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1.
J Cutan Med Surg ; 20(3): 211-5, 2016 May.
Artículo en Inglés | MEDLINE | ID: mdl-26162859

RESUMEN

BACKGROUND/OBJECTIVES: Cosmetic camouflage is known to improve quality of life in adults. Few data are available regarding cosmetic camouflage in children, and thus it is not often selected as a mode of treatment. We sought to determine whether cosmetic camouflage leads to improved quality of life of pediatric patients with visible dermatoses and their parent or primary caregiver. METHODS: Patients aged 5 to 17 years with visible skin disease and their parent were assessed with the Children's Dermatology Life Quality Index (CDLQI) and the Family Dermatology Life Quality Index (FDLQI) before and after consultation regarding cosmetic camouflage. RESULTS: Twenty-two children with skin conditions were included in the study. The mean CDLQI decreased from 6.82 (SD = 1.28) to 3.05 (SD = 0.65; P = .0014), while the mean FDLQI decreased from 7.68 (SD = 1.15) to 4.68 (SD = 0.92; P = .0012). CONCLUSIONS: Our study highlighted improvement in quality of life in patients with skin disorders who were managed with cosmetic camouflage.


Asunto(s)
Cosméticos/uso terapéutico , Padres/psicología , Calidad de Vida , Enfermedades de la Piel/rehabilitación , Adolescente , Manchas Café con Leche/psicología , Manchas Café con Leche/rehabilitación , Niño , Cicatriz/psicología , Cicatriz/rehabilitación , Extremidades , Cara , Femenino , Humanos , Masculino , Nevo/congénito , Nevo/psicología , Nevo/rehabilitación , Satisfacción del Paciente , Esclerodermia Localizada/psicología , Esclerodermia Localizada/rehabilitación , Enfermedades de la Piel/psicología , Enfermedades Cutáneas Vasculares/psicología , Enfermedades Cutáneas Vasculares/rehabilitación , Neoplasias Cutáneas/psicología , Neoplasias Cutáneas/rehabilitación , Malformaciones Vasculares/psicología , Malformaciones Vasculares/rehabilitación , Vitíligo/psicología , Vitíligo/rehabilitación
2.
Rehabilitación (Madr., Ed. impr.) ; 54(4): 276-283, oct.-dic. 2020. tab
Artículo en Español | IBECS (España) | ID: ibc-192491

RESUMEN

La pandemia de COVID-19 es un desafío para el manejo de las patologías no COVID como la enfermedad linfática y el lipedema. La telemedicina puede evitar la propagación del coronavirus. Se necesita un sistema que nos ayude a determinar la prioridad clínica y la selección de la asistencia presencial o telemática para cada paciente y la forma de realizarlas durante la pandemia. El Grupo Español de Linfología ha realizado un documento de consenso con recomendaciones basadas en la bibliografía y experiencia clínica, como guía de práctica clínica en el manejo de anomalías linfáticas y lipedema durante la pandemia de COVID-19. Estas recomendaciones deben adaptarse a las características del paciente, las condiciones locales de los centros y las decisiones de los profesionales de la salud. Es un documento de criterios mínimos, sujeto a modificaciones según evolucione la pandemia, los conocimientos científicos y las instrucciones de las autoridades sanitarias


The COVID-19 pandemic poses a challenge to the management of non-COVID pathologies such as lymphatic diseases and lipoedema. The use of telemedicine can prevent the spread of the disease. A system is needed to help determine the clinical priority and selection of face-to-face or telemedicine options for each patient and how to carry them out during the pandemic. The Spanish Lymphology Group has drafted a consensus document with recommendations based on the literature and clinical experience, as clinical practice guidelines for the management of lymphatic abnormalities and lipoedema during the COVID-19 pandemic. These recommendations must be adapted to the characteristics of each patient, the local conditions of the centres, and the decisions of health care professionals. The document contains minimum criteria, subject to modifications according to the evolution of the pandemic, scientific knowledge and instructions from health authorities


Asunto(s)
Humanos , Infecciones por Coronavirus/rehabilitación , Lipedema/rehabilitación , Anomalías Linfáticas/rehabilitación , Linfedema/rehabilitación , Malformaciones Vasculares/rehabilitación , Telerrehabilitación/organización & administración , Pandemias , Centros de Rehabilitación/organización & administración , Continuidad de la Atención al Paciente/organización & administración , Prioridades en Salud/tendencias
3.
J Gerontol A Biol Sci Med Sci ; 69(12): 1495-502, 2014 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-24864308

RESUMEN

BACKGROUND: Microvascular and macrovascular abnormalities are frequently found on noninvasive tests performed in older adults. Their prognostic implications on disability and life expectancy have not been collectively assessed. METHODS: This prospective study included 2,452 adults (mean age: 79.5 years) with available measures of microvascular (brain, retina, kidney) and macrovascular abnormalities (brain, carotid, coronary, peripheral artery) in the Cardiovascular Health Study. The burden of microvascular and macrovascular abnormalities was examined in relation to total, activity-of-daily-living disability-free, and severe disability-free life expectancies in the next 10 years (1999-2009). RESULTS: At 75 years, individuals with low burden of both abnormalities lived, on average, 8.71 years (95% confidence interval: 8.29, 9.12) of which 7.67 years (7.16, 8.17) were without disability. In comparison, individuals with high burden of both abnormalities had shortest total life expectancy (6.95 years [6.52, 7.37]; p < .001) and disability-free life expectancy (5.60 years [5.10, 6.11]; p < .001). Although total life expectancy was similarly reduced for those with high burden of either type of abnormalities (microvascular: 7.96 years [7.50, 8.42] vs macrovascular: 8.25 years [7.80, 8.70]; p = .10), microvascular abnormalities seemed to have larger impact than macrovascular abnormalities on disability-free life expectancy (6.45 years [5.90, 6.99] vs 6.96 years [6.43, 7.48]; p = .016). These results were consistent for severe disability-free life expectancy and in individuals without clinical cardiovascular disease. CONCLUSIONS: Considering both microvascular and macrovascular abnormalities from multiple noninvasive tests may provide additional prognostic information on how older adults spend their remaining life. Optimal clinical use of this information remains to be determined.


Asunto(s)
Envejecimiento , Evaluación de la Discapacidad , Predicción , Esperanza de Vida/tendencias , Malformaciones Vasculares/rehabilitación , Anciano , Anciano de 80 o más Años , Índice Tobillo Braquial , Electrocardiografía , Femenino , Estudios de Seguimiento , Humanos , Imagen por Resonancia Magnética , Masculino , Microcirculación , Pronóstico , Estudios Prospectivos , Factores de Riesgo , Malformaciones Vasculares/diagnóstico , Malformaciones Vasculares/fisiopatología
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