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1.
BMC Palliat Care ; 23(1): 116, 2024 May 03.
Artigo em Inglês | MEDLINE | ID: mdl-38702653

RESUMO

BACKGROUND: Needs-based, patient-oriented palliative care includes palliative day care clinics as a specialized semi-inpatient care offer. However, the establishment and development of these facilities has been unsystematic. Research is needed to strengthen their transparency and ensure their accessibility, quality, and structural adequacy. A national Delphi study was conducted to generate appropriate recommendations for the establishment and development of palliative day care clinics in Germany. METHODS: Recommendations were formulated from focus group data on the development and expansion of palliative day care clinics in Germany. Experts on in- and outpatient palliative care rated 28 recommendations for relevance and feasibility, respectively, using a 4-point Likert-type scale. Suggestions for improvement were captured via free text comments. Items were considered consented when more than 80% of the experts scored them 4 (strongly agree) or 3 (somewhat agree), regarding both relevance and feasibility. RESULTS: A total of 23 experts (32% response rate) completed three Delphi rounds. Following the first round, 10 of 28 recommendations were revised according to participants' comments; 1 recommendation was rejected. After the second round, 3 of these 10 recommendations were revised, while 3 were rejected. Consensus was achieved after the third round for 22 of the initial recommendations. CONCLUSIONS: The Delphi-consented recommendations provide a basis for the targeted evidence- and needs-based development of palliative day care clinics. The findings show a need for standards setting and the meaningful integration of these clinics into existing structures. TRIAL REGISTRATION: The present study was prospectively registered on April 20, 2020, with the German Clinical Trials Register (DRKS00021446).


Assuntos
Consenso , Técnica Delphi , Grupos Focais , Cuidados Paliativos , Humanos , Alemanha , Cuidados Paliativos/normas , Cuidados Paliativos/métodos , Grupos Focais/métodos , Hospital Dia/normas , Hospital Dia/métodos , Feminino , Pessoa de Meia-Idade , Masculino , Adulto
2.
BMC Palliat Care ; 19(1): 119, 2020 Aug 07.
Artigo em Inglês | MEDLINE | ID: mdl-32767979

RESUMO

BACKGROUND: Palliative Care Day Services (PCDS) offer supportive care to people with advanced, progressive illness who may be approaching the end of life. Despite the growth of PCDS in recent years, evidence of their costs and effects is scarce. It is important to establish the value of such services so that health and care decision-makers can make evidence-based resource allocation decisions. This study examines and estimates the costs and effects of PCDS with different service configurations in three centres across the UK in England, Scotland and Northern Ireland. METHODS: People who had been referred to PCDS were recruited between June 2017 and September 2018. A pragmatic before-and-after descriptive cohort study design analysed data on costs and outcomes. Data on costs were collected on health and care use in the 4 weeks preceding PCDS attendance using adapted versions of the Client Service Receipt Inventory (CSRI). Outcomes, cost per attendee/day and volunteer contribution to PCDS were also estimated. Outcomes included quality of life (MQOL-E), health status (EQ-5D-5L) and capability wellbeing (ICECAP-SCM). RESULTS: Thirty-eight attendees were recruited and provided data at baseline and 4 weeks (centre 1: n = 8; centre 2: n = 8, centre 3: n = 22). The cost per attendee/day ranged from £121-£190 (excluding volunteer contribution) to £172-£264 (including volunteer contribution) across the three sites. Volunteering constituted between 28 and 38% of the total cost of PCDS provision. There was no significant mean change at 4 week follow-up from baseline for health and care costs (centre 1: £570, centre 2: -£1127, centre 3: £65), or outcomes: MQOL-E (centre 1: - 0.48, centre 2: 0.01, centre 3: 0.24); EQ-5D-5L (centre 1: 0.05, centre 2: 0.03, centre 3: - 0.03) and ICECAP-SCM (centre 1:0.00, centre 2: - 0.01, centre 3: 0.03). Centre costs variation is almost double per attendee when attendance rates are held constant in scenario analysis. CONCLUSIONS: This study highlights the contribution made by volunteers to PCDS provision. There is insufficient evidence on whether outcomes improved, or costs were reduced, in the three different service configurations for PCDS. We suggest how future research may overcome some of the challenges we encountered, to better address questions of cost-effectiveness in PCDS.


Assuntos
Hospital Dia/normas , Custos de Cuidados de Saúde/estatística & dados numéricos , Cuidados Paliativos/economia , Cuidados Paliativos/normas , Adulto , Estudos de Coortes , Análise Custo-Benefício , Hospital Dia/métodos , Hospital Dia/estatística & dados numéricos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/estatística & dados numéricos , Reino Unido
3.
HEC Forum ; 31(4): 325-344, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31606869

RESUMO

Many parents are hesitant about, or face motivational barriers to, vaccinating their children. In this paper, we propose a type of vaccination policy that could be implemented either in addition to coercive vaccination or as an alternative to it in order to increase paediatric vaccination uptake in a non-coercive way. We propose the use of vaccination nudges that exploit the very same decision biases that often undermine vaccination uptake. In particular, we propose a policy under which children would be vaccinated at school or day-care by default, without requiring parental authorization, but with parents retaining the right to opt their children out of vaccination. We show that such a policy is (1) likely to be effective, at least in cases in which non-vaccination is due to practical obstacles, rather than to strong beliefs about vaccines, (2) ethically acceptable and less controversial than some alternatives because it is not coercive and affects individual autonomy only in a morally unproblematic way, and (3) likely to receive support from the UK public, on the basis of original empirical research we have conducted on the lay public.


