RESUMEN
BACKGROUND: People with SMI have often been excluded in advocacy efforts focused on physical health, health care and health and social policy. OBJECTIVE: Following a Photovoice project focused on barriers to healthy eating and physical activity in urban neighbourhoods, participant-researchers were invited to present their insights in community advocacy settings. The purpose of this study was to explore the feasibility and participant-researchers' experience of these community advocacy activities. DESIGN: We held four focus groups with the eight participant-researchers after each community advocacy activity to explore their experience with public speaking, presenting their experiences and advocating. SETTING AND PARTICIPANTS: People with serious mental illness who were overweight/obese living in supportive housing. ANALYSIS APPROACH: Qualitative analysis of the focus group transcripts, using a modified grounded theory approach followed by structured coding focused on empowerment, participation and non-discrimination. RESULTS: Participant-researchers gave three oral presentations of their photographs at a variety of community-based programmes and settings and participated in a rally to advocate for SNAP benefits. Two themes emerged from analysis: (a) Empowerment (the level of choice, influence and control that users of mental health services can exercise over events in their lives) and (b) Barriers to Empowerment (obstacles to participation and well-being). CONCLUSIONS: This evaluation strengthens the evidence that it is feasible for participant-researchers in Photovoice projects to engage in robust advocacy activities, such as presentations and discussions with local policymakers. During focus groups, participant-researchers demonstrated realistic optimism towards their roles as change agents and influencers in spite of acknowledged systemic barriers.
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Personas con Discapacidad , Justicia Social , Ejercicio Físico , Grupos Focales , Humanos , ObesidadRESUMEN
Background: Medication for opioid use disorder (MOUD) with buprenorphine is effective in treating opioid use disorder yet remains underutilized. Scant research has examined the experience of patients, clinic staff, and providers in a "low-threshold" group-based MOUD program. This study evaluates a "low-threshold" MOUD program at a federally qualified health center (FQHC) in Philadelphia, Pennsylvania through the perspectives of its key stakeholders. Methods: This qualitative study involved focus groups of patients, providers, and clinic staff. Focus groups were conducted between October 2017 and June 2018. Grounded theory was used for analysis. Results: There were a total of 10 focus groups, including 20 patient participants and 26 staff members. Program participants noted that a strength of the program is its person-centered harm reduction approach, which is reflected in the program's policies and design. Program participants discussed the programmatic design choices that facilitated their participation and engagement in the program: ease of access, integration into primary care, and group-based visit model. Challenges in program implementation included varying acceptance and understanding of harm reduction among staff, the unpredictability of clinic volume and workflow, and the need to balance access to primary care and MOUD. Conclusion: This group-based MOUD program's philosophy of person-centered harm reduction, low-barrier approach, the structure of group-based visits, and integrated care contributes to increased patient access and retention. Understanding the strengths and challenges of the program may be useful for other safety-net clinics considering a MOUD program.
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Buprenorfina , Trastornos Relacionados con Opioides , Buprenorfina/uso terapéutico , Combinación Buprenorfina y Naloxona/uso terapéutico , Reducción del Daño , Humanos , Tratamiento de Sustitución de Opiáceos , Trastornos Relacionados con Opioides/tratamiento farmacológico , PhiladelphiaRESUMEN
Objectives. To describe and report initial outcomes of a low-threshold, group-based primary care medication for opioid use disorder (OUD) program in a federally qualified health center.Methods. We performed a retrospective chart review of patients enrolled in the program from October 4, 2017, to October 3, 2018, in Philadelphia, Pennsylvania. The main outcome measure was time retained in treatment, defined as time from treatment initiation to unplanned treatment termination. Secondary outcomes were the relationships between treatment retention and cocaine use or housing status. We analyzed retention in treatment using Kaplan-Meier survival estimates.Results. The 3- and 6-month retention rates were 82% and 63%, respectively. The log-rank test showed no significant differences for comparisons between homeless versus not homeless (P = .25) and cocaine use versus no cocaine use (P = .12).Conclusions. The medication for OUD program engaged a large number of patients from marginalized groups. Three- and 6-month retention rates were comparable with those reported of other federally qualified health center populations.Public Health Implications. Integrating treatment of OUD into primary care shows promise for increasing access to and retention in medication for OUD services. The federally qualified health center payment structure supports the sustainability of the group visit model.
