Detalhe da pesquisa
1.
Opioid exposure in haemophilia patients is common and underreported.
Haemophilia
; 26(2): 251-256, 2020 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-32100423
2.
Awareness, Care and Treatment In Obesity maNagement to inform Haemophilia Obesity Patient Empowerment (ACTION-TO-HOPE): Results of a survey of US haemophilia treatment centre professionals.
Haemophilia
; 26 Suppl 1: 20-30, 2020 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-32017338
3.
The impact of obesity on chronic pain in patients with haemophilia: A multicentre retrospective analysis.
Haemophilia
; 30(2): 567-570, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38385966
4.
Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 18-24, 2017 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-28319337
5.
Impact of mild to severe hemophilia on engagement in recreational activities by US men, women, and children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 25-34, 2017 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-28319336
6.
Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 5-17, 2017 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-28319338
7.
Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia.
Am J Hematol
; 90 Suppl 2: S17-22, 2015 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-26619193
8.
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for ultra-rare inherited bleeding disorders.
Expert Rev Hematol
; 16(sup1): 55-70, 2023 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-36920862
9.
Disease Burden in Patients with Glanzmann's Thrombasthenia: Perspectives from the Glanzmann's Thrombasthenia Patient/Caregiver Questionnaire.
J Blood Med
; 11: 289-295, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32982527
10.
Psychosocial Impact and Disease Management in Patients with Congenital Factor VII Deficiency.
J Blood Med
; 11: 297-303, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32982528
11.
Phenotypical variability in congenital FVII deficiency follows the ISTH-SSC severity classification guidelines: a review with illustrative examples from the clinic.
J Blood Med
; 9: 211-218, 2018.
Artigo
em Inglês
| MEDLINE | ID: mdl-30510462