Detalhe da pesquisa
1.
EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks.
Hepatology
; 71(5): 1546-1558, 2020 05.
Artigo
Inglês
| MEDLINE | ID: mdl-31512765
2.
Health-related quality of life in porphyria cutanea tarda: a cross-sectional registry based study.
Health Qual Life Outcomes
; 18(1): 84, 2020 Mar 30.
Artigo
Inglês
| MEDLINE | ID: mdl-32228630
3.
Self-efficacy and self-management strategies in acute intermittent porphyria.
BMC Health Serv Res
; 19(1): 444, 2019 Jul 03.
Artigo
Inglês
| MEDLINE | ID: mdl-31269991
4.
Illness Perception and Psychological Distress in Persons with Porphyria Cutanea Tarda.
Acta Derm Venereol
; 96(5): 674-8, 2016 Jun 15.
Artigo
Inglês
| MEDLINE | ID: mdl-26775575
5.
Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death.
J Genet Couns
; 17(5): 489-98, 2008 Oct.
Artigo
Inglês
| MEDLINE | ID: mdl-18719982
6.
Psychosocial aspects of predictive genetic testing for acute intermittent porphyria in norwegian minors.
JIMD Rep
; 1: 1-7, 2011.
Artigo
Inglês
| MEDLINE | ID: mdl-23430820