RESUMO
This study documents the emotional experiences and coping strategies of a group of caregivers as they move from the diagnosis of a close family member with terminal cancer through the stages of caring and post bereavement. Supportive evidence, matching that of previous literature, was gathered regarding the impact of such care, but additional findings counter the notion of "burden" by revealing that strong positive emotions were experienced by these caregivers regarding the opportunity given to them to express their love through care. By contrast and post bereavement, however, intense grief was reported. There appeared to be a complete lack of emotional support throughout from health professionals, particularly in the bereavement phase when need is very apparent.
Assuntos
Adaptação Psicológica , Atitude Frente a Saúde , Cuidadores/psicologia , Emoções , Família/psicologia , Assistência Domiciliar/psicologia , Avaliação das Necessidades/organização & administração , Neoplasias/enfermagem , Assistência Terminal/psicologia , Idoso , Idoso de 80 Anos ou mais , Efeitos Psicossociais da Doença , Empatia , Feminino , Grupos Focais , Pesar , Pesquisa sobre Serviços de Saúde , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Neoplasias/psicologia , Relações Profissional-Família , Apoio Social , Austrália do Sul , Inquéritos e Questionários , Assistência Terminal/métodosRESUMO
The purpose of this study is to listen to and interpret the experiences of independent older women in the community regarding their medication use. Their experiences were examined regarding medication information, sources of information, types of medication used, relationships with health care professionals and social support systems. The techniques used for data collection included guided qualitative semistructured interviews based on the principle of empowerment and notions of ideal and nonhierarchical communication. The emergent themes show that for these older women general practitioners were important in their medication experiences. Whilst trusted as carers in the acute care setting, registered nurses did not play a role in the medication experiences of these older women. Registered nurses are perceived as 'traditional carers' associated with medical and acute care settings. Although medication issues emerged that ideally required attention, the older women in this study generally perceived themselves to be capable of actively managing their health and medication use.