
Values in challenging times: strategic crisis management in the EU.
Lancet Reg Health Eur
; 24: 100553, 2023 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-36643663
18.
Computing patient data in the cloud: practical and legal considerations for genetics and genomics research in Europe and internationally.
Genome Med
; 9(1): 58, 2017 06 20.
Artigo
em Inglês
| MEDLINE | ID: mdl-28633659