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Buprenorfina/uso terapéutico , Tratamiento de Sustitución de Opiáceos/estadística & datos numéricos , Trastornos Relacionados con Opioides/tratamiento farmacológico , Cooperación del Paciente/estadística & datos numéricos , Adulto , Trastornos Relacionados con Cocaína/epidemiología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Philadelphia , Atención Primaria de Salud/métodos , Estudios Retrospectivos , Resultado del Tratamiento , Poblaciones VulnerablesRESUMEN
OBJECTIVE: The effectiveness of the Peer-led Group Lifestyle Balance (PGLB) intervention, a 12-month manualized healthy lifestyle intervention delivered by peer specialists, was investigated in a sample of persons with serious mental illness who were overweight or obese and living in supportive housing. METHODS: The authors randomly assigned 314 participants from three supportive housing agencies to PGLB or usual care, with assessments at baseline and 6, 12, and 18 months. Outcomes were clinically significant changes from baseline in weight (≥5% weight loss), cardiorespiratory fitness (CRF; increase of ≥50 meters in the 6-minute walk test), and cardiovascular disease (CVD) risk reduction (clinically significant weight loss or CRF improvement). RESULTS: Most participants were from racial-ethnic minority groups (82%, N=255). The mean±SD baseline weight of this sample was 218.8±54.0 pounds, and the body mass index was 33.7±7.2. Compared with the usual care group, a larger proportion of the PGLB group achieved clinically significant changes in study outcomes at 12 and 18 months, but none of these changes was statistically significant. Outcomes differed by site: two sites reported no significant differences between the two groups, and one reported that PGLB significantly outperformed usual care on clinically significant weight loss at 18 months and CVD risk reduction at 6 and 12 months. CONCLUSIONS: The null findings indicate that PGLB was not superior to usual care in helping participants achieve clinically significant changes in weight, CRF, and CVD risk reduction at 12 and 18 months. Questions remain regarding how PGLB works, for whom, and in which settings.
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Personas con Mala Vivienda , Trastornos Mentales , Etnicidad , Estilo de Vida Saludable , Humanos , Trastornos Mentales/terapia , Grupos MinoritariosRESUMEN
Endometrial cancer is the leading cause of gynecologic cancer in the United States. Etiologically, endometrial carcinoma usually results from unopposed estrogen stimulation of the endometrium, although non-estrogen-related forms occur as well. The most common presentation of endometrial cancer is postmenopausal bleeding. A variety of diagnostic modalities are available to aid in the detection of the disease, each with its own strengths and limitations. These modalities include endometrial biopsy, ultrasonography, saline infusion sonography, and hysteroscopy. A definitive diagnosis requires pathologic confirmation via endometrial biopsy or dilatation and curettage. Surgical staging of endometrial cancer will dictate how physicians manage the condition. For most women, staging and initial treatment are accomplished with total hysterectomy, bilateral salpingo-oophorectomy, and peritoneal washings. Surgery, radiation, and chemotherapy play a role in treatment, depending on tumor stage and grade. At present, there are no recommendations for screening the general population.
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Neoplasias Endometriales/diagnóstico , Neoplasias Endometriales/terapia , Adulto , Femenino , Humanos , Persona de Mediana Edad , Factores de RiesgoRESUMEN
If your patient expresses interest in medical marijuana, you'll find evidence on maximizing benefit while minimizing risk. But be cautious: Data are often contradictory.
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Marihuana Medicinal , Humanos , Selección de PacienteRESUMEN
BACKGROUND: People with mental illness in the United States are almost twice as likely to be obese compared with those without a mental illness. Lifestyle factors, such as poor dietary choices and physical inactivity, are often cited as causes of obesity in this population, which limits the response to the obesity epidemic primarily to behavioral change interventions. In response, this project is grounded in a human rights framework to assure that the people most affected by the problem are included in understanding and addressing the problem. We sought to investigate social and structural factors that affect weight loss in partnership with community co-researchers enrolled in a group lifestyle program for overweight/obese people with serious mental illness (SMI) living in supportive housing settings. METHODS: Using Photovoice methodology, eight co-researchers identified barriers and facilitators to healthy living in their community over seven weekly sessions. RESULTS: Co-researchers selected 33 photos reflecting two overarching themes: 1) structural barriers, such as poor-quality food, high transportation costs, limited SNAP benefits, limits of food pantries, easy availability of tobacco and alcohol products, and limited places for exercise and 2) strategies for overcoming structural barriers. CONCLUSIONS: Co-researchers highlighted structural barriers that were a cause or consequence of food insecurity and situations that threaten the right to healthy food and opportunities for a healthy life. Co-researchers reported examples of knowledge and skills they learned through participation in the project that were used to overcome structural barriers to healthy eating and physical activity, and likely contributed to weight loss.
