Detalhe da pesquisa
1.
The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET.
Clin Exp Rheumatol
; 40 Suppl 134(5): 3-11, 2022 May.
Artigo
Inglês
| MEDLINE | ID: mdl-35349419
2.
One year in review 2020: economic and organisational aspects in rare and complex connective tissue diseases.
Clin Exp Rheumatol
; 38(6): 1037-1045, 2020.
Artigo
Inglês
| MEDLINE | ID: mdl-33242303
3.
Health information technologies in systemic lupus erythematosus: focus on patient assessment.
Clin Exp Rheumatol
; 34(5 Suppl 101): S54-S56, 2016.
Artigo
Inglês
| MEDLINE | ID: mdl-27762204
4.
The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review.
Orphanet J Rare Dis
; 19(1): 81, 2024 Feb 21.
Artigo
Inglês
| MEDLINE | ID: mdl-38383420
5.
Long-term outcomes of COVID-19 vaccination in patients with rare and complex connective tissue diseases: The ERN-ReCONNET VACCINATE study.
J Transl Autoimmun
; 7: 100221, 2023 Dec.
Artigo
Inglês
| MEDLINE | ID: mdl-38162456
6.
State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases.
Front Med (Lausanne)
; 9: 986218, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-36213631
7.
An Opportunity to Harmonise the Approach to Patients' Care Pathways for Rare and Complex Diseases: RarERN Path™.
Front Health Serv
; 2: 935014, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-36925875
8.
An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET.
Front Med (Lausanne)
; 9: 889997, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-36226147
9.
Being a caregiver of a Behçet's syndrome patient: challenges and perspectives during a complex journey.
Orphanet J Rare Dis
; 16(1): 436, 2021 10 18.
Artigo
Inglês
| MEDLINE | ID: mdl-34663419
10.
The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Nat Rev Rheumatol
; 17(3): 177-184, 2021 03.
Artigo
Inglês
| MEDLINE | ID: mdl-33408338
11.
RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks.
Orphanet J Rare Dis
; 15(1): 347, 2020 12 14.
Artigo
Inglês
| MEDLINE | ID: mdl-33317578
12.
Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider.
Int J Environ Res Public Health
; 17(22)2020 11 23.
Artigo
Inglês
| MEDLINE | ID: mdl-33238523
13.
Rare diseases under different levels of economic analysis: current activities, challenges and perspectives.
RMD Open
; 4(Suppl 1): e000794, 2018.
Artigo
Inglês
| MEDLINE | ID: mdl-30488003
14.
Publisher Correction: The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Nat Rev Rheumatol
; 18(12): 734, 2022 Dec.
Artigo
Inglês
| MEDLINE | ID: mdl-36203063
15.
Correction to: RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks.
Orphanet J Rare Dis
; 16(1): 146, 2021 Mar 22.
Artigo
Inglês
| MEDLINE | ID: mdl-33752690