Detalhe da pesquisa
1.
A Registry Study of 240 Patients with X-Linked Agammaglobulinemia Living in the USA.
J Clin Immunol
; 43(6): 1468-1477, 2023 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-37219739
2.
Health-Related Quality of Life in 91 Patients with X-Linked Agammaglobulinemia.
J Clin Immunol
; 42(4): 811-818, 2022 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-35284987
3.
Web-Based Mindfulness-Based Interventions for Well-being: Randomized Comparative Effectiveness Trial.
J Med Internet Res
; 24(9): e35620, 2022 09 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-36094813
4.
Expectations and experience: Parent and patient perspectives regarding treatment for Severe Combined Immunodeficiency (SCID).
Clin Immunol
; 229: 108778, 2021 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-34144198
5.
Supporting caregivers during hematopoietic cell transplantation for children with primary immunodeficiency disorders.
J Allergy Clin Immunol
; 143(6): 2271-2278, 2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-31178019
6.
Psychosocial services for primary immunodeficiency disorder families during hematopoietic cell transplantation: A descriptive study.
Palliat Support Care
; 17(4): 409-414, 2019 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-30223912
7.
Pulmonologist perspectives regarding diagnosis and management of primary immunodeficiency diseases.
Allergy Asthma Proc
; 37(6): 162-168, 2016 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-27931293
8.
Fertility, pregnancies and outcomes reported by females with common variable immune deficiency and hypogammaglobulinemia: results from an internet-based survey.
J Clin Immunol
; 35(2): 125-34, 2015 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-25572592
9.
Perceived Health in Patients with Primary Immune Deficiency.
J Clin Immunol
; 35(7): 638-50, 2015 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-26453585
10.
Immunologist's Perspectives on Assessment and Management of Lung Disease in CVID: a Survey of the Membership of the Clinical Immunology Society and the European Society for Immunodeficiencies.
J Clin Immunol
; 38(3): 237-246, 2018 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-29629482
11.
Provider practices in screening for mental health concerns in caregivers of patients with primary immunodeficiency.
Ann Allergy Asthma Immunol
; 121(2): 254-256, 2018 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-29802981
12.
Early vs. delayed diagnosis of severe combined immunodeficiency: a family perspective survey.
Clin Immunol
; 138(1): 3-8, 2011 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-21035402
13.
Persons Living With Primary Immunodeficiency Act as Citizen Scientists and Launch Prospective Cohort Body Temperature Study.
J Particip Med
; 12(4): e22297, 2020 Nov 30.
Artigo
em Inglês
| MEDLINE | ID: mdl-33252341
14.
PROMIS-29 survey confirms major impact of fatigue on health-related quality of life in common variable immunodeficiency.
Immunol Res
; 68(6): 379-388, 2020 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-33161558
15.
Family Physician Perspectives on Primary Immunodeficiency Diseases.
Front Med (Lausanne)
; 3: 12, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-27066486
16.
Seasonal viral influenza among persons with primary antibody immunodeficiency.
J Allergy Clin Immunol Pract
; 7(3): 1058-1060.e3, 2019 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-30537559