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Estilo de Vida Saludable , Trastornos Mentales/psicología , Fotograbar , Investigación Participativa Basada en la Comunidad/métodos , Conducta Alimentaria , Humanos , Trastornos Mentales/complicaciones , Obesidad/terapia , Programas de Reducción de Peso/métodosRESUMEN
Women with serious mental illness (SMI) have disproportionately worse breast cancer profiles than those of other women. The purpose of this project was to examine barriers to and facilitators of breast cancer screening, specifically in formerly homeless women with SMI using the participatory methodology of concept mapping. A series of three concept mapping focus groups were held with 27 women over the age of 40 with a diagnosis of a SMI who live in supportive housing programs, and with 16 housing program staff. Data from the focus groups were combined through multidimensional scaling to create a visual cluster map. Barriers and facilitators to mammography screening generated by the participants clustered into eight categories. Participants rated addressing educational issues as most important and feasible. Interventions designed to improve mammogram screening in this population should address patients' perception of personal risk and should target education and support systems as modifiable factors.
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Neoplasias de la Mama/prevención & control , Accesibilidad a los Servicios de Salud , Personas con Mala Vivienda/psicología , Mamografía/estadística & datos numéricos , Trastornos Mentales/epidemiología , Adulto , Análisis por Conglomerados , Formación de Concepto , Femenino , Grupos Focales , Personas con Mala Vivienda/estadística & datos numéricos , Humanos , PhiladelphiaRESUMEN
Advances in preconception and prenatal care have been successful in reducing risk in a number of areas. Folic acid supplementation, abstinence from alcohol, tight glycemic control in pre-gestational diabetics, and the administration of rhogham all have been successful in reducing individual risks. Unfortunately, overall perinatal morbidity and mortality has not decreased in the past two decades. In light of this, clinicians must remain abreast of the latest research and technological advances, and adopt those practices that improve outcomes. Continued critical appraisal of persistent racial and ethnic disparities may be useful in understanding and reversing current trends. Additionally we must continue to creatively develop instruments of quantifying those aspects of high quality prenatal care, which are unmeasurable. Furthermore, we must advocate on a local, state, and national level for improved services for our prenatal patients not just in the office and the hospital, but in their homes and communities.
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Atención Preconceptiva , Atención Prenatal , Consumo de Bebidas Alcohólicas , Femenino , Enfermedades Fetales/diagnóstico , Ácido Fólico/administración & dosificación , Promoción de la Salud , Humanos , Fenómenos Fisiologicos Nutricionales Maternos , Embarazo , Complicaciones del Embarazo/diagnóstico , Complicaciones del Embarazo/terapia , Diagnóstico Prenatal , Cese del Hábito de FumarRESUMEN
BACKGROUND: People with histories of homelessness and serious mental illness experience profound health disparities. Housing First is an evidenced-based practice that is working to end homelessness for these individuals through a combination of permanent housing and community-based supports. METHODS: The Jefferson Department of Family and Community Medicine and a Housing First agency, Pathways to Housing-PA, has formed a partnership to address multiple levels of health care needs for this group. We present a preliminary program evaluation of this partnership using the framework of the patient-centered medical home and the "10 Essential Public Health Services." RESULTS: Preliminary program evaluation results suggest that this partnership is evolving to function as an integrated person-centered health home and an effective local public health monitoring system. CONCLUSION: The Pathways to Housing-PA/Jefferson Department of Family and Community Medicine partnership represents a community of solution, and multiple measures provide preliminary evidence that this model is feasible and can address the "grand challenges" of integrated community health services.
