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1.
Soc Psychiatry Psychiatr Epidemiol ; 58(6): 961-971, 2023 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-36692520

RESUMO

PURPOSE: The objective of this study was to estimate the incidence and age of onset of mental disorders diagnosed by gender and socioeconomic status (SES) in children, adolescents, and young adults up to 30 years of age in the whole population of the Basque Country (Spain). METHODS: All mental health diagnoses documented in Basque Health Service records from 1 January 2003 to 31 December 2018, were classified into eight clusters: anxiety, attention deficit hyperactivity disorder (ADHD), conduct disorders, depression, psychosis/personality disorders, substance use, eating disorders, and self-harm. We calculated incidence and cumulative incidence for each cluster, disaggregated by gender, and socioeconomic status (SES). Poisson regression analyses were performed. RESULTS: Overall, 9,486,853 person-years of observation were available for the 609,281 individuals included. ADHD and conduct disorders were diagnosed in the first decade, anxiety and depression disorders in the second and third decades, and psychosis/personality and substance use in the third. The cumulative incidence at 18 years of age for any type of disorder was 15.5%. The group with low SES had a statistically significantly higher incidence of all eight clusters. The incidence of ADHD, conduct disorders, depression, psychosis/personality disorders, and substance use was higher in males and that of anxiety, eating disorders and self-harm was higher in females. CONCLUSIONS: The incidence of mental disorders is high among children, adolescents, and young adults in the Basque Country underlining the need for preventive interventions. Marked differences by gender and SES highlight mental health inequalities, especially for depression and psychosis in low SES males.


Assuntos
Transtorno do Deficit de Atenção com Hiperatividade , Transtornos Mentais , Transtornos Relacionados ao Uso de Substâncias , Masculino , Criança , Adolescente , Feminino , Adulto Jovem , Humanos , Incidência , Transtornos Mentais/epidemiologia , Transtornos Mentais/psicologia , Transtorno do Deficit de Atenção com Hiperatividade/psicologia , Transtornos de Ansiedade/epidemiologia , Transtornos Relacionados ao Uso de Substâncias/epidemiologia , Classe Social
2.
Soc Psychiatry Psychiatr Epidemiol ; 57(2): 279-291, 2022 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-34417859

RESUMO

PURPOSE: The existing evidence suggests that a complete evaluation of mental health should incorporate both psychopathology and mental well-being indicators. However, few studies categorize European adolescents into subgroups based on such complete mental health data. This study used the data on mental well-being and symptoms of mental and behavioral disorders to explore the mental health profiles of adolescents in Europe. METHODS: Data collected from adolescents (N = 3767; mean age 12.4 [SD = 0.9]) from five European countries supplied the information on their mental well-being (personal resilience, school resilience, quality of life, and mental well-being) and mental and behavioral disorder symptoms (anxiety, depression, stress, bullying, cyber-bullying, and use of tobacco, alcohol, or cannabis). Multiple correspondence analysis and cluster analysis were combined to classify the youths into mental health profiles. RESULTS: Adolescents were categorized into three mental health profiles. The "poor mental health" profile (6%) was characterized by low levels of well-being and moderate symptoms of mental disorders. The "good mental health" profile group (26%) showed high well-being and few symptoms of mental disorders, and the "intermediate mental health" profile (68%) was characterized by average well-being and mild-to-moderate symptoms of mental disorders. Groups with higher levels of well-being and fewer symptoms of mental disorders showed lower rates of behavioral problems. Mental well-being indicators strongly contributed to this classification. CONCLUSION: Adolescents with the "intermediate" or "poor" mental health profiles may benefit from interventions to improve mental health. Implications for school-based interventions are discussed. TRIAL REGISTRATION NUMBER (TRN) AND DATE OF REGISTRATION: ClinicalTrials.gov Identifier: NCT03951376. Registered 15 May 2019.


