Your browser doesn't support javascript.
loading
A scoping review of information provided within degenerative cervical myelopathy education resources: Towards enhancing shared decision making.
Umeria, Rishi; Mowforth, Oliver; Grodzinski, Ben; Karimi, Zahabiya; Sadler, Iwan; Wood, Helen; Sangeorzan, Irina; Fagan, Petrea; Murphy, Rory; McNair, Angus; Davies, Benjamin.
Afiliação
  • Umeria R; Department of Clinical Neurosciences, Division of Neurosurgery, University of Cambridge, Cambridge, United Kingdom.
  • Mowforth O; Department of Clinical Neurosciences, Division of Neurosurgery, University of Cambridge, Cambridge, United Kingdom.
  • Grodzinski B; Myelopathy.org, Cambridge, United Kingdom.
  • Karimi Z; Department of Clinical Neurosciences, Division of Neurosurgery, University of Cambridge, Cambridge, United Kingdom.
  • Sadler I; Myelopathy.org, Cambridge, United Kingdom.
  • Wood H; Myelopathy.org, Cambridge, United Kingdom.
  • Sangeorzan I; Myelopathy.org, Cambridge, United Kingdom.
  • Fagan P; Myelopathy.org, Cambridge, United Kingdom.
  • Murphy R; School of Clinical Medicine, University of Cambridge, Cambridge, United Kingdom.
  • McNair A; Department of Neurosurgery, Barrow Neurological Institute, Phoenix, Arizona, United States of America.
  • Davies B; Centre for Surgical Research, Bristol Medical School: Population Health Sciences, University of Bristol, Bristol, United Kingdom.
PLoS One ; 17(5): e0268220, 2022.
Article em En | MEDLINE | ID: mdl-35588126
BACKGROUND: Degenerative cervical myelopathy (DCM) is a chronic neurological condition estimated to affect 1 in 50 adults. Due to its diverse impact, trajectory and management options, patient-centred care and shared decision making are essential. In this scoping review, we aim to explore whether information needs in DCM are currently being met in available DCM educational resources. This forms part of a larger Myelopathy.org project to promote shared decision making in DCM. METHODS: A search was completed encompassing MEDLINE, Embase and grey literature. Resources relevant to DCM were compiled for analysis. Resources were grouped into 5 information types: scientific literature, videos, organisations, health education websites and patient information leaflets. Resources were then further arranged into a hierarchical framework of domains and subdomains, formed through inductive analysis. Frequency statistics were employed to capture relative popularity as a surrogate marker of potential significance. RESULTS: Of 2674 resources, 150 information resources addressing DCM were identified: 115 scientific literature resources, 28 videos, 5 resources from health organisations and 2 resources from health education websites. Surgical management was the domain with the largest number of resources (66.7%, 100/150). The domain with the second largest number of resources was clinical presentation and natural history (28.7%, 43/150). Most resources (83.3%, 125/150) were designed for professionals. A minority (11.3% 17/150) were written for a lay audience or for a combined audience (3.3%, 5/150). CONCLUSION: Educational resources for DCM are largely directed at professionals and focus on surgical management. This is at odds with the needs of stakeholders in a lifelong condition that is often managed without surgery, highlighting an unmet educational need.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Systematic_reviews Limite: Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Systematic_reviews Limite: Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article