Detalhe da pesquisa
1.
Safety issues and harmful pharmacological interactions of nutritional supplements in Duchenne muscular dystrophy: considerations for Standard of Care and emerging virus outbreaks.
Pharmacol Res
; 158: 104917, 2020 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-32485610
2.
Harmonization of outcomes in epidermolysis bullosa: report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting.
Br J Dermatol
; 190(2): 268-270, 2024 Jan 23.
Artigo
em Inglês
| MEDLINE | ID: mdl-37792735
3.
Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.
Dev Med Child Neurol
; 55(11): 1038-45, 2013 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-23902233
4.
The Dilemma of Choice for Duchenne Patients Eligible for Exon 51 Skipping The European Experience.
J Neuromuscul Dis
; 10(3): 315-325, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-36911945
5.
Patient reported outcome measure for upper limb in Duchenne muscular dystrophy: correlation with PUL2.0.
Neuromuscul Disord
; 33(9): 69-73, 2023 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-37612177
6.
The Role of Patient Involvement When Developing Therapies.
Nucleic Acid Ther
; 32(2): 118-122, 2022 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-34597188
7.
A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy.
Patient
; 15(5): 577-588, 2022 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-35243571
8.
How Patient Organizations Can Drive FAIR Data Efforts to Facilitate Research and Health Care: A Report of the Virtual Second International Meeting on Duchenne Data Sharing, March 3, 2021.
J Neuromuscul Dis
; 8(6): 1097-1108, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-34334415
9.
The evolution of patient-focused drug development and Duchenne muscular dystrophy.
Expert Rev Pharmacoecon Outcomes Res
; 20(1): 57-68, 2020 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-32098551
10.
Muscle biopsies in clinical trials for Duchenne muscular dystrophy - Patients' and caregivers' perspective.
Neuromuscul Disord
; 29(8): 576-584, 2019 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-31378431
11.
Moving Beyond the 2018 Minimum International Care Considerations for Osteoporosis Management in Duchenne Muscular Dystrophy (DMD): Meeting Report from the 3rd International Muscle-Bone Interactions Meeting 7th and 14th November 2022.
J Neuromuscul Dis
; 11(1): 233-252, 2024.
Artigo
em Inglês
| MEDLINE | ID: mdl-37980681
12.
Primary Care and Emergency Department Management of the Patient With Duchenne Muscular Dystrophy.
Pediatrics
; 142(Suppl 2): S90-S98, 2018 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-30275253
13.
A Transition Toolkit for Duchenne Muscular Dystrophy.
Pediatrics
; 142(Suppl 2): S110-S117, 2018 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-30275255
14.
Development of Exon Skipping Therapies for Duchenne Muscular Dystrophy: A Critical Review and a Perspective on the Outstanding Issues.
Nucleic Acid Ther
; 27(5): 251-259, 2017 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-28796573
15.
Stakeholder cooperation to overcome challenges in orphan medicine development: the example of Duchenne muscular dystrophy.
Lancet Neurol
; 15(8): 882-890, 2016 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-27302365
16.
Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy.
PLoS Curr
; 72015 Aug 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-26331093
17.
[Re-use of medical data for research. What do the Dutch think of the requirement for explicit consent?]. / Hergebruik van medische gegevens voor onderzoek. Wat vindt de Nederlander van het toestemmingsvereiste?
Ned Tijdschr Geneeskd
; 160: A9868, 2015.
Artigo
em Holandês
| MEDLINE | ID: mdl-27027208
18.
Looking under every rock: Duchenne muscular dystrophy and traditional Chinese medicine.
Neuromuscul Disord
; 13(9): 705-7, 2003 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-14561492
19.
Meeting on data sharing for Duchenne 21-22 March 2019 Amsterdam, the Netherlands.
Neuromuscul Disord
; 29(10): 800-810, 2019 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-31548100
20.
2nd Workshop on upper-extremity assistive technology for people with Duchenne: Effectiveness and usability of arm supports Irvine, USA, 22nd-23rd January 2018.
Neuromuscul Disord
; 29(8): 651-656, 2019 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-31443952