Assuntos
Hospital Dia/métodos , Política de Saúde , Instituições Acadêmicas/normas , Vacinação/métodos , Movimento contra Vacinação/psicologia , Hospital Dia/normas , Humanos , Instituições Acadêmicas/tendências , Vacinação/psicologia , Vacinação/tendências
4.
Int Psychogeriatr ; 29(3): 455-466, 2017 03.
Artigo em Inglês | MEDLINE | ID: mdl-27903322

RESUMO

BACKGROUND: Day care services for patients with dementia (PWD) are generally under-utilized worldwide despite evidence of positive outcomes, such as improved behavioral, psychological, and cognitive functioning for patients, and reduced caregiver burden. This study sought to gain an in-depth understanding of the reasons for non-utilization of day care services in Singapore using qualitative methodology. METHODS: A purposive sample of 16 caregivers of PWD who had never attended day care services participated in semi-structured interviews. Interviews were audio-recorded and transcribed verbatim. Data analysis was based on an Interpretative Phenomenological Analysis framework. FINDINGS: Caregivers recognized the importance of engagement for PWD, yet were constrained by patients' refusal to attend day care, which caregivers attributed to the patients' negative beliefs about day care and fear of abandonment by their families. Caregivers also raised concerns about service delivery issues, the suitability of activities at day care, and their perceptions of the patients' ability to integrate into the setting. Non-utilization was also related to caregivers' low perceived need due to the availability of alternative care arrangements (e.g. having a domestic helper and adequate family support). CONCLUSIONS: Caregivers generally understand the value of day care but several factors tip the balance in favor of non-use. These include culturally bound caregiving values and perceptions, and inadequacies in service delivery. Negative perceptions about services highlight the need to enhance the image and standards of day care and increase awareness of the benefits of day care for PWD beyond its custodial role.


Assuntos
Cuidadores/psicologia , Hospital Dia/estatística & dados numéricos , Hospital Dia/normas , Demência/enfermagem , Adaptação Psicológica , Adulto , Idoso , Idoso de 80 Anos ou mais , Cuidadores/educação , Feminino , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Singapura
5.
BMC Health Serv Res ; 16: 184, 2016 05 17.
Artigo em Inglês | MEDLINE | ID: mdl-27184962

RESUMO

BACKGROUND: Dementia is common, particularly among older adults, and is one of the major causes of dependency later in life. We sought to provide an overview and comparison of key services related to dementia care as the disease progresses in three large Canadian healthcare centres. METHODS: We identified family physicians, geriatric specialists, and dementia case managers from three major population centres in Canada with universal healthcare coverage. Using a standardized longitudinal dementia case vignette, participants were interviewed on services they would provide at each stage of the disease. We used principles of content analysis to generate codes and identify themes; appropriate time frames from the vignette fitting the necessary provision of services were derived from the Canadian consensus statement and determined in consultation with clinical experts. Proportions of participants that identified dementia-related care services were analyzed at each time point of the vignette using chi-square tests. RESULTS: Thirty-four healthcare providers from Calgary (Alberta), Edmonton (Alberta), and Ottawa (Ontario) participated. Review of our data identified seven overarching themes of dementia-related care services. Services provided in the community setting include future planning and related services, educational and social support services, and home care and respite services. Although all providers consistently identified educational and social support services (e.g. the Alzheimer Society) within the appropriate time frame, the provision of other services was variable. The proportion of providers reporting potential access of future planning services was significantly different across the three sites (Calgary, 91.7 %; Edmonton; 58.3 %; and Ottawa, 30.0 %), p = 0.012. Also, the proportion of providers that identified day program services were significantly different across the three sites (Calgary, 100.0 %; Edmonton, 91.7 %; and Ottawa, 60.0 %), p = 0.023 according to a chi-square test. CONCLUSIONS: We found important types of variability in service delivery among different regions in Canada for a typical patient with dementia and their family caregiver. Health systems can be calibrated by aligning services from different settings to appropriate time points in the vignette, which illustrates the dynamic course of service delivery and opportunities for improvement throughout the disease trajectory.