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Conducta Cooperativa , Disparidades en Atención de Salud/organización & administración , Vivienda , Personas con Mala Vivienda , Comunicación Interdisciplinaria , Atención Dirigida al Paciente/organización & administración , Atención Primaria de Salud/organización & administración , Trastornos Psicóticos/rehabilitación , Administración en Salud Pública , Servicio Social/organización & administración , Atención no Remunerada , Adulto , Anciano , Enfermedad Crónica/epidemiología , Enfermedad Crónica/rehabilitación , Comorbilidad , Estudios Transversales , Atención a la Salud/organización & administración , Prestación Integrada de Atención de Salud/organización & administración , Estudios de Factibilidad , Femenino , Accesibilidad a los Servicios de Salud/organización & administración , Investigación sobre Servicios de Salud/organización & administración , Personas con Mala Vivienda/estadística & datos numéricos , Humanos , Masculino , Persona de Mediana Edad , Pennsylvania , Servicios Preventivos de Salud/organización & administración , Evaluación de Programas y Proyectos de Salud , Trastornos Psicóticos/epidemiología , Vigilancia en Salud Pública , Garantía de la Calidad de Atención de Salud/organización & administraciónRESUMEN
BACKGROUND: Tenants of supportive housing have a high burden of chronic health conditions. OBJECTIVES: To examine the feasibility of developing a tenant-involved health promotion initiative within a "housing first" agency using a community-based participatory research (CBPR) framework. METHODS: Qualitative analyses of nine research capacity-building group meetings and fifteen individual pre- and post-interviews with those who completed a chronic disease self-management program, resulting in the development of several themes. RESULTS: Tenants of supportive housing successfully partnered with health care providers to implement a chronic disease self-management program, noting that "health care becomes 'relevant' with housing." CONCLUSIONS: Supportive housing organizations are well-situated to implement health promotion initiatives. Such publicly subsidized housing that is accompanied by comprehensive supports must also include self-management training to help people overcome both internal and external barriers to addressing chronic health needs.
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Promoción de la Salud/organización & administración , Disparidades en Atención de Salud , Personas con Mala Vivienda , Enfermos Mentales , Vivienda Popular , Creación de Capacidad/métodos , Enfermedad Crónica , Investigación Participativa Basada en la Comunidad , Femenino , Promoción de la Salud/métodos , Humanos , Entrevistas como Asunto , Masculino , Asistencia Pública/economía , Asistencia Pública/normas , Investigación Cualitativa , Autocuidado , Apoyo Social , Estados UnidosRESUMEN
With the growing burden of chronic disease, the medical and public health communities are re-examining their roles and opportunities for more effective prevention and clinical interventions. The potential to significantly improve chronic disease prevention and have an impact on morbidity and mortality from chronic conditions is enhanced by adopting strategies that incorporate a social ecology perspective, realigning the patient-physician relationship, integrating population health perspectives into the Chronic Care Model, and effectively engaging communities using established principles of community engagement.
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Redes Comunitarias/organización & administración , Conducta Cooperativa , Diabetes Mellitus/tratamiento farmacológico , Manejo de la Enfermedad , Modelos Organizacionales , Enfermedad Crónica , Diabetes Mellitus/prevención & control , Humanos , Estado NutricionalAsunto(s)
Servicios de Salud Comunitaria/organización & administración , Negro o Afroamericano , Personas con Mala Vivienda , Humanos , Relaciones Interinstitucionales , Masculino , Neoplasias de la Próstata/prevención & control , Apoyo Social , Factores Socioeconómicos , Accidente Cerebrovascular/prevención & controlRESUMEN
Housing First (HF) is an evidence-based practice that ends chronic homelessness for individuals with serious mental illness by providing immediate access to permanent independent housing and team-based community supports. Little is known about the health status of homeless individuals entering HF programs. Through a cross-sectional analysis, this paper reports on the chronic physical disease burden of people entering a newly established HF program and examines whether these individuals recognize and request support for ongoing health-related issues. The authors' evaluation confirmed significantly higher rates of chronic disease (60%) and fair/poor self-reported health status (47%) than the general urban population of Philadelphia. The majority of clients reported they wanted to address both medical (67%) and mental health (68%) problems, but a much lower percentage reported wanting to reduce substance use (23%) or take psychiatric medications (25%). The authors conclude that formerly homeless entrants to HF programs have a high burden of chronic disease with complex health-related needs. Additionally, these individuals look to the program for health-related assistance. As the HF model is disseminated throughout the United States to end chronic homelessness, these findings support the development of flexible, integrated, person-centered health services within the HF service delivery system as a potentially effective method to address complex health needs.