[Austrian haemophilia registry: up-date 2008 ]. / Osterreichisches Hämophilie Register: Update 2008.

The treatment of haemophilia requires continuous development of knowledge related to various aspects of diagnosis and therapy. It is, therefore, essential to collect valid and representative data, which are comparable on an international level. The Austrian Haemophilia Registry was set up by the Scientific Advisory Panel of the Austrian Haemophilia Society and by the patient organisation. For the design, it was decided to divide the registry into three sections, two concerning quality control and a third concerning scientific questions, the latter requiring written informed consent. A web-based software is used to collect data. Transfer and storage of data are secured and the server is situated in a computer center with video and access control. Data entry was initiated early 2008. Currently, only preliminary data are available. Our further focus is on continued data entry, which will further enable us to provide information concerning the characteristics of the haemophilia patient population in Austria and the actual treatment modalities used.

Evaluation of the electronic transmission of medical findings from hospitals to practitioners by triangulation.

OBJECTIVES: The need for regional, cross-institutional electronic networks in health care is steadily growing to support seamless, cooperative health care. The aim of this study is to evaluate the impact of electronic transmission between hospitals and practitioners in a Tyrolean health care network, and to derive technical and organizational points for improvement. METHODS: Between March and August 2004 we carried out a triangulation-based cross-sectional study, combining a qualitative study based on semi-structured, problem-centric interviews with selected practitioners, with a quantitative study based on a standardized questionnaire survey of all the Tyrolean practitioners that receive electronic messages. The survey was designed to confirm the hypotheses which have been systematically derived from the interviews. RESULTS AND CONCLUSIONS: The results show high satisfaction and positive impact of electronic communication. The triangulation of quantitative and qualitative methods was found to be useful in order to make the definition and confirmation of the hypotheses more transparent.