Assuntos
Transtornos Mentais , Qualidade de Vida , Adolescente , Criança , Estudos Transversais , Humanos , Transtornos Mentais/epidemiologia , Saúde Mental , Instituições Acadêmicas
3.
BMC Public Health ; 19(1): 1413, 2019 Oct 29.
Artigo em Inglês | MEDLINE | ID: mdl-31664974

RESUMO

BACKGROUND: Adolescence is crucial period for laying the foundations for healthy development and mental well-being. The increasing prevalence of mental disorders amongst adolescents makes promotion of mental well-being and prevention interventions at schools important. UPRIGHT (Universal Preventive Resilience Intervention Globally implemented in schools to improve and promote mental Health for Teenagers) is designed as a whole school approach (school community, students and families) to promote a culture of mental well-being and prevent mental disorders by enhancing resilience capacities. The present article aims at describing the rationale, conceptual framework, as well as methodology of implementation and evaluation of the UPRIGHT intervention. METHODS: UPRIGHT project is a research and innovation project funded by the European Union's Horizon 2020 Research and Innovation programme under grant agreement No. 754919 (Duration: 48 months). The theoretical framework has been developed by an innovative and multidisciplinary approach using a co-creation process inside the UPRIGHT Consortium (involving seven institutions from Spain, Italy, Poland, Norway, Denmark, and Iceland). Resulted is the UPRIGHT programme with 18 skills related to 4 components: Mindfulness, Coping, Efficacy and Social and Emotional Learning. Among the five Pan-European regions, 34 schools have been currently involved (17 control; 17 intervention) and around 6000 adolescents and their families are foreseen to participate along a 3-year period of evaluation. Effectiveness of the intervention will be evaluated as a randomized controlled trial including quantitative and qualitative analysis in the five Pan-European regions representative of the cultural and socioeconomic diversity. The cost-effectiveness assessment will be performed by simulation modelling methods. DISCUSSION: We expect a short- to medium-term improvement of mental well-being in adolescents by enhancing resilience capacities. The study may provide robust evidence on intrapersonal, familiar and social environmental resilience factors promoting positive mental well-being. TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT03951376 . Registered 15 May 2019.


Assuntos
Saúde Mental , Resiliência Psicológica , Serviços de Saúde Escolar , Estudantes/psicologia , Adolescente , Criança , Europa (Continente) , Humanos , Projetos de Pesquisa , Estudantes/estatística & dados numéricos
4.
J Psychosoc Nurs Ment Health Serv ; 57(5): 44-51, 2019 May 01.
Artigo em Inglês | MEDLINE | ID: mdl-30508459

RESUMO

The aim of the current study was to validate the Work and Social Adjustment Scale (WSAS), a measure of psychosocial functional impairment, in Spanish-speaking individuals with bipolar disorder. A sample of 120 patients with bipolar disorder and 97 healthy individuals completed the WSAS to analyze its factor structure and reliability. Patients also completed measures of personal recovery and quality of life (QOL). Confirmatory factor analysis indicated that a one-factor model explained data adequately, with all factor loadings proving to be significant. Cronbach's alphas indicated excellent internal consistency in the sample of individuals with bipolar disorder and the sample of healthy individuals. Significant negative correlations between the WSAS and personal recovery and QOL demonstrated good concurrent validity. Impairment on the WSAS was higher for the patient sample, confirming known-group validity of the scale. Thus, Spanish validation of the WSAS demonstrated it to be a sound self-reported measure of psychosocial functioning impairment in individuals with bipolar disorder. [Journal of Psychosocial Nursing and Mental Health Services, 57(5), 44-51.].


Assuntos
Transtorno Bipolar/reabilitação , Emprego , Ajustamento Social , Inquéritos e Questionários , Traduções , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Psicometria , Reprodutibilidade dos Testes , Espanha
5.
Arch Psychiatr Nurs ; 31(4): 376-385, 2017 08.
Artigo em Inglês | MEDLINE | ID: mdl-28693874

RESUMO

The goal of this research project was to develop a new questionnaire to assess resilience in Bipolar Disorder (BD), the Resilience Questionnaire for Bipolar Disorder (RBD). To examine its psychometric properties, a sample of 125 patients diagnosed with BD and a comparison sample of 107 people completed the new RBD and established measures of generic resilience and health-related outcomes. Exploratory factor analysis for the RBD yielded a 23-item 5-factor solution, and confirmatory factor analysis indicated adequate fit indices. Internal consistency, stability, concurrent validation and known-groups' validity were also supported. The RBD obtained higher responsiveness (6-month follow-up) than the generic resilience scale (BD sample). The RBD is a robust measure to monitor resilience in BD.