Assuntos
Atenção à Saúde/normas , Demência/terapia , Adulto , Alberta , Cuidadores , Hospital Dia/normas , Feminino , Educação em Saúde/normas , Pessoal de Saúde , Serviços de Assistência Domiciliar/normas , Humanos , Masculino , Ontário , Médicos de Família , Encaminhamento e Consulta , Cuidados Intermitentes/normas , Apoio Social , Serviço Social
6.
BMC Palliat Care ; 15(1): 79, 2016 Aug 24.
Artigo em Inglês | MEDLINE | ID: mdl-27553776

RESUMO

BACKGROUND: Patients' perceptions of care quality within and across settings are important for the further development of palliative care. The aim was to investigate patients' perceptions of palliative care quality within settings, including perceptions of care received and their subjective importance, and contrast palliative care quality across settings. METHOD: A cross-sectional study including 191 patients in late palliative phase (73 % response rate) admitted to hospice inpatient care, hospice day care, palliative units in nursing homes, and home care was conducted, using the Quality from the Patients' Perspective instrument-palliative care (QPP-PC). QPP-PC comprises four dimensions and 12 factors; "medical-technical competence" (MT) (2 factors), "physical-technical conditions" (PT) (one factor), "identity-orientation approach" (ID) (4 factors), "sociocultural atmosphere" (SC) (5 factors), and three single items (S); medical care, personal hygiene and atmosphere. Data were analysed using paired-samples t-test and analysis of covariance while controlling for differences in patient characteristics. RESULTS: Patients' perceptions of care received within settings showed high scores for the factors and single items "honesty" (ID) and "atmosphere" (S) in all settings and low scores for "exhaustion" (MT) in three out of four settings. Patients' perceptions of importance scored high for "medical care" (S), "honesty" (ID), "respect and empathy" (ID) and "atmosphere" (S) in all settings. No aspects of care scored low in all settings. Importance scored higher than perceptions of care received, in particular for receiving information. Patients' perceptions of care across settings differed, with highest scores in hospice inpatient care for the dimensions; ID, SC, and "medical care" (S), the SC and "atmosphere" (S) for hospice day care, and "medical care" (S) for palliative units in nursing homes. There were no differences in subjective importance across settings. CONCLUSION: Strengths of services related to identity-orientation approach and a pleasant and safe atmosphere. Key areas for improvement related to receiving information. Perceptions of subjective importance did not differ across settings, but perceptions of care received scored higher in more care areas for hospice inpatient care, than in other settings. Further studies are needed to support these findings, to investigate why perceptions of care differ across settings and to highlight what can be learned from settings receiving high scores.


Assuntos
Atitude Frente a Saúde , Hospital Dia/normas , Serviços de Assistência Domiciliar/normas , Cuidados Paliativos na Terminalidade da Vida/normas , Hospitais para Doentes Terminais/normas , Casas de Saúde/normas , Cuidados Paliativos/normas , Qualidade da Assistência à Saúde , Adulto , Idoso , Idoso de 80 Anos ou mais , Esclerose Lateral Amiotrófica , Competência Clínica , Estudos Transversais , Empatia , Feminino , Insuficiência Cardíaca , Hospitalização , Humanos , Masculino , Pessoa de Meia-Idade , Esclerose Múltipla , Neoplasias , Noruega , Doença de Parkinson , Doença Pulmonar Obstrutiva Crônica , Meio Social , Inquéritos e Questionários
7.
J Appl Res Intellect Disabil ; 29(5): 481-92, 2016 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-26040435

RESUMO

BACKGROUND: Trauma-informed care (TIC) is a systems-level philosophy of service delivery which integrates choice, collaboration, empowerment, safety and trust to create an organizational culture sensitive to trauma. This study explores staff understandings and perceptions within an innovative trauma-informed day program for individuals with Intellectual/developmental disabilities. METHODS: Semi-structured interviews queried staff members (n = 20) regarding trauma and TIC, the integration of the five principles of TIC, associated challenges and recommendations for improvement. RESULTS: Inductive analyses revealed reasonable understandings of trauma and TIC, highlighting factors critical to the five principles of TIC. Differences were associated with duration of employment and the presence of specialized training. Challenges with TIC emerged at different system levels: individuals, staff, management and interorganizational. CONCLUSIONS: This study presents preliminary insight for the innovative and formative process of integrating TIC with intellectual/developmental disabilities services.


Assuntos
Atitude do Pessoal de Saúde , Cuidadores/normas , Deficiências do Desenvolvimento/enfermagem , Conhecimentos, Atitudes e Prática em Saúde , Deficiência Intelectual/enfermagem , Trauma Psicológico/psicologia , Adulto , Hospital Dia/normas , Feminino , Humanos , Masculino , Adulto Jovem
8.
J Intellect Disabil ; 20(2): 183-93, 2016 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-26920751

RESUMO

Whilst personalization offers the promise of more choice and control and wider participation in the community, the reality in the United Kingdom has been hampered by local council cuts and a decline in formal services. This has left many people with intellectual disabilities feeling dislocated from collective forms of support (Needham, 2015). What fills this gap and does peer advocacy have a role to play? Drawing on a co-researched study undertaken with and by persons with intellectual disabilities, we examined what role peer advocacy can play in a context of reduced day services, austerity and individualized support. The findings reveal that peer advocacy can help people reconnect in the face of declining services, problem-solve issues and informally learn knowledge and skills needed to participate in the community. We argue that peer advocacy thus offers a vital role in enabling people to take up many of the opportunities afforded by personalization.


