Detalhe da pesquisa
1.
Association of patient, treatment and disease characteristics with patient-reported outcomes: Results of the ECHO Registry.
Haemophilia
; 30(1): 106-115, 2024 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-38030962
2.
Clinical phenotype, fibrinogen supplementation, and health-related quality of life in patients with afibrinogenemia.
Blood
; 137(22): 3127-3136, 2021 06 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-33512441
3.
The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies.
Haemophilia
; 29(1): 199-209, 2023 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-36264198
4.
Efficacy and safety in patients with haemophilia A switching to octocog alfa (BAY 81-8973): Final results of the global real-world study, TAURUS.
Eur J Haematol
; 110(1): 77-87, 2023 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-36192847
5.
Health-related quality of life and health status in adolescent and adult people with haemophilia A without factor VIII inhibitors-A non-interventional study.
Haemophilia
; 27(3): 398-407, 2021 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-33576546
6.
The effect of emicizumab prophylaxis on long-term, self-reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4 studies.
Haemophilia
; 27(5): 854-865, 2021 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-34171159
7.
Cross-Sectional and Longitudinal Construct Validity of the Generic KINDL-A(dult)B(rief) Questionnaire in Adults with Thrombophilia or with Hereditary and Acquired Bleeding Disorders.
Acta Haematol
; 144(2): 166-175, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-32506056
8.
[Impact of COVID-19 Pandemic on Medical Care of Patients with Inherited Bleeding Disorders]. / Auswirkungen der COVID-19 Pandemie auf die medizinische Versorgung von Patienten mit angeborenen Blutungsneigungen.
Gesundheitswesen
; 83(4): 282-290, 2021 Apr.
Artigo
em Alemão
| MEDLINE | ID: mdl-33831972
9.
Heavy menstrual bleeding in women with inherited bleeding disorders.
Haemophilia
; 26 Suppl 3: 16-19, 2020 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-32356352
10.
Determining meaningful health-related quality-of-life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem-A-QoL).
Haemophilia
; 26(6): 1019-1030, 2020 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-33084166
11.
Impact of COVID-19 pandemic on mental health of patients with inherited bleeding disorders in Germany.
Haemophilia
; 26(6): e272-e281, 2020 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-32935406
12.
Cross-cultural adaptation and validation of Haem-A-QoL in Côte d'Ivoire.
Haemophilia
; 26(3): 459-466, 2020 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-32394627
13.
Health-related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors-Results from the HAVEN 2 study.
Haemophilia
; 26(6): 1009-1018, 2020 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-33084175
14.
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company.
Haemophilia
; 26(6): 966-974, 2020 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-33094894
15.
BAY 81-8973 prophylaxis and pharmacokinetics in haemophilia A: Interim results from the TAURUS study.
Eur J Haematol
; 105(2): 164-172, 2020 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-32259334
16.
Outcomes in children with hemophilia A with inhibitors: Results from a noninterventional study.
Pediatr Blood Cancer
; 67(10): e28474, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32776489
17.
Health-related quality of life in paediatric haemophilia B patients treated with rIX-FP.
Haemophilia
; 25(1): 45-53, 2019 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-30427091
18.
The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study).
Haemophilia
; 25(3): 416-423, 2019 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-30925018
19.
The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study).
Haemophilia
; 25(3): 424-432, 2019 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-30974034
20.
Health-related quality of life and health status in persons with haemophilia A with inhibitors: A prospective, multicentre, non-interventional study (NIS).
Haemophilia
; 25(3): 382-391, 2019 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-31016855