Assuntos
Transtorno Bipolar/psicologia , Resiliência Psicológica , Inquéritos e Questionários/normas , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Psicometria/estatística & dados numéricos , Reprodutibilidade dos Testes
6.
BMC Geriatr ; 16: 11, 2016 Jan 14.
Artigo em Inglês | MEDLINE | ID: mdl-26762327

RESUMO

BACKGROUND: Wrist fractures are the most common arm fractures in older adults. The impact of wrist fractures on daily functionality has been less studied than that of other types and so, less is known about the complexity of factors related to the functional impact of these fractures. This study is aimed to assess the role of individual and health care factors and its association with daily living functional changes after a wrist fracture. METHODS: A prospective cohort of patients aged 65 or more, affected by a fracture due to a fall, was conducted. These patients were identified at the emergency rooms of the six participating hospitals. As independent factors, the following were studied: socio-demographic data, characteristics of the fracture, health-related quality of life, wrist function and provided treatment. The main outcome was functional status measured by the Barthel Index for daily living basic activities and the Lawton Instrumental Activities of Daily Living (IADL) Scale for daily living instrumental activities. Data were collected at baseline just after the fall and after six months of follow-up. Patients were considered to have deteriorated if their functional status as measured by Barthel Index or Lawton IADL scores decreased in a significant way during the six months of follow up. RESULTS: Barthel Index and/or Lawton IADL scores fell at six months after the fracture in 33% of participants. This functional decline was more frequent in patients with comorbidity (p < 0.0001), polypharmacy (p < 0.0001), low health-related quality of life prior to the fall (p < 0.0001) and lower educational level (p = 0.009). The derived multivariate models show that patients that become dependent six months after the fall, have advanced age, severe chronic diseases, low functional performance prior to the fracture, and repeated episodes of accidental falls. This profile is consistent with a frailty phenotype. CONCLUSIONS: Wrist fractures are associated to the occurrence of dependence, especially in frail patients. These patients could benefit from being identified at the time the fracture is treated, in order to tackle their complex needs and so, prevent some of the burden of dependence generated by these fractures.


Assuntos
Acidentes por Quedas/prevenção & controle , Atividades Cotidianas , Fraturas Ósseas , Qualidade de Vida , Traumatismos do Punho , Idoso , Idoso de 80 Anos ou mais , Estudos de Coortes , Comorbidade , Feminino , Fraturas Ósseas/diagnóstico , Fraturas Ósseas/epidemiologia , Fraturas Ósseas/etiologia , Fraturas Ósseas/psicologia , Fraturas Ósseas/reabilitação , Avaliação Geriátrica/métodos , Serviços de Saúde para Idosos/organização & administração , Humanos , Masculino , Avaliação das Necessidades , Estudos Prospectivos , Fatores de Risco , Espanha/epidemiologia , Traumatismos do Punho/diagnóstico , Traumatismos do Punho/epidemiologia , Traumatismos do Punho/etiologia , Traumatismos do Punho/psicologia , Traumatismos do Punho/reabilitação
7.
Int J Clin Pract ; 70(11): 930-939, 2016 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-27870256

RESUMO

AIMS: The aim of this study was to identify factors related to a decline in function following a wrist fracture. METHODS: Observational, prospective cohort study done in five public hospitals of the Basque Health Service. We recruited adults aged 65 or older with a wrist fracture due to a fall who attended the emergency department (ED) of one of these hospitals. Sociodemographic and clinical data were collected, along with information about health-related quality of life (HRQoL) and functionality. RESULTS: A decline in function 6 months after the fracture was more likely among women (OR=3.409; 95% CI=1.920-6.053), patients receiving institutional help before the fracture (OR=5.717; 95% CI=1.644-19.883), patients who developed fracture-related complications within 6 months of the fall (OR=5.015; 95% CI=1.377-18.268), patients who visited an ED within 6 months of the fall (OR=1.646; 95% CI=1.058-2.561), patients with a displaced fracture (OR=1.595; 95% CI=1.106-2.300), and patients who broke the dominant hand (OR=1.464; 95% CI=1.019-2.103). Better baseline HRQoL and function were associated with smaller declines in function 6 months after the fall. Eighteen months after the fall, decline in function was more likely among women (OR=2.172; 95% CI=1.138-4.144) and patients visiting an ED because of fracture-related complications (OR=1.722; 95% CI=1.113-2.663). Better HRQoL and dependency level at baseline were associated with less decline in function 18 months after the fracture. DISCUSSION: Two different models identified several parameters related to declines in upper extremity function 6 and 18 months after the fracture. CONCLUSIONS: These results can help develop preventive actions needed to avoid or reduce the consequences of these falls.


