Detalhe da pesquisa
1.
The Parent PrU: A measure to assess personal utility of pediatric genomic results.
Genet Med
; 26(1): 100994, 2024 Jan.
Artigo
Inglês
| MEDLINE | ID: mdl-37838931
2.
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions.
Qual Life Res
; 33(6): 1541-1553, 2024 Jun.
Artigo
Inglês
| MEDLINE | ID: mdl-38472717
3.
How do we understand the value of drug checking as a component of harm reduction services? A qualitative exploration of client and provider perspectives.
Harm Reduct J
; 21(1): 92, 2024 May 11.
Artigo
Inglês
| MEDLINE | ID: mdl-38734643
4.
Information-seeking preferences in diverse patients receiving a genetic testing result in the Clinical Sequencing Evidence-Generating Research (CSER) study.
Genet Med
; 25(9): 100899, 2023 09.
Artigo
Inglês
| MEDLINE | ID: mdl-37212252
5.
The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.
Genet Med
; 24(2): 410-418, 2022 02.
Artigo
Inglês
| MEDLINE | ID: mdl-34906477
6.
Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach.
Genet Med
; 24(6): 1206-1216, 2022 06.
Artigo
Inglês
| MEDLINE | ID: mdl-35396980
7.
Should nutritional supplements and sports drinks companies sponsor sport? A short review of the ethical concerns.
J Med Ethics
; 41(6): 447-50, 2015 Jun.
Artigo
Inglês
| MEDLINE | ID: mdl-25246641
8.
Doping through supplement use: a review of the available empirical data.
Int J Sport Nutr Exerc Metab
; 25(1): 54-9, 2015 Feb.
Artigo
Inglês
| MEDLINE | ID: mdl-25722470
9.
The Need to Standardize the Reanalysis of Genomic Sequencing Results: Findings from Interviews with Underserved Families in Genomic Research.
J Bioeth Inq
; 2023 Aug 25.
Artigo
Inglês
| MEDLINE | ID: mdl-37624546
10.
"I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing.
AJOB Empir Bioeth
; 14(4): 208-217, 2023.
Artigo
Inglês
| MEDLINE | ID: mdl-37162201
11.
Insights from Drug Checking Programs: Practicing Bootstrap Public Health Whilst Tailoring to Local Drug User Needs.
Int J Environ Res Public Health
; 20(11)2023 05 30.
Artigo
Inglês
| MEDLINE | ID: mdl-37297603
12.
Medical traumatic stress in cystic fibrosis: A qualitative analysis.
J Cyst Fibros
; 22(4): 763-771, 2023 07.
Artigo
Inglês
| MEDLINE | ID: mdl-36925385
13.
Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation.
AJOB Neurosci
; 14(3): 287-299, 2023.
Artigo
Inglês
| MEDLINE | ID: mdl-35435795
14.
Barriers and Facilitators of High-Efficiency Clinical Pathway Implementation in Community Hospitals.
Hosp Pediatr
; 13(10): 931-939, 2023 Oct 01.
Artigo
Inglês
| MEDLINE | ID: mdl-37697946
15.
Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial.
Brain Stimul
; 16(4): 990-998, 2023.
Artigo
Inglês
| MEDLINE | ID: mdl-37330169
16.
Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
NPJ Genom Med
; 8(1): 10, 2023 May 26.
Artigo
Inglês
| MEDLINE | ID: mdl-37236975
17.
The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.
New Genet Soc
; 41(3): 216-226, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-36968265
18.
Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis.
Front Genet
; 13: 883225, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-35923691
19.
Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement.
Front Hum Neurosci
; 16: 813922, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-35496073
20.
"Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research.
Front Genet
; 13: 882703, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-35669190