Detalhe da pesquisa
1.
Projecting the impact of triple CFTR modulator therapy on intravenous antibiotic requirements in cystic fibrosis using patient registry data combined with treatment effects from randomised trials.
Thorax
; 77(9): 873-881, 2022 09.
Artigo
Inglês
| MEDLINE | ID: mdl-34556554
2.
Re: The outcome of pregnancy in women with cystic fibrosis: a UK population-based descriptive study.
BJOG
; 128(4): 773-774, 2021 03.
Artigo
Inglês
| MEDLINE | ID: mdl-33225530
3.
Getting our ducks in a row: The need for data utility comparisons of healthcare systems data for clinical trials.
Contemp Clin Trials
; 141: 107514, 2024 06.
Artigo
Inglês
| MEDLINE | ID: mdl-38537901
4.
The risk of colorectal cancer in individuals with mutations of the cystic fibrosis transmembrane conductance regulator (CFTR) gene: An English population-based study.
J Cyst Fibros
; 22(3): 499-504, 2023 May.
Artigo
Inglês
| MEDLINE | ID: mdl-36253274
5.
Exploring the nature of perceived treatment burden: a study to compare treatment burden measures in adults with cystic fibrosis [version 1; peer review: 2 approved].
NIHR Open Res
; 2: 36, 2022 May 09.
Artigo
Inglês
| MEDLINE | ID: mdl-36855412
6.
Factors associated with clinical progression to severe COVID-19 in people with cystic fibrosis: A global observational study.
J Cyst Fibros
; 21(4): e221-e231, 2022 07.
Artigo
Inglês
| MEDLINE | ID: mdl-35753987
7.
Clinical characteristics of SARS-CoV-2 infection in children with cystic fibrosis: An international observational study.
J Cyst Fibros
; 20(1): 25-30, 2021 01.
Artigo
Inglês
| MEDLINE | ID: mdl-33309057
8.
Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020.
J Cyst Fibros
; 20(4): 566-577, 2021 07.
Artigo
Inglês
| MEDLINE | ID: mdl-34016559
9.
Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe.
ERJ Open Res
; 7(4)2021 Oct.
Artigo
Inglês
| MEDLINE | ID: mdl-34984210
10.
A multinational report to characterise SARS-CoV-2 infection in people with cystic fibrosis.
J Cyst Fibros
; 19(3): 355-358, 2020 05.
Artigo
Inglês
| MEDLINE | ID: mdl-32376098
11.
The global impact of SARS-CoV-2 in 181 people with cystic fibrosis.
J Cyst Fibros
; 19(6): 868-871, 2020 11.
Artigo
Inglês
| MEDLINE | ID: mdl-33183965
12.
The future of cystic fibrosis care: a global perspective.
Lancet Respir Med
; 8(1): 65-124, 2020 01.
Artigo
Inglês
| MEDLINE | ID: mdl-31570318
13.
Results from an online survey of adults with cystic fibrosis: Accessing and using life expectancy information.
PLoS One
; 14(4): e0213639, 2019.
Artigo
Inglês
| MEDLINE | ID: mdl-30978192
14.
COVID-19 vaccine prioritisation for people with cystic fibrosis.
J Cyst Fibros
; 20(4): 715-716, 2021 07.
Artigo
Inglês
| MEDLINE | ID: mdl-33941502
15.
A technical review of the United Kingdom National Adult Cardiac Surgery Governance Analysis 2008-11.
Eur J Cardiothorac Surg
; 45(2): 225-33, 2014 Feb.
Artigo
Inglês
| MEDLINE | ID: mdl-24071864
16.
Use of a rare disease patient registry in long-term post-authorisation drug studies: a model for collaboration with industry.
Lancet Respir Med
; 6(7): 495-496, 2018 07.
Artigo
Inglês
| MEDLINE | ID: mdl-29735358
17.
Clinical registries: governance, management, analysis and applications.
Eur J Cardiothorac Surg
; 44(4): 605-14, 2013 Oct.
Artigo
Inglês
| MEDLINE | ID: mdl-23371972
18.
Data Resource Profile: The UK Cystic Fibrosis Registry.
Int J Epidemiol
; 47(1): 9-10e, 2018 02 01.
Artigo
Inglês
| MEDLINE | ID: mdl-29040601
19.
Creating transparency in UK adult cardiac surgery data.
Heart
; 99(15): 1067-8, 2013 Aug.
Artigo
Inglês
| MEDLINE | ID: mdl-23776157