Parents' experiences of having a baby with ambiguous genitalia.

Health professionals must be aware of the impact on parents of the birth of children with ambiguous genitalia. This study aimed to analyze the experiences and perceptions of such parents. Parents of 30 children who were evaluated in a reference center for disorders of sex development (DSD) were interviewed. The questionnaire covered the prenatal period, the moment they were told about the disorder, initial management by health professionals, and problems they experienced. Only two cases were detected during pregnancy. The news was usually given to the mother alone by pediatricians. Most parents kept it secret and avoided exposing the baby to the prejudice of others. Parents of children who were referred without sex assignment usually held a personal belief of their child's sex. Previous assignment was based on clinical examination and/or karyotype. Spreading knowledge about DSD could increase awareness of this issue, thus reducing parents' shock and societal stigma. Training of neonatal care teams is required to avoid assignment before evaluation.

Perfil sociodemográfico e clínico das pacientes em tratamento do câncer mamário / Social demographic and clinical profile of patients in the breast cancer treatment

Introdução - O presente estudo teve o objetivo de traçar o perfil sociodemográfico e clínico das pacientes em tratamento do câncer de mama. Trata-se de um estudo quantitativo, exploratório simples, com coleta de dados primários, por meio de questionário. O estudo foi realizado em uma clínica privada no interior do Estado de São Paulo, voltado ao tratamento de pacientes oncológicos. Material e Métodos - A população deste estudo foi constituída por mulheres em tratamento da neoplasia mamária. Foi aplicado um instrumento para caracterização dos sujeitos. Foram entrevistadas 62 pacientes portadoras de neoplasia mamária. Resultados - A idade média encontrada foi de 50,52 anos, a maioria era casada (79%), 81% referira ter filhos, 40,3% das pacientes tinham o ensino superior, 69,4% desenvolviam alguma atividade remunerada. A maioria dos sujeitos seguia alguma religião (95,2%), sendo 66,1% delas eram católicas, 95,2% referiram receber ajuda, sendo esta ajuda vinda de convênios ou empresas, 82,3% realizavam tratamento quimioterápico. Todas pacientes referiram ter apoio de seus familiares. Conclusão - Pode-se concluir que a população atendida neste serviço é uma população jovem, que está no mercado de trabalho, são casadas, têm filhos e recebem apoio da sua família para o tratamento. A maioriadas mulheres foi submetida ao tratamento quimioterápico que, geralmente, apresenta muitos efeitos colaterais, influenciando na adesão ao tratamento. Buscando o processo reabilitação e de enfrentamento da paciente vê-se a importância da ação do enfermeiro como educador.

Introduction - The present study had as objective draw the socialdemographic and clinical profile of the patients in the treatment of breast cancer. It refer to a simple exploratory, quantitative study, with primary fact-gathering, by means of questionnaire. The study was carried out in an private clinical practice in countryside of São Paulo State, come back to the treatment of oncological patients. Material and Methods - The population of this study was constituted by women in the breast cancer treatment. It was applied an instrument for characterization of the subjects.They were interviewed 62 breast cancer patients. Results - The medium age found was of 50.52 years, the most women were married (79%), 81% referred to have sons, 40.3% of the patients had the higher education, 69.4% developed some activity paid. The majority of the subjects followed some religion (95,2%), being 66.1% of them were catholic, 95.2% referred to receive help, being this helps coming of covenants or companies, 82.3% carried out chemotherapy treatment. All patients referred to have support of their relative. Conclusion - It is able to conclude that the population attended in this service is a young population, that is in the labor market, healthy married, have sons and receive support of his family for the treatment. The majority of the women were submitted to the chemotherapy treatment that, generally, presents many side effects, influencing in adhesion to the treatment. Seeking the trial rehabilitation and of clash of the sick one see the importance of the action of the nurse as educator.