Detalhe da pesquisa
1.
The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.
Am J Bioeth
; 23(7): 9-16, 2023 07.
Artigo
Inglês
| MEDLINE | ID: mdl-37204137
2.
Anticipating the ethical, legal, and social implications of human genome research: An ongoing experiment.
Am J Med Genet A
; 185(11): 3369-3376, 2021 11.
Artigo
Inglês
| MEDLINE | ID: mdl-34155808
3.
Precisely Where Are We Going? Charting the New Terrain of Precision Prevention.
Annu Rev Genomics Hum Genet
; 18: 369-387, 2017 08 31.
Artigo
Inglês
| MEDLINE | ID: mdl-28441061
4.
Serving epigenetics before its time.
Trends Genet
; 30(10): 427-9, 2014 Oct.
Artigo
Inglês
| MEDLINE | ID: mdl-25242336
5.
A semiquantitative metric for evaluating clinical actionability of incidental or secondary findings from genome-scale sequencing.
Genet Med
; 18(5): 467-75, 2016 05.
Artigo
Inglês
| MEDLINE | ID: mdl-26270767
6.
The ethics of using transgenic non-human primates to study what makes us human.
Nat Rev Genet
; 11(9): 658-62, 2010 09.
Artigo
Inglês
| MEDLINE | ID: mdl-20717156
7.
Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.
BMC Med Ethics
; 17(1): 33, 2016 06 04.
Artigo
Inglês
| MEDLINE | ID: mdl-27260081
8.
Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice.
Am J Bioeth
; 15(7): 3-14, 2015.
Artigo
Inglês
| MEDLINE | ID: mdl-26147254
9.
TMI! ethical challenges in managing and using large patient data sets.
N C Med J
; 75(3): 214-7, 2014.
Artigo
Inglês
| MEDLINE | ID: mdl-24830499
10.
Public participation in human genome editing research governance: what do scientists think?
J Community Genet
; 2024 Feb 14.
Artigo
Inglês
| MEDLINE | ID: mdl-38353891
11.
Grudging Trust and the Limits of Trustworthy Biorepository Curation.
Am J Bioeth
; 18(4): 23-25, 2018 04.
Artigo
Inglês
| MEDLINE | ID: mdl-29621446
12.
Scientists' Views on Scientific Self-Governance for Human Genome Editing Research.
Hum Gene Ther
; 33(21-22): 1157-1163, 2022 11.
Artigo
Inglês
| MEDLINE | ID: mdl-35850532
13.
"Prevention" and Human Gene Editing Governance.
AMA J Ethics
; 23(1): E49-54, 2021 01 01.
Artigo
Inglês
| MEDLINE | ID: mdl-33554848
14.
The View from the Benches: Scientists' Perspectives on the Uses and Governance of Human Gene-Editing Research.
CRISPR J
; 4(4): 609-615, 2021 08.
Artigo
Inglês
| MEDLINE | ID: mdl-34406038
15.
Response to Open Peer Commentaries on "Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice".
Am J Bioeth
; 15(12): W6-9, 2015.
Artigo
Inglês
| MEDLINE | ID: mdl-26632375
16.
Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era.
Genome Med
; 12(1): 98, 2020 11 20.
Artigo
Inglês
| MEDLINE | ID: mdl-33218363
17.
A New Governance Approach to Regulating Human Genome Editing.
N C J Law Technol
; 22(2): 107-141, 2020 Dec.
Artigo
Inglês
| MEDLINE | ID: mdl-34737680
18.
Sharing with Strangers: Governance Models for Borderless Genomic Research in a Territorial World.
Kennedy Inst Ethics J
; 29(1): 67-95, 2019.
Artigo
Inglês
| MEDLINE | ID: mdl-31080178
19.
Why Does the Shift from "Personalized Medicine" to "Precision Health" and "Wellness Genomics" Matter?
AMA J Ethics
; 20(9): E881-890, 2018 09 01.
Artigo
Inglês
| MEDLINE | ID: mdl-30242820
20.
Is Enhancement the Price of Prevention in Human Gene Editing?
CRISPR J
; 1: 351-354, 2018 12.
Artigo
Inglês
| MEDLINE | ID: mdl-31021238