Assuntos
Acidentes por Quedas , Fraturas Ósseas/etiologia , Traumatismos do Punho/etiologia , Punho/fisiopatologia , Idoso , Idoso de 80 Anos ou mais , Serviço Hospitalar de Emergência , Feminino , Humanos , Modelos Lineares , Modelos Logísticos , Masculino , Análise Multivariada , Estudos Prospectivos , Qualidade de Vida , Espanha
8.
Women Health ; 56(5): 576-94, 2016 07.
Artigo em Inglês | MEDLINE | ID: mdl-26503900

RESUMO

The objectives of the authors in this study were two-fold: (1) to explore the role of resilience in recovery from eating disorders (EDs), and (2) to develop a model of resilience in women with EDs. Semi-structured interviews with ten women were conducted in April 2011, along with two focus groups with women who had recovered from EDs (n  = 5 women each; conducted in April 2012 at the University of Deusto, Spain), one focus group with clinical experts (n = 8; conducted in April 2012 at the Foundation Against EDs of Biskay, Spain), and six narratives from primary caregivers of ED patients living in Biskay, Spain (conducted in November 2012). All data were analyzed using a grounded theory approach. All female participants acknowledged experiencing resilience in their recovery. The analysis resulted in a conceptual model of resilience composed of the following categories: deep dissatisfaction with life, turning point, acceptance, hope, determination to change, accountability for the ED, active coping, getting social support, gaining self-knowledge, getting information about EDs, increase well-being, trait resilience, initiating new projects and living in the here and now. According to the model presented, resilience preceded the experience of recovery in women with EDs in this sample and could be a useful asset for future interventions.


Assuntos
Adaptação Psicológica , Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Resiliência Psicológica , Autoimagem , Apoio Social , Adolescente , Adulto , Feminino , Grupos Focais , Teoria Fundamentada , Humanos , Entrevistas como Assunto , Testes Psicológicos , Pesquisa Qualitativa , Espanha
9.
Eur Eat Disord Rev ; 24(2): 147-56, 2016 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-26442984

RESUMO

Individualised measures of quality of life (QoL) refer to instruments that encourage the respondent to actively elicit which areas of their life are most relevant for his/her QoL. The aim of this study is to compare individualised versus standard measures of QoL in a sample of patients with eating disorder (ED). The Schedule for the Evaluation of the Individual Quality of Life (SEIQoL) and a generic measure of QoL [World Health Organization Brief Quality of Life Assessment Scale (WHOQOL-BREF)] were applied on two occasions (one-year follow-up) to a sample of 165 patients with ED, 57 recovered patients with ED, and 349 women from the general population. The areas of 'family', 'education/career or job', 'friends', 'leisure', 'romantic partner' and 'health' were identified as the most important for their QoL for all groups, both times. The WHOQOL-BREF was more sensitive than the SEIQoL in detecting changes that occurred over time. Clinical interventions for ED should consider social components as objectives of intervention.


Assuntos
Transtornos da Alimentação e da Ingestão de Alimentos , Qualidade de Vida , Inquéritos e Questionários , Adulto , Estudos de Casos e Controles , Feminino , Humanos , Masculino , Reprodutibilidade dos Testes , Adulto Jovem
10.
Health Expect ; 17(6): 765-75, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-22784407

RESUMO

BACKGROUND: To date, factors that influence satisfaction with cataract surgery have not been broadly explored. OBJECTIVE: To identify variables related to patient satisfaction after cataract extraction by phacoemulsification and to determine the relationship between satisfaction and visual acuity (VA) and visual function (VF). DESIGN: Prospective cohort study. SETTING: Five hospitals belonging to the Basque Health Care Service. PARTICIPANTS: 4335 consecutive patients undergoing cataract extraction. INTERVENTIONS: Clinical data on vision were collected before the intervention and 6 weeks afterwards. Before cataract extraction, patients answered a global question about their expectations for the procedure, answered three questions related to specific activities (reading, going out and recognizing people, and doing housework) and completed the Visual Function-14 (VF-14) and Short-Form-36 (SF-36) instruments. Three months after cataract extraction, they again completed the VF-14 and SF-36 along with questions about global satisfaction with the procedure and satisfaction with the three specific activities. MAIN OUTCOME MEASURES: Three months after cataract extraction, they again completed the VF-14 and SF-36 along with questions about global satisfaction with the procedure and satisfaction with the three specific activities. RESULTS: Pre-intervention VA and VF-14 scores and their post-intervention changes were associated with both global satisfaction and satisfaction with the ability to perform specific activities. Unresolved ocular complications were related to global satisfaction with cataract extraction (OR 95% = 0.39(0.27, 0.55) , P < 0.001). Both the mental and physical component scales of the SF-36 were related to global satisfaction. A group of patients were not satisfied with the intervention in spite of achieving similar vision-related improvements as patients who were quite satisfied with the procedure. CONCLUSION: Satisfaction with cataract extraction is related to clinical outcomes and is also associated with patients' expectations of their improvement in visual function.