Assuntos
Hospital Dia/normas , Vida Independente/normas , Defesa do Paciente/normas , Assistência Centrada no Paciente/normas , Grupo Associado , Apoio Social , Seguridade Social , Adulto , Humanos , Reino Unido
9.
BMC Psychiatry ; 15: 165, 2015 Jul 22.
Artigo em Inglês | MEDLINE | ID: mdl-26198855

RESUMO

BACKGROUND: There is an increasing amount of evidence for the effectiveness of rehabilitation interventions for people with severe mental illness (SMI). In the Netherlands, a rehabilitation methodology that is well known and often applied is the Comprehensive Approach to Rehabilitation (CARe) methodology. The overall goal of the CARe methodology is to improve the client's quality of life by supporting the client in realizing his/her goals and wishes, handling his/her vulnerability and improving the quality of his/her social environment. The methodology is strongly influenced by the concept of 'personal recovery' and the 'strengths case management model'. No controlled effect studies have been conducted hitherto regarding the CARe methodology. METHODS/DESIGN: This study is a two-armed cluster randomized controlled trial (RCT) that will be executed in teams from three organizations for sheltered and supported housing, which provide services to people with long-term severe mental illness. Teams in the intervention group will receive the multiple-day CARe methodology training from a specialized institute and start working according the CARe Methodology guideline. Teams in the control group will continue working in their usual way. Standardized questionnaires will be completed at baseline (T0), and 10 (T1) and 20 months (T2) post baseline. Primary outcomes are recovery, social functioning and quality of life. The model fidelity of the CARe methodology will be assessed at T1 and T2. DISCUSSION: This study is the first controlled effect study on the CARe methodology and one of the few RCTs on a broad rehabilitation method or strength-based approach. This study is relevant because mental health care organizations have become increasingly interested in recovery and rehabilitation-oriented care. TRIAL REGISTRATION: The trial registration number is ISRCTN77355880 .


Assuntos
Transtornos Mentais/reabilitação , Adulto , Administração de Caso/normas , Análise por Conglomerados , Hospital Dia/normas , Humanos , Países Baixos , Qualidade da Assistência à Saúde , Qualidade de Vida , Meio Social , Inquéritos e Questionários , Resultado do Tratamento
10.
Cochrane Database Syst Rev ; (6): CD001730, 2015 Jun 23.
Artigo em Inglês | MEDLINE | ID: mdl-26102196

