Detalhe da pesquisa
1.
Quantifying the impact of symptomatic acute hepatic porphyria on well-being via patient-reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study.
JIMD Rep
; 64(1): 104-113, 2023 Jan.
Artigo
Inglês
| MEDLINE | ID: mdl-36636593
2.
Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts.
Adv Ther
; 39(9): 4330-4345, 2022 09.
Artigo
Inglês
| MEDLINE | ID: mdl-35907153
3.
Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study.
Orphanet J Rare Dis
; 16(1): 187, 2021 04 26.
Artigo
Inglês
| MEDLINE | ID: mdl-33902669
4.
Biochemical Diagnosis of Acute Hepatic Porphyria: Updated Expert Recommendations for Primary Care Physicians.
Am J Med Sci
; 362(2): 113-121, 2021 08.
Artigo
Inglês
| MEDLINE | ID: mdl-33865828