Assuntos
Extração de Catarata , Avaliação de Resultados da Assistência ao Paciente , Satisfação do Paciente , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Prospectivos , Inquéritos e Questionários
11.
Ophthalmology ; 118(7): 1303-9, 2011 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-21376399

RESUMO

PURPOSE: To examine the relation between Visual Function Index-14 (VF-14) scores and VA by accounting for concurrent ocular comorbidities, effect of the better seeing eye (BSE), and VA before and after cataract surgery. DESIGN: Prospective cohort study. PARTICIPANTS: A total of 4335 patients with cataract who completed the VF-14 before and after cataract surgery. METHODS: Collaborating clinicians provided demographic and clinical data before and after cataract surgery. Lowess curves, general linear models, and Spearman correlation coefficients were used to study the relation between the VF-14 and the VA. MAIN OUTCOME MEASURES: Scores in the VF-14 preintervention, change in VF-14 after surgery, VA before surgery, and VA change after surgery. RESULTS: General linear models and Spearman correlation coefficients showed a significant (P < 0.0001) association between VF-14 score and VA (measured in decimal fraction) when the preoperative VA was ≤0.5 (20/40) and no association (P > 0.4020) when the VA was >0.5 (20/40). Small VA gains (≤0.5) after surgery only led to significant gains (P < 0.0001) in functionality in patients with other ocular pathologies and whose BSE was the surgical eye. Gains in VA >0.5 had a significant (P < 0.02) effect on VF-14 change scores in most patients. CONCLUSIONS: The VF-14 seems to be more sensitive when the preoperative VA is <0.5 (20/40), especially in patients whose BSE is the surgical eye. The VF-14 seems responsive to increases in VA if the gains exceed 0.5. For gains <0.5, the VF-14 seems unresponsive, except for patients with other ocular pathologies in whom the BSE before and after surgery is the surgical eye.


Assuntos
Catarata/fisiopatologia , Testes Visuais/métodos , Visão Monocular , Acuidade Visual , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Extração de Catarata , Estudos de Coortes , Humanos , Modelos Lineares , Estudos Longitudinais , Pessoa de Meia-Idade , Período Pós-Operatório , Período Pré-Operatório , Estudos Prospectivos , Sensibilidade e Especificidade , Adulto Jovem
12.
Health Qual Life Outcomes ; 9: 75, 2011 Sep 21.
Artigo em Inglês | MEDLINE | ID: mdl-21936886

RESUMO

BACKGROUND: The aims of this study were to propose a Spanish Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) short form based on previously shortened versions and to study its validity, reliability, and responsiveness for patients with hip osteoarthritis undergoing total hip replacement (THR). METHODS: Prospective observational study of two independent cohorts (788 and 445 patients, respectively). Patients completed the WOMAC and the Short Form (SF)-36 questionnaires before THR and 6 months afterward. Patients received the questionnaires by mailing, and two reminder letters were sent to patients who had not replied the questionnaire. Based on two studies from the literature, we selected the two shortened domains, the pain domain composed of three items and the function domain composed of eight items. Thus, we proposed an 11-items WOMAC short form. A complete validation process was performed, including confirmatory factor analysis (CFA) and Rasch analysis, and a study of reliability, responsiveness, and agreement measured by the Bland-Altman approach. RESULTS: The mean age was about 69 years and about 49% were women. CFA analyses confirmed the two-factor model. The pain and function domains fit the Rasch model. Stability was supported with similar results in both cohorts. Cronbach's alpha coefficients were high, 0.74 and 0.88. The highest correlations in convergent validity were found with the bodily pain and physical function SF-36 domains. Significant differences were found according to different pain and function severity scales, supporting known-groups validity. Responsiveness parameters showed large changes (effect sizes, 2.11 and 2.29). Agreement between the WOMAC long and short forms was adequate. CONCLUSIONS: Since short questionnaires result in improved patient compliance and response rates, it is very useful to have a shortened WOMAC version with the same good psychometric properties as the original version. The Spanish WOMAC short form is valid, reliable, and responsive for patients undergoing THR, and most importantly, the first WOMAC short version proposed in Spanish. Because of its simplicity and ease of application, the short form is a good alternative to the original WOMAC questionnaire and it would further enhance its acceptability and usefulness in clinical research, clinical trials, and in routine practice within the orthopaedic community.