RESUMO

BACKGROUND: The proportion of the world's population aged over 60 years is increasing. Therefore, there is a need to examine different methods of healthcare provision for this population. Medical day hospitals provide multidisciplinary health services to older people in one location. OBJECTIVES: To examine the effectiveness of medical day hospitals for older people in preventing death, disability, institutionalisation and improving subjective health status. SEARCH METHODS: Our search included the Cochrane Effective Practice and Organisation of Care (EPOC) Group Register of Studies, CENTRAL (2013, Issue 7), MEDLINE via Ovid (1950-2013 ), EMBASE via Ovid (1947-2013) and CINAHL via EbscoHost (1980-2013). We also conducted cited reference searches, searched conference proceedings and trial registries, hand searched select journals, and contacted relevant authors and researchers to inquire about additional data. SELECTION CRITERIA: Randomised and quasi-randomised trials comparing medical day hospitals with alternative care for older people (mean/median > 60 years of age). DATA COLLECTION AND ANALYSIS: Two authors independently assessed trial eligibility and risk of bias and extracted data from included trials. We used standard methodological procedures expected by the Cochrane Collaboration. Trials were sub-categorised as comprehensive care, domiciliary care or no comprehensive care. MAIN RESULTS: Sixteen trials (3689 participants) compared day hospitals with comprehensive care (five trials), domiciliary care (seven trials) or no comprehensive care (four trials). Overall there was low quality evidence from these trials for the following results.For the outcome of death, there was no strong evidence for or against day hospitals compared to other treatments overall (odds ratio (OR) 1.05; 95% CI 0.85 to 1.28; P = 0.66), or to comprehensive care (OR 1.26; 95% CI 0.87 to 1.82; P = 0.22), domiciliary care (OR 0.97; 95% CI 0.61 to 1.55; P = 0.89), or no comprehensive care (OR 0.88; 95% CI 0.63 to 1.22; P = 0.43).For the outcome of death or deterioration in activities of daily living (ADL), there was no strong evidence for day hospital attendance compared to other treatments (OR 1.07; 95% CI 0.76 to 1.49; P = 0.70), or to comprehensive care (OR 1.18; 95% CI 0.63 to 2.18; P = 0.61), domiciliary care (OR 1.41; 95% CI 0.82 to 2.42; P = 0.21) or no comprehensive care (OR 0.76; 95% CI 0.56 to 1.05; P = 0.09).For the outcome of death or poor outcome (institutional care, dependency, deterioration in physical function), there was no strong evidence for day hospitals compared to other treatments (OR 0.92; 95% CI 0.74 to 1.15; P = 0.49), or compared to comprehensive care (OR 1.05; 95% CI 0.79 to 1.40; P = 0.74) or domiciliary care (OR 1.08; 95% CI 0.67 to 1.74; P = 0.75). However, compared with no comprehensive care there was a difference in favour of day hospitals (OR 0.72; 95% CI 0.53 to 0.99; P = 0.04).For the outcome of death or institutional care, there was no strong evidence for day hospitals compared to other treatments overall (OR 0.85; 95% CI 0.63 to 1.14; P = 0.28), or to comprehensive care (OR 1.00; 95% CI 0.69 to 1.44; P = 0.99), domiciliary care (OR 1.05; 95% CI 0.57 to1.92; P = 0. 88) or no comprehensive care (OR 0.63; 95% CI 0.40 to 1.00; P = 0.05).For the outcome of deterioration in ADL, there was no strong evidence that day hospital attendance had a different effect than other treatments overall (OR 1.11; 95% CI 0.68 to 1.80; P = 0.67) or compared with comprehensive care (OR 1.21; 0.58 to 2.52; P = 0.61), or domiciliary care (OR 1.59; 95% CI 0.87 to 2.90; P = 0.13). However, day hospital patients showed a reduced odds of deterioration compared with those receiving no comprehensive care (OR 0.61; 95% CI 0.38 to 0.97; P = 0.04) and significant subgroup differences (P = 0.04).For the outcome of requiring institutional care, there was no strong evidence for day hospitals compared to other treatments (OR 0.84; 95% CI 0.58 to 1.21; P = 0.35), or to comprehensive care (OR 0.91; 95% CI 0.70 to 1.19; P = 0.49), domiciliary care (OR 1.49; 95% CI 0.53 to 4.25; P = 0.45), or no comprehensive care (OR 0.58; 95% CI 0.28 to 1.20; P = 0.14). AUTHORS' CONCLUSIONS: There is low quality evidence that medical day hospitals appear effective compared to no comprehensive care for the combined outcome of death or poor outcome, and for deterioration in ADL. There is no clear evidence for other outcomes, or an advantage over other medical care provision.


Assuntos
Hospital Dia/normas , Geriatria , Serviços de Saúde para Idosos/estatística & dados numéricos , Atividades Cotidianas , Idoso , Hospital Dia/estatística & dados numéricos , Pesquisa sobre Serviços de Saúde , Serviços de Assistência Domiciliar/normas , Humanos , Ensaios Clínicos Controlados Aleatórios como Assunto , Resultado do Tratamento
11.
J Intellect Disabil Res ; 59(10): 882-90, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25707899

RESUMO

BACKGROUND: In our proposed model, family members' perceptions of service quality in organisations improve communication about self-determination. In turn, family perceptions of communication openness have a positive relationship with self-determination attitudes of family members. Finally, these attitudes predict self-determination behaviours of individuals with intellectual disability, as reported by family members. METHOD: We tested this model with a sample of 625 family members (196 using 'day care services' and 429 using 'occupational services'). RESULTS: Multi-sample structural equation modelling (SEM) supported the model. Communication and attitudes fully mediated the link from service quality to self-determination behaviours. CONCLUSIONS: Improving family members' perceptions of service quality and opening channels of communication between professionals and family members are useful strategies to facilitate parents' positive attitudes and increase the frequency of self-determination behaviours at home.


Assuntos
Hospital Dia/normas , Família , Deficiência Intelectual , Autonomia Pessoal , Qualidade da Assistência à Saúde/normas , Reabilitação Vocacional/normas , Idoso , Feminino , Humanos , Deficiência Intelectual/enfermagem , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Masculino , Pessoa de Meia-Idade
12.
Fortschr Neurol Psychiatr ; 83(11): 616-20, 2015 Nov.
Artigo em Alemão | MEDLINE | ID: mdl-26633840

RESUMO

OBJECTIVE: The aim of the study was to summarize and evaluate the recent literature on treatment in psychiatric day clinics, and to assess the importance of such clinics in the current healthcare system. METHOD: We conducted a systematic review of recent studies in order to compare the efficacy and cost effectiveness of day clinics in relation to in- and outpatient treatment. RESULTS: The evidence is still sparse and inconclusive. CONCLUSION: Psychiatric day clinics act as a link between inpatient and outpatient treatment in community mental healthcare. However, evidence in support of the efficacy and cost-effectiveness of day clinics is still sparse.


Assuntos
Hospital Dia/normas , Assistência Centrada no Paciente/normas , Psiquiatria/normas , Humanos , Transtornos Mentais/terapia , Resultado do Tratamento
13.
Z Kinder Jugendpsychiatr Psychother ; 43(6): 387-95, 2015 Nov.
Artigo em Alemão | MEDLINE | ID: mdl-26602044

RESUMO

The German Psychiatry Personnel Act, which went into effect in 1990, has led to a decrease in the number of child and adolescent psychiatry inpatient beds, to a decrease in the length of stay, and to an increase in inpatient psychotherapy. Today, this act is outdated~ for a number of reasons, such as changes in the morbidity of the population, the rising number of emergencies, and new professional standards such as documentation. In addition, new legal provisions and conventions (like the UN Convention on the Rights of the Child) necessitate a complete reevaluation. Child and adolescent psychiatry needs a normative act to enable the necessary implementation. Many different rationales are available to support the debate.


Assuntos
Psiquiatria do Adolescente/organização & administração , Psiquiatria do Adolescente/normas , Psiquiatria Infantil/organização & administração , Psiquiatria Infantil/normas , Hospital Dia/organização & administração , Hospital Dia/normas , Diretrizes para o Planejamento em Saúde , Necessidades e Demandas de Serviços de Saúde/organização & administração , Necessidades e Demandas de Serviços de Saúde/normas , Hospitalização/tendências , Equipe de Assistência ao Paciente/organização & administração , Equipe de Assistência ao Paciente/normas , Garantia da Qualidade dos Cuidados de Saúde/organização & administração , Garantia da Qualidade dos Cuidados de Saúde/normas , Adolescente , Psiquiatria do Adolescente/tendências , Criança , Psiquiatria Infantil/tendências , Hospital Dia/tendências , Previsões , Alemanha , Acessibilidade aos Serviços de Saúde/organização & administração , Acessibilidade aos Serviços de Saúde/normas , Acessibilidade aos Serviços de Saúde/tendências , Necessidades e Demandas de Serviços de Saúde/tendências , Humanos , Tempo de Internação/tendências , Programas Nacionais de Saúde/tendências , Equipe de Assistência ao Paciente/tendências , Psicoterapia/organização & administração , Psicoterapia/normas , Garantia da Qualidade dos Cuidados de Saúde/tendências
14.
J Intellect Disabil Res ; 57(8): 703-15, 2013 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-22845742

RESUMO

BACKGROUND: The quality of support provided to people with disability who show challenging behaviour could be influenced by the quality of the behaviour support plans (BSPs) on which staff rely for direction. This study investigated the content validity of the Behaviour Support Plan Quality Evaluation tool (BSP-QEII), originally developed to guide the development of BSPs for children in school settings, and evaluated its application for use in accommodation and day-support services for adults with intellectual disability. METHOD: A three-round Delphi study involving a purposive sample of experienced behaviour support practitioners (n = 30) was conducted over an 8-week period. The analyses included deductive content analysis and descriptive statistics. RESULTS: The 12 quality domains of the BSP-QEII were affirmed as valid for application in adult accommodation and day-support service settings. Two additional quality domains were suggested, relating to the provision of detailed background on the client and the need for plans to reflect contemporary service philosophy. Furthermore, the results suggest that some issues previously identified in the literature as being important for inclusion in BSPs might not currently be a priority for practitioners. These included: the importance of specifying replacement or alternative behaviours to be taught, descriptions of teaching strategies to be used, reinforcers, and the specification of objective goals against which to evaluate the success of the intervention programme. CONCLUSIONS: The BSP-QEII provides a potentially useful framework to guide and evaluate the development of BSPs in services for adults with intellectual disability. Further research is warranted to investigate why practitioners are potentially giving greater attention to some areas of intervention practice than others, even where research has demonstrated these others areas of practice could be important to achieving quality outcomes.


Assuntos
Terapia Comportamental/normas , Hospital Dia/normas , Deficiência Intelectual/terapia , Comportamento Problema/psicologia , Garantia da Qualidade dos Cuidados de Saúde/estatística & dados numéricos , Apoio Social , Adulto , Técnicas de Observação do Comportamento/estatística & dados numéricos , Causalidade , Técnica Delphi , Feminino , Humanos , Deficiência Intelectual/diagnóstico , Deficiência Intelectual/psicologia , Masculino , Pessoa de Meia-Idade , Psicometria/estatística & dados numéricos , Indicadores de Qualidade em Assistência à Saúde/estatística & dados numéricos , Reprodutibilidade dos Testes , Adulto Jovem
15.
J Intellect Disabil Res ; 57(8): 716-27, 2013 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-22845772

RESUMO

BACKGROUND: Having an objective means of evaluating the quality of behaviour support plans (BSPs) could assist service providers and statutory authorities to monitor and improve the quality of support provided to people with intellectual disability (ID) who exhibit challenging behaviour. The Behaviour Support Plan Quality Evaluation Guide II (BSP-QEII) was developed to monitor and assess BSPs prepared by teachers to support children with disability in the school system. This study investigated the application of the BSP-QEII to the assessment of BSPs for adults with ID in community support services. METHOD: The inter-rater reliability of the BSP-QEII was assessed. The utility of the BPS-QEII was then investigated with reference to a time series study of matched pairs of BSPs, developed for the same clients over a period of approximately 3 years. Differences in plan quality measured across a number of service and systemic variables were also investigated. RESULTS: The BSP-QEII was found to have good inter-rater reliability and good utility for audit purposes. It was able to discriminate changes in plan quality over time. Differences in plan quality were also evident across different service types, where specialist staff had or had not been involved, and in some instances where a statutory format for the plan had or had not been used. There were no differences between plans developed by government and community sector agencies, nor were there any regional differences across the jurisdiction. CONCLUSIONS: The BSP-QEII could usefully be adopted as an audit tool for measuring the quality of BSPs for adults with ID. In addition to being used for research and administrative auditing, the principles underpinning the BSP-QEII could also be useful to guide policy and educational activities for staff in community based services for adults with ID.


Assuntos
Terapia Comportamental/normas , Hospital Dia/normas , Deficiência Intelectual/terapia , Auditoria Administrativa/estatística & dados numéricos , Comportamento Problema/psicologia , Garantia da Qualidade dos Cuidados de Saúde/estatística & dados numéricos , Melhoria de Qualidade/normas , Apoio Social , Adulto , Técnicas de Observação do Comportamento , Causalidade , Técnica Delphi , Feminino , Humanos , Deficiência Intelectual/diagnóstico , Deficiência Intelectual/psicologia , Masculino , Pessoa de Meia-Idade , Variações Dependentes do Observador , Psicometria/estatística & dados numéricos , Reprodutibilidade dos Testes
16.
Aging Ment Health ; 17(8): 942-51, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23621774

RESUMO

BACKGROUND: Researchers have demonstrated that adult day services (ADS) benefit elders with dementia and their caregivers, but they have also observed infantilization that diminishes personhood. Many ADS are socially constructed as places for incompetent elders, where clients are labeled as child-like dependents. Most ADS research has been performed in Western society; little is known about ADS in Asian countries. The Taiwanese Government seeks to expand ADS availability to meet the needs of an aging population; researchers must examine their ADS environments and practices to inform program development and expansion that supports respectful elder care. OBJECTIVES: Elders' experiences of daily life were examined within the physical and social environments of one social and one medical model ADS in Taiwan. The ecological model and place rules informed our research framework. METHODS: Ethnographic data were analyzed for themes reflecting our framework with attention to physical and social environment and staff-client interactions. RESULTS: The social model center included unique environmental features, such as a temple, indicating the purpose of different areas. Staff treated clients like family, sometimes to clients' detriment, providing limited privacy and demanding compulsory activity participation. The medical model center with nurse's station and institutional furniture reflected a hospital-like environment and fostered a patient-nurse relationship. Staff inattention actually created opportunities for autonomy among some clients. CONCLUSION AND DISCUSSION: Physical features and social interactions within Taiwanese ADS reflected infantilization similar to that seen in the US and uniquely embedded within a traditional cultural background. Our findings reveal a tension between physical and social care features reflecting Eastern traditions of respect for elders and western traditions of institutional care.


Assuntos
Hospital Dia/normas , Demência/enfermagem , Demência/psicologia , Instituição de Longa Permanência para Idosos/normas , Meio Social , Idoso , Idoso de 80 Anos ou mais , Demência/etnologia , Feminino , Humanos , Masculino , Modelos de Enfermagem , Relações Enfermeiro-Paciente , Privacidade/psicologia , Taiwan/etnologia
17.
Aging Ment Health ; 17(2): 207-14, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23020155

RESUMO

OBJECTIVES: The purpose of this study was to understand the degree to which mental health services targeting anxiety and depression disorders are offered by adult day services (ADS) centers in the US. In addition, researchers wanted to determine whether staffing and organizational characteristics are associated with the provision of medication management, individual counseling, and group counseling for participants with anxiety or depression. METHOD: Data were drawn from the MetLife National Study of ADS. Hierarchical logistic regression analyses were conducted to determine which staffing and organizational factors were associated with the provision of services to treat anxiety and depression. RESULTS: Approximately, three in four adult day programs provided medication management for the treatment of anxiety and depression while 38% provided individual counseling and almost 30% group counseling. Programs offering medication management were more likely to have more registered nurse (RN) service hours available per shift and higher costs. Programs that provided individual and group counseling for participants with anxiety or depression were more likely to have more hours of RN and social work services available and a lower percentage of participants who pay privately for services. CONCLUSION: The results suggest that ADS are well positioned to act as a platform for delivering mental health care to older persons with anxiety or depression.


Assuntos
Transtornos de Ansiedade , Hospital Dia , Transtorno Depressivo , Aconselhamento Diretivo , Qualidade da Assistência à Saúde , Idoso , Idoso de 80 Anos ou mais , Transtornos de Ansiedade/economia , Transtornos de Ansiedade/enfermagem , Transtornos de Ansiedade/terapia , Hospital Dia/métodos , Hospital Dia/normas , Hospital Dia/estatística & dados numéricos , Atenção à Saúde/métodos , Atenção à Saúde/organização & administração , Transtorno Depressivo/economia , Transtorno Depressivo/enfermagem , Transtorno Depressivo/terapia , Aconselhamento Diretivo/métodos , Aconselhamento Diretivo/estatística & dados numéricos , Feminino , Humanos , Masculino , Conduta do Tratamento Medicamentoso/normas , Conduta do Tratamento Medicamentoso/estatística & dados numéricos , Serviços de Saúde Mental/organização & administração , Admissão e Escalonamento de Pessoal/organização & administração , Psicoterapia de Grupo/métodos , Psicoterapia de Grupo/estatística & dados numéricos , Estados Unidos
18.
Psychother Res ; 23(3): 277-86, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-22989039

RESUMO

The purpose of the study was to compare the effectiveness of 4-day versus 5-day day hospital (DH) treatment and to document effectiveness based on a large sample size. Participants were 801 patients, diagnosed with an eating disorder, who participated in DH treatment from 1985 to 2009. The study followed a sequential cohort ABA design. Higher intensity DH was associated with higher rates of abstinence from bingeing and vomiting and larger improvements in depression and body dissatisfaction. Higher intensity DH provided no consistent advantage in rates of weight restoration or improvement on other indices of psychological functioning. These findings suggest that the optimal intensity of treatment may vary depending on treatment goals, but 5-day DH is recommended for eating disorders.


Assuntos
Hospital Dia/métodos , Transtornos da Alimentação e da Ingestão de Alimentos/terapia , Psicoterapia de Grupo/métodos , Adolescente , Adulto , Estudos de Coortes , Hospital Dia/economia , Hospital Dia/normas , Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Feminino , Humanos , Pessoa de Meia-Idade , Psicoterapia de Grupo/economia , Psicoterapia de Grupo/normas , Fatores de Tempo , Resultado do Tratamento , Adulto Jovem
19.
Psychiatr Danub ; 25 Suppl 2: S194-9, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23995175

RESUMO

BACKGROUND: Presently few studies demonstrate improved outcomes in patients with schizophrenia treated in day rehabilitation centres. One reason is the absence of an evidence based protocol for rehabilitation in such centres. Hence further research is required to assess whether such a protocol will improve psychosocial outcomes. AIMS: We performed a controlled evaluation study of a protocol based rehabilitation day program (RDC) for persons suffering from schizophrenia. METHODS: Patients from the experimental group (N=50) were treated within the RDC for a 6 month period. The control group were patients on the waiting list for the RDC. Quality of life (MANSA), social functioning (OSA) and self-esteem (Rosenberg) were measured before and after the intervention. RESULTS: Statistically significant improvement was shown in social functioning measured by OSA (F(1,96)=33.7; p<0.001), quality of life measured by MANSA (F(1,96)=69.3; p<0.001) and self esteem measured by Rosenberg scale (F(1,96)=84.5; p<0.001) for patients treated in the RDC compared with the control group, conversely, the control group outcomes deteriorated. CONCLUSION: An evidence based protocol for rehabilitation within the RDC lead to improved social outcomes and recovery for persons suffering from schizophrenia.


Assuntos
Protocolos Clínicos/normas , Hospital Dia/normas , Esquizofrenia/reabilitação , Adulto , Hospital Dia/métodos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Qualidade de Vida , Autoimagem , Ajustamento Social , Resultado do Tratamento
20.
Int J Palliat Nurs ; 18(6): 275-81, 2012 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-22885900

RESUMO

This paper reports on a system of managing admissions and discharges from a specialist palliative day hospice (SPDH) in the south of England. SPDH is a well established component of palliative care provision in the UK, but studies have rarely addressed issues around admission and discharge. Case study methodology was used to evaluate the programme. Interviews were conducted with five patients who had attended the day hospice, taken a break or been discharged and returned; their carer(s); the key worker from the day hospice; and any other health professional who was involved in the patient's care during the admission. Communication issues were found within the team regarding referral and discharge processes, documentation of care, decision making, and information giving. Family members did not feel involved in decision making in relation to the programme. The most significant finding was the emotional and psychological impact on the patients of taking the break. Discharge from SPDH is known to be a difficult and sensitive issue, especially when patients are living with life-limiting illnesses that can change quickly. The patients in this study all had some form of dependency on the service and four of the five would have chosen to continue attending if they could. They experienced deterioration in psychological and physical wellbeing during the period in which they did not attend.


Assuntos
Hospital Dia/normas , Hospitais para Doentes Terminais , Cuidados Paliativos , Admissão do Paciente/normas , Equipe de Assistência ao Paciente/organização & administração , Alta do Paciente/normas , Idoso , Idoso de 80 Anos ou mais , Comunicação , Feminino , Humanos , Entrevistas como Assunto , Masculino , Estudos de Casos Organizacionais , Avaliação de Programas e Projetos de Saúde , Reino Unido
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