[Ambivalence, control, support. Caring for the elderly patient at a "good enough" distance]. / Ambivalence, emprise, soutien. De la difficulté d'entourer le patient âgé à « suffisamment bonne ¼ distance.

OBJECTIVES: In the wake of the Covid-19 pandemic, visits by relatives to Nursing Homes for the Elderly (EHPAD) and Long-Term Care Units (USLD) have been severely restricted or even prohibited in order to protect the residents and patients, especially the most vulnerable among them. This situation has revived the debate around the place and role of the relational entourage in caring for the elderly. The relevance of family ties in supporting the narcissistic and objectal cathexis of the elderly has thus gained recognition. There is, however, the risk of an emerging form of uniformization and idealization, which the present article seeks to address by highlighting some aspects of the intrapsychic and inter-relational dynamics that drive the inherent complexity of those bonds. METHOD: The authors seek to identify the psychic processes involved in varying forms of presence and of motivation of "natural caregivers" and "professional caregivers." Their approach is based on a psychodynamic analysis of the consequences of the Covid-19 pandemic and the changes induced in the links between the patient or elderly resident and his or her entourage. Complex movements fueling the dynamics involved in these links are revealed. A clinical vignette based on research in clinical psychology and psychopathology is provided. RESULTS: The pandemic context showed the creative strategies devised by relatives and carers to maintain forms of presence and links "at a distance" with isolated and confined elderly people. However, the various configurations of these arrangements also highlighted the tensions, sometimes tinged with rivalry, in the negotiations that inform the respective places and roles of family members and professionals around the subjects concerned. The caregiver's position is not self-evident and presupposes an involvement that cannot be construed on a merely functional and behavioral level. Rather, it requires a need for psychic work drawing on the identificatory and projective movements inevitably mobilized in closeness with the subject, without alienating oneself. Ambivalence, empathy, and support can then be deployed, where excessive control, covert hostility, and over-excitement are constant threats to such a necessarily close relationship. This disposition in the caregiver also encounters a singular psychic disposition on the part of the person being helped, informed by a lively conflictuality. This sometimes takes on surprising undertones, as in the case of Georges, an 86-year-old patient, where the caregiver as a "close-human-being" was fully recognized only on the condition that the relationship of help and care supported, sustained, and nourished unconscious masochistic needs. DISCUSSION: These perspectives are an invitation to ponder the plurality of figures of the "close-human-being" and to find one's place in a psychic and relational economy where the self-preserving and psychosexual registers are in constant interplay. They also underline the need to focus on working, individually and collectively, on the quality of the entourage's presence. This is all mediated by a complex organizational pattern anchored in the potential for reciprocal support between the family group, the caregiving group, and the institutional setting. CONCLUSION: These various propositions help clarifythe components of the psychic conflictuality implied, on the one hand, in the horizontal tensions existing between the various members of the familial and professional circle and, on the other hand, in the vertical tensions inherent in intergenerational dynamics. The elderly are far from being passive objects in this and their contribution is essential. The concern to ensure the close involvement of the elderly person's relatives and foster the quality of the ensuing exchanges is laudable, indeed vital. This should not, however, lead us to downplay the crucial and singular place the elderly subjects themselves occupy in individual, family, and societal dynamics, as full citizens, members of their relatives' entourage, and essential figures in the establishment of the great psychic organizing functions that structure the difference in generations and the psychic processes of identification.

End-of-Life Discussions With Patients and Caregivers Affected By Neurogenetic Diseases.

Background and Objectives: No effective cure is available for neurogenetic diseases such as Huntington disease, spinocerebellar ataxias, and Friedreich ataxia, all of which cause progressive motor, cognitive, and psychiatric symptoms leading, in the long term, to severe communication (among other) impairments. In end-of-life situations, advanced directives (indications formulated by the patient about end-of-life choices) are one decision-making resource for relatives, caregivers, and health care professionals. Given the slowly progressive nature of these diseases, the related disabilities, and their hereditary component, patients, caregivers, and neurologists are often at a loss concerning the right course of action to take. Our study's aim was to explore patients' and caregivers' perceptions, needs, and expectations around anticipated end-of-life discussions and advanced directives. Methods: DIRAGENE is an observational, cross-sectional, mixed-methods study with a patient-centered component and a primary caregiver-centered component. Observations include disease severity, psychosocial, and emotional scales; in-house questionnaires; and semidirected interviews. Results: We included 124 participants, of which 81 were patients and 43 primary caregivers. Only 16% of the participants knew specifically about advanced directives and 7% had written documents vs 30% and 18% in the general French population, respectively, adjusted for age. Qualitative analysis of the interviews with 15 couples showed notable dissimilarities in ideas about advanced directives between patients and caregivers and that the underlying pathology, severity, and inheritability are less relevant factors regarding end-of-life discussions than age, environment, prior experiences with death, and history of family illness. Most patients (95%) and caregivers (98%) found that participating in the study was helpful in bringing awareness to end-of-life issues, wished to prioritize discussing them with loved ones, and requested assistance in managing them throughout the course of the disease. Discussion: Being affected by severe neurogenetic diseases does not seem to prompt individuals to give much thought to end-of-life planning. However, patients and caregivers welcome comprehensive information and expect progressive support from trained health care professionals in having such discussions. Routine integration of these conversations into medical management through a holistic and adapted approach will benefit patients with illnesses with unfavorable long-term prognoses.

[Diversity of the psychopathology of memory complaints in the aging adult]. / Diversité psychopathologique dans la clinique de la plainte mnésique de l'adulte vieillissant.

A strong correlation was frequently observed between memory complaints and the scores obtained on anxiety and depression scales. This paper contributes to explore the psychopathological basis of the experience of decreased memory efficiency. Our research, based on a clinical psychopathological methodology, rests upon semi-directed interviews associated with a psychological examination combining neuropsychological tests and projective methodology. The population consists of 31 subjects aged 53 to 85 years, who presented with memory complaint upon their own initiative in a memory clinic and for whom the neuropsychological examination ruled out the hypothesis of the onset of cerebral deterioration. The patients exhibited more or less mild neurotic, borderline and narcissistic psychic modes of functioning. There was no patient exhibiting psychotic functioning. We have been able to verify among the neurotic patients how the emphasis of anxiety of memory loss correspond to a revival of the anxiety of castration, that of being dispossessed of capacities which guarantee autonomy, judgement, power of decision and action. Furthermore, in the contemporary context of cerebral pathologies which can transform every intelligent man in a dependent, indeed bedridden being, this complaint jointly betrays an anxiety triggered by the risk of a violated intimacy due to the care which could be given as well as an anxiety linked to eviction, dispossession and to acts of mistreatment which are greatly apprehended. In patients exhibiting borderline functioning, the complaint of memory decline betrayed anxiety of fracture and dissolution of the self, and of lack of object-support. In narcissistic patients, the weakness of memory mobilisation eradicated the illusion that time does not pass, does not cause damage and that objects neither leave nor die.