Detalhe da pesquisa
1.
Family adaptation in families of individuals with Down syndrome from 12 countries.
Am J Med Genet C Semin Med Genet
; 196(1): e32075, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-37929633
2.
Understanding type and quality of relationships between individuals with chromosome 18 syndromes and their siblings.
J Genet Couns
; 2023 Oct 26.
Artigo
em Inglês
| MEDLINE | ID: mdl-37882415
3.
Adaptation at the Family Level in Families of Individuals With Down Syndrome: A Scoping Review.
J Fam Nurs
; 29(4): 324-347, 2023 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-37066798
4.
Dental health care for children with Down syndrome: Parents' description of their children's needs in dental health care settings.
Eur J Oral Sci
; 130(3): e12859, 2022 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-35218581
5.
Quality of life in individuals with Down syndrome aged 4 to 21 years.
Child Care Health Dev
; 47(1): 85-93, 2021 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-32997835
6.
Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation.
J Fam Nurs
; 27(1): 8-22, 2021 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-33272069
7.
mHealth Family Adaptation Intervention for Families of Young Children with Down Syndrome: A Feasibility Study.
J Pediatr Nurs
; 50: e69-e76, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-30928311
8.
Parent-Reported Contribution of Family Variables to the Quality of Life in Children with Down Syndrome: Report from an International Study.
J Pediatr Nurs
; 55: 192-200, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32957023
9.
Adaptation to Technology Use in Families of Children With Complex Communication Needs: An Integrative Review and Family Theory Application.
J Fam Nurs
; 26(2): 153-178, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32389060
10.
Family management of childhood chronic conditions: Does it make a difference if the child has an intellectual disability?
Am J Med Genet A
; 176(1): 82-91, 2018 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-29140588
11.
Infant massage applied by parents of infants with Down syndrome (DS) increases their levels of acceptance, commitment and awareness of influence.
Evid Based Nurs
; 26(3): 121, 2023 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-36922009
12.
Adaptation in families of children with Down syndrome in East Asian countries: an integrative review.
J Adv Nurs
; 73(8): 1792-1806, 2017 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-27987318
13.
Genetic education, knowledge and experiences between nurses and physicians in primary care in Brazil: A cross-sectional study.
Nurs Health Sci
; 19(1): 66-74, 2017 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-27510609
14.
How the Child's Gender Matters for Families Having a Child With Congenital Adrenal Hyperplasia.
J Fam Nurs
; 23(4): 516-533, 2017 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-29046104
15.
Tips for Developing a Successful Family Research Proposal.
J Fam Nurs
; 23(4): 450-460, 2017 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-29199534
16.
Delays and Disabilities: NP Screening and Care Management.
J Nurse Pract
; 13(2): e67-e73, 2017 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-28626360
17.
Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice.
Am J Bioeth
; 15(7): 3-14, 2015.
Artigo
em Inglês
| MEDLINE | ID: mdl-26147254
18.
An update of childhood genetic disorders.
J Nurs Scholarsh
; 45(1): 34-42, 2013 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-23294802
19.
A Mixed Methods Analysis of Care Coordination Needs and Desirable Features of an M-Health Application to Support Caregivers of Children With Down Syndrome.
J Pediatr Health Care
; 37(1): 30-39, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-36257899
20.
Perceived Experiences of Korean Immigrant Mothers Raising Children With Disabilities in the United States.
J Transcult Nurs
; 33(2): 219-227, 2022 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-34872416