Assuntos
Artroplastia de Quadril , Avaliação da Deficiência , Osteoartrite do Quadril/fisiopatologia , Osteoartrite do Quadril/cirurgia , Idoso , Análise Fatorial , Feminino , Indicadores Básicos de Saúde , Humanos , Masculino , Medição da Dor , Estudos Prospectivos , Reprodutibilidade dos Testes , Índice de Gravidade de Doença , Espanha , Inquéritos e Questionários
13.
Front Psychol ; 12: 629357, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33679551

RESUMO

Resilience is the process and outcome of healthy adaptation despite significant adversity. Proliferation of research on the resilience construct has led to scientific concerns about the operationalization and measurement of resilience for assessment science and practice. Various studies that have investigated the psychometric properties and construct validity of the Resilience Scale for Adolescents (READ) have yielded inconsistent findings, which could partly be due to variations in the methodological approaches. This study investigated the factor structure and construct validity of the READ in four European regions participating in the Universal Preventive Resilience Intervention Globally Implemented in Schools to Improve and Promote Mental Health for Teenagers (UPRIGHT) project. Participants included adolescents aged 10-15 years from Spain (n = 391, females = 51%), Iceland (n = 379, females = 55%), Italy (n = 460, females = 55%), and Poland (n = 316, females = 51%). The five-factor model of the READ was similar across gender and participating regions. Construct validity of the READ was supported. After establishing construct separability, incremental validity was supported (except for the social competence subscale). The READ is a valid and reliable measure of protective factors involved in resilience and demonstrates promise for cross-cultural applicability. Recommendations for measuring resilience and validating the READ in future investigations are provided.

14.
Health Qual Life Outcomes ; 8: 29, 2010 Mar 18.
Artigo em Inglês | MEDLINE | ID: mdl-20298556

RESUMO

BACKGROUND: To confirm the internal structure of the Health Related Quality of Life for Eating Disorders version 2 questionnaire (HeRQoLEDv2) and create and validate a shortened version (HeRQoLED-S). METHODS: 324 patients with eating disorders were assessed at baseline and one year later (75.6% of whom responded). We performed a confirmatory factor analysis of the HeRQoLEDv2 using baseline data, and then a Rasch analysis to shorten the questionnaire. Data obtained at year one was used to confirm the structure of the HeRQoLED short form and evaluate its validity and reliability. RESULTS: Two latent second-order factors -- social maladjustment and mental health and functionality -- fit the data for the HeRQoLEDv2. Rasch analysis was computed separately for the two latent second-order factors and shortened the HeRQoLEDv2 to 20 items. Infit and outfit indices were acceptable, with the confirmatory factor analysis of the HeRQoLED short form giving a root mean square error of approximation of 0.07, a non-normed fit index and a comparative fit index exceeding 0.90. The validity was also supported by the correlation with the convergent measures: the social maladjustment factor correlated 0.82 with the dieting concern factor of the Eating Attitudes Test-26 and the mental health and functionality factor correlated -0.69 with the mental summary component of the Short Form-12. Cronbach alphas exceeded 0.89. CONCLUSIONS: Two main factors, social maladjustment and mental health and functionality, explain the majority of HeRQoLEDv2 scores. The shortened version maintains good psychometric properties, though it must be validated in independent samples.


Assuntos
Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Indicadores Básicos de Saúde , Modelos Estatísticos , Qualidade de Vida , Inquéritos e Questionários , Análise Fatorial , Humanos , Probabilidade , Estudos Prospectivos , Psicometria
15.
Int J Eat Disord ; 42(2): 179-87, 2009 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-18949768

RESUMO

OBJECTIVE: The aim of this article is to provide a narrative review of empirical studies related to health-related quality of life (HRQOL) and eating disorders and to report recent changes in the measurement of HRQOL in eating disorders. METHOD: Twenty-five articles of central importance to the topic were identified in a systematic search of six databases. All articles were selected based on a consensus relevancy rating process. Key themes were extracted from the articles and validated by all authors. RESULTS: We identify six themes in the extant empirical literature. DISCUSSION: We discuss these six themes and review them in light of the fact that they are identified in studies using only generic measures of HRQOL. Four recently developed disease-specific HRQOL measures specific to patients with eating disorder are discussed.


