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2.
Klin Padiatr ; 227(3): 151-6, 2015 May.
Artigo em Alemão | MEDLINE | ID: mdl-25811743

RESUMO

BACKGROUND: Fear of Progression (FoP), the fear of further disease progression, is one of the most common psychological strains of chronically ill patients and can also be found in healthy partners of cancer patients. Parents of children with cancer are also at risk of developing distinct fears that may persist after medical treatment. This study aimed to assess FoP in parents of children with cancer and to investigate relationships between FoP in parents of children with cancer and disease- and treatment-related issues, the child's current medical condition and parents' quality of life. PATIENTS: In this study 76 parents (51 mothers, 25 fathers) whose children were in inpatient treatment or follow-up care were surveyed. METHOD: The short form of the FoP Questionnaire was adapted by rephrasing the items for the parental perspective (FoP-Q-SF/PR). RESULTS: The FoP-Q-SF/PR is a short questionnaire with adequate psychometric properties (e. g. Cronbach's α=0.90) and satisfying results in terms of construct validity. Significant correlations with FoP are found for the child's current medical condition (r=0.35), time since diagnosis (r=- 0.30), parents' capacity to cope with disease-related fears (r=- 0.45) and parents' quality of life (r=- 0.55). A cut-off value of 46 points is recommended. CONCLUSION: The FoP-Q-SF/PR offers a feasible and sensitive battery to assess disease-related fears. For clinicians, evaluation of individual results can provide insight into specific problem areas for parents of children with cancer. The questionnaire is thus well suited for use in psychosocial care of families within the field of paediatric oncology.


Assuntos
Ansiedade/psicologia , Neoplasias/psicologia , Neoplasias/terapia , Pais/psicologia , Ansiedade/diagnóstico , Criança , Progressão da Doença , Medo , Seguimentos , Alemanha , Humanos , Psicometria/estatística & dados numéricos , Qualidade de Vida/psicologia , Reprodutibilidade dos Testes , Estatística como Assunto , Inquéritos e Questionários
3.
Klin Padiatr ; 224(3): 201-6, 2012 Apr.
Artigo em Alemão | MEDLINE | ID: mdl-22504773

RESUMO

In the last decades the chances of surviving childhood cancer have increased. Nowadays psychological and psychosocial long term side effects become more spotlighted. Especially the posttraumatic stress disorder is focused at the moment as a possible side effect of childhood cancer. Cancer as a life-threatening illