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Who Are the People in Your Neighborhood? Personas Populating Unregulated mHealth Research.
Doerr, Megan; Guerrini, Christi.
Afiliação
  • Doerr M; Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance, at Sage Bionetworks. Her work focuses on app-based research, including the ELSI issues of informed consent, research participation, and data sharing for secondary use. Christi Guerrini, J.D., M.P.H., is an Assistant Professor at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She has a K01 award from the National Human Genome Research Institute to study ownership interests in citizen science.
  • Guerrini C; Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance, at Sage Bionetworks. Her work focuses on app-based research, including the ELSI issues of informed consent, research participation, and data sharing for secondary use. Christi Guerrini, J.D., M.P.H., is an Assistant Professor at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She has a K01 award from the National Human Genome Research Institute to study ownership interests in citizen science.
J Law Med Ethics ; 48(1_suppl): 37-48, 2020 03.
Article em En | MEDLINE | ID: mdl-32342754

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Limite: Humans Idioma: En Ano de publicação: 2020 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Limite: Humans Idioma: En Ano de publicação: 2020 Tipo de documento: Article