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DRAVET ENGAGE. Parent caregivers of children with Dravet syndrome: Perspectives, needs, and opportunities for clinical research.
Juandó-Prats, Clara; James, Emma; Bilder, Deborah A; McNair, Lindsay; Kenneally, Noah; Helfer, Jennifer; Huang, Norman; Vila, Maria Candida; Sullivan, Joseph; Wirrell, Elaine; Rico, Salvador.
Afiliação
  • Juandó-Prats C; Dalla Lana School of Public Health, University of Toronto, ON, Canada; Applied Health Research Center, St. Michael's Hospital, Unity Health Toronto, ON, Canada. Electronic address: clara.juando@utoronto.ca.
  • James E; Encoded Therapeutics, Inc., South San Francisco, CA, USA.
  • Bilder DA; University of Utah, Salt Lake City, UT, USA.
  • McNair L; WIRB-Copernicus Group, Princeton, NJ, USA.
  • Kenneally N; Humane Services and Early Learning, MacEwan University, Edmonton, AB, Canada.
  • Helfer J; Encoded Therapeutics, Inc., South San Francisco, CA, USA.
  • Huang N; Encoded Therapeutics, Inc., South San Francisco, CA, USA.
  • Vila MC; Encoded Therapeutics, Inc., South San Francisco, CA, USA.
  • Sullivan J; University of California, San Francisco Benioff Children's Hospital, San Francisco, CA, USA.
  • Wirrell E; Divisions of Child and Adolescent Neurology and Epilepsy, Department of Neurology, Mayo Clinic, Rochester, MN, USA.
  • Rico S; Encoded Therapeutics, Inc., South San Francisco, CA, USA.
Epilepsy Behav ; 122: 108198, 2021 09.
Article em En | MEDLINE | ID: mdl-34284219
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Adolescent / Adult / Child / Child, preschool / Humans / Infant Idioma: En Ano de publicação: 2021 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Adolescent / Adult / Child / Child, preschool / Humans / Infant Idioma: En Ano de publicação: 2021 Tipo de documento: Article