RESUMO
This statement reviews patterning as a treatment for children with neurologic impairments. This treatment is based on an outmoded and oversimplified theory of brain development. Current information does not support the claims of proponents that this treatment is efficacious, and its use continues to be unwarranted.
Assuntos
Terapia Comportamental , Lesão Encefálica Crônica/terapia , Deficiência Intelectual/terapia , Criança , HumanosRESUMO
Care coordination is a process that links children with special health care needs and their families to services and resources in a coordinated effort to maximize the potential of the children and provide them with optimal health care. Care coordination often is complicated because there is no single entry point to multiple systems of care, and complex criteria determine the availability of funding and services among public and private payers. Economic and sociocultural barriers to coordination of care exist and affect families and health care professionals. In their important role of providing a medical home for all children, primary care pediatricians have a vital role in the process of care coordination, in concert with the family.
Assuntos
Administração de Caso/organização & administração , Serviços de Saúde da Criança/organização & administração , Prestação Integrada de Cuidados de Saúde/organização & administração , Pessoas com Deficiência , Pediatria , Criança , Humanos , Relações Profissional-Família , Encaminhamento e Consulta , Estados UnidosRESUMO
The impact of providing home care for ventilator-dependent children was studied in a cross-sectional survey of 18 northern California families. Through the use of a confidential structured interview and the impact on Family Scale, we obtained information on family demographics; the childrens' medical conditions; financial, social, and personal impact on the family; and parental coping-mastery of the care of a ventilator-dependent child at home. Analysis of scores from the impact on Family Scale showed no differences in the perceived family impact between primary caretakers and their spouses. Primary caretakers in the sample, however, showed significantly reduced Coping subscale scores with a longer duration of home ventilatory care. This finding, if confirmed in future studies, has policy implications for physicians and other health professionals working with ventilator-dependent children and their families, especially those who care for children over long periods.
Assuntos
Família/psicologia , Serviços de Assistência Domiciliar/normas , Respiração Artificial/enfermagem , Estresse Psicológico/diagnóstico , Adaptação Psicológica , Adolescente , Adulto , California , Criança , Pré-Escolar , Estudos Transversais , Feminino , Serviços de Assistência Domiciliar/economia , Humanos , Lactente , Seguro Saúde , Masculino , Estresse Psicológico/etiologia , Estresse Psicológico/psicologia , Inquéritos e Questionários , Fatores de TempoRESUMO
Four children are reported who always looked above objects of visual interest (overlooking). All had bilateral central scotomata (loss of central visual field). Three had optic nerve disease selectively affecting the papillomacular fibers; the fourth had ocular colobomata affecting the maculae. Overlooking is an important sign of bilateral central scotomata in children: it is an adaptation to loss of central vision.