Introducing the concept sense of place: A mediator between place of care and emotional distress of patients with cancer at the end of life.

BACKGROUND: A sense of place (SOP) is defined as the emotional bonds, values, meaning, and symbols attached to a place. AIM: To assess SOP of patients with cancer during end-of-life care at home (home-hospice service) versus at a hospital in relation to place of care, social support, and emotional distress. METHODS: Participants were 150, stage IV, cancer patients with a life expectancy of less than 6 months, as defined by oncological staff, who were not receiving any life-prolonging care. Seventy-five patients received care at home (home-hospice), and the other 75 received care at the oncology department at the hospital, by palliative unit staff. Participants completed the Brief Symptom Inventory anxiety and depression subscales, questionnaires on perceived support and both questionnaires on home SOP and hospital SOP. RESULTS: Mean scores of emotional distress were similar for patients in home-hospice and at the hospital. Home SOP among individuals receiving care at home was high, and hospital SOP was high among hospitalized individuals. The structural equation model had good fit indexes, showing that each of the SOP variables mediated the association between place of care and emotional distress. Perceived support was associated with lower distress only in the hospital setting. CONCLUSIONS: The SOP concept is relevant to understanding emotional distress in relation to place of care at end of life. Strengthening SOP in relation to place of care should be considered. As newly introduced concept regarding place of care at the EoL, SOP warrants further research.

'No place like home?' A qualitative study of the experience of sense of place among cancer patients near the end of life.

Only a few studies have examined the end-of-life experience in the context of the place of living and receiving care. Sense of place consists of emotional bonds, values, meaning, and symbols attached to a place. This study aimed to explore the experience of a sense of place among individuals at the end-of-life receiving care at home via home-hospice or in a hospital. In-depth semi-structured interviews were conducted with 20 cancer patients aged 31-77 near the end-of-life (prognosis of 6 months or less left to live). Data were analysed using thematic analysis. Three main themes emerged: (a) 'This is me stuck inside my body'-the sick body and the body as a place, focused on the experience of estrangement with and disappointment from the body; (b) 'In fantasy, everyone wants to be at home and die at home, but life isn't a fantasy'-the sense of home versus the hospital, focused on the sense of place towards home and hospital; and (c) 'I don't want to meet anyone or to be anywhere'-a lack of sense of place, focused on detachment from physical and social environments and loss of sense of place. The findings demonstrate the complexity of relations with the body as the centre of experience and with the care setting. In conclusion, professional awareness of experiences of sense of place is most relevant to psychosocial interventions with patients near the end-of-life and their families. Interventions focused on improving patients' sense of place should be developed to increase their peace and quality of life and death. Educating families about the various experiences related to the sense of place may foster better understanding and empathy for the person at the end-of-life and allow a more positive experience of separation and bereavement after death.