Assuntos
Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Nível de Saúde , Qualidade de Vida/psicologia , Humanos , Inquéritos e Questionários
16.
Psychiatry Res ; 259: 470-475, 2018 01.
Artigo em Inglês | MEDLINE | ID: mdl-29149716

RESUMO

OBJECTIVE: This study examined the longitudinal reciprocal associations between resilience factors, quality of life (QoL) domains, and symptoms of eating disorders (EDs). Hypotheses included predictive paths from resilience factors of "acceptance of self and life" and "personal competence" to increased QoL and predictive paths from previous levels of QoL to resilience. METHOD: A total of 184 patients with EDs (mean age = 29.55, SD = 9.17, 94.8% women) completed measures of resilience, QoL, and EDs symptoms over three waves spaced six month apart. Hypotheses were tested by path analysis. RESULTS: Resilience factors predicted improvements in psychological health and social relationship domains of QoL and a reduction of ED symptoms over time. In addition, psychological health increased acceptance of self and life consistently over time, whereas physical health increased the competence component of resilience. DISCUSSION: The relationships between resilience factors and QoL are reciprocal, with several mediational paths. A spiral of recursive influences between resilience factors and QoL can take place in people with EDs. This possibility offers new perspectives to understanding the process of recovery in patients with ED.


Assuntos
Transtornos da Alimentação e da Ingestão de Alimentos/diagnóstico , Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Qualidade de Vida/psicologia , Resiliência Psicológica , Autorrelato , Adolescente , Adulto , Idoso , Transtornos da Alimentação e da Ingestão de Alimentos/terapia , Feminino , Humanos , Estudos Longitudinais , Masculino , Saúde Mental/tendências , Pessoa de Meia-Idade , Inquéritos e Questionários , Adulto Jovem
17.
J Clin Epidemiol ; 60(8): 825-33, 2007 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-17606179

RESUMO

OBJECTIVES: To assess the responsiveness of the Health-Related Quality of Life for Eating Disorders questionnaire version-2 (HeRQoLEDv2) and present the psychometric characteristics of a new binge domain. STUDY DESIGN AND SETTING: Patients with an eating disorder completed the HeRQoLEDv2, the Eating Attitudes Test-26, Short Form Health Survey-12, and two items from the Eating Disorder Inventory-2, at baseline and after 1 year. At the second assessment, patients completed the HeRQoLEDv2, as part of the battery of tests, along with health transitional questions. Validity and reliability analyses of the new binge domain were performed. Responsiveness was evaluated using distributional and anchor-based approaches, comparison of mean changes, mean change correlations, the minimal detectable change (MDC) at the individual and group level, and the minimal important difference (MID). RESULTS: Items in the binge domain loaded above 0.40. Cronbach alpha was 0.82. Regarding responsiveness, the mean changes detected by the HeRQoLEDv2 correlated above 0.30 with the criterion measures. Patients who reported improvement showed significant changes, and effect sizes above 0.30. The MDC(90%ind) was larger than the MID. CONCLUSION: The HeRQoLEDv2 includes the new binge domain. It responded to change at the group level. Further research regarding the MID is needed.


Assuntos
Transtornos da Alimentação e da Ingestão de Alimentos/diagnóstico , Indicadores Básicos de Saúde , Qualidade de Vida , Adulto , Atitude , Bulimia/diagnóstico , Bulimia/psicologia , Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Feminino , Seguimentos , Humanos , Masculino , Psicometria , Reprodutibilidade dos Testes , Resultado do Tratamento
18.
Clín. salud ; 33(2): 83-90, jul. 2022. tab, graf
Artigo em Inglês | IBECS (Espanha) | ID: ibc-208951

RESUMO

Resilience could moderate the impact of bipolar disorder (BD) on patients’ quality of life (QoL) and psychosocial functioning. This study aimed to (1) explore the relationships between bipolar disorder mood episodes (depression, [hypo]mania, and euthymia) and mental health outcomes of QoL, personal recovery, impaired work, and psychosocial functioning in individuals with BD; and (2) determine whether resilience domains were moderators of these associations. A clinical adult sample of 97 individuals diagnosed with BD (63.90% female, mean age = 45.02 years) completed a battery of BD-specific measures of resilience and mental health-related variables. Multiple regression showed that self-management of BD resilience domain moderated the negative relationship between (hypo)manic episode and personal recovery. Furthermore, self-confidence moderated the positive relationships between (hypo)manic and depressive episodes and impaired functioning. We suggest that BD patients experiencing (hypo)manic or depressive episodes may improve their mental health and wellbeing through interventions that promote disorder-specific resilience factors. (AU)


La resiliencia podría moderar el impacto del trastorno bipolar (TB) en la calidad de vida (CV) y funcionamiento psicosocial de los pacientes. Los objetivos del presente estudio fueron: (1) explorar la asociación entre los episodios anímicos bipolares (depresión, [hipo]manía y eutimia) y los resultados de la CV en cuanto a salud mental, la recuperación personal y el deterioro del funcionamiento laboral y psicosocial de personas con TB y (2) determinar si los dominios de resiliencia moderaban esta asociación. Una muestra clínica de 97 personas adultas diagnosticadas de TB (63.90% mujeres, edad media = 45.02) cumplimentaron una batería de medidas específicas de TB sobre resiliencia y variables relacionadas con la salud mental. La regresión múltiple mostró que el dominio de la resiliencia de autogestión del TB moderó la relación negativa entre el episodio (hipo)maníaco y la recuperación personal. Además, la confianza en uno mismo moderó la asociación positiva entre los episodios (hipo)maníacos y depresivos y el deterioro del funcionamiento. Se sugiere que la salud mental y bienestar de los pacientes con TB en episodios (hipo)maníacos o depresivos podrían mejorar mediante intervenciones que desarrollen aspectos de resiliencia específicos de este trastorno mental. (AU)


Assuntos
Humanos , Adulto Jovem , Adulto , Pessoa de Meia-Idade , Resiliência Psicológica , Saúde Mental , Transtorno Bipolar , Afeto , Inquéritos e Questionários , Espanha , Qualidade de Vida
19.
J Clin Epidemiol ; 59(2): 192-200, 2006 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-16426955

RESUMO

BACKGROUND AND OBJECTIVES: To describe the development and investigate the psychometric properties of a new instrument to measure health-related quality of life (HRQoL) for individuals with an eating disorder (ED). METHODS: Seven focus groups were convened and an extensive literature review was carried out to generate the items. The first draft of the questionnaire was pilot tested. Three hundred twenty-four ED patients took part in the final field study. The 12-Item Short Form Health Survey, the Eating Attitudes Test-26, and two items from the Eating Disorders Inventory-2 also were applied to examine the concurrent validity. Factor analysis, item scale correlation correcting for overlap, test-retest, Cronbach's alpha coefficient, known-groups validation, and the sensitivity of the questionnaire in different populations also were examined. RESULTS: The final Health-Related Quality of Life in Eating Disorders (HeRQoLED) questionnaire consisted of 50 items. Principal axis factor analysis identified eight subscales. Concurrent validity showed correlations >.40 with the criteria measures. Excellent reliability and stability were obtained. The HeRQoLED was sensitive in discriminating both between known-different groups and from the general population. CONCLUSION: The results provide evidence of the good psychometric properties of the new HeRQoLED questionnaire, except for one domain, which had to be eliminated.


Assuntos
Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Qualidade de Vida , Adulto , Atitude , Estudos de Casos e Controles , Transtornos da Alimentação e da Ingestão de Alimentos/terapia , Humanos , Psicometria , Reprodutibilidade dos Testes , Estatísticas não Paramétricas , Inquéritos e Questionários , Resultado do Tratamento
20.
Gac Sanit ; 19(5): 379-85, 2005.
Artigo em Espanhol | MEDLINE | ID: mdl-16242096

RESUMO

OBJECTIVE: To identify patients' views on the criteria used to prioritize patients on the waiting list for total hip or knee prostheses. This study is part of a wider project whose objective is to design an instrument to prioritize patients on the waiting list for both procedures. MATERIAL AND METHODS: We performed a descriptive study with qualitative methodology that provides valuable information on how to improve various aspects of clinical practice and detect solutions that could be useful in decision making. There were 4 focus groups; 2 before the design of the instrument and 2 after. These focus group were composed of patients on the waiting list for knee or hip replacement. RESULTS: Thirty-one patients agreed to participate in the focus groups. All the patients were dissatisfied with the current waiting lists. The most salient factors discussed in meetings were pain, functional capability, and the repercussions of these on the patient's social role. CONCLUSIONS: Although the instrument is designed to be used by health professionals, patients' participation in its design and evaluation allows them to feel more involved in the healthcare process and provides information that more accurately reflects their experiences. The use of this information by health professionals will improve resource optimization and the response to patient needs.


Assuntos
Artroplastia de Quadril , Artroplastia do Joelho , Satisfação do Paciente , Seleção de Pacientes , Listas de Espera , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
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