Detalhe da pesquisa
1.
Diagnosis and management in Rubinstein-Taybi syndrome: first international consensus statement.
J Med Genet
; 61(6): 503-519, 2024 May 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-38471765
2.
Caregiver support, burden, and long-term planning among caregivers of individuals with intellectual and developmental disabilities: A cross-sectional study.
J Appl Res Intellect Disabil
; 36(6): 1229-1240, 2023 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-37530520
3.
Caregivers of individuals with Rubinstein-Taybi syndrome: Perspectives, experiences, and relationships with medical professionals.
J Genet Couns
; 31(1): 153-163, 2022 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-34218493
4.
Identifying key components of a web-based long term care planning intervention for family caregivers of individuals with intellectual/developmental disabilities.
J Appl Res Intellect Disabil
; 35(3): 867-877, 2022 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-35277898
5.
Behavioral and neuropsychiatric challenges across the lifespan in individuals with Rubinstein-Taybi syndrome.
Front Genet
; 14: 1116919, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37415602
6.
Seeking Out Social Learning: Online Self-Education in Parents of Children With Intellectual and Developmental Disabilities.
Intellect Dev Disabil
; 60(4): 303-315, 2022 08 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-35868300
7.
Implementing Living Independent From Tobacco With Dyads of People With Disabilities and Their Caregivers: Successes and Lessons Learned.
Intellect Dev Disabil
; 58(3): 241-250, 2020 06 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-32484885
8.
Living Independent From Tobacco reduces cigarette smoking and improves general health status among long-term tobacco users with disabilities.
Disabil Health J
; 13(3): 100882, 2020 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31917121
9.
Implications of Health Equity for Children With Disabilities.
JAMA Pediatr
; 2024 Apr 29.
Artigo
em Inglês
| MEDLINE | ID: mdl-38683627
10.
Evidence for the Fidelity and Effectiveness of Living Independent From Tobacco for People with Disabilities and Their Caregivers.
Tob Use Insights
; 12: 1179173X18825075, 2019.
Artigo
em Inglês
| MEDLINE | ID: mdl-30718966
11.
Enhancing language in children who are deaf/hard-of-hearing using augmentative and alternative communication technology strategies.
Int J Pediatr Otorhinolaryngol
; 125: 23-31, 2019 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-31238158
12.
Caregiving for youth with co-occurring developmental disabilities and behavioral health issues when caregivers face additional health-related stressors: Analysis of risk and protective factors from a national sample.
Res Dev Disabil
; 59: 399-409, 2016 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-27721195
13.
The Associations of Chronic Condition Type and Individual Characteristics With Transition Readiness.
Acad Pediatr
; 16(7): 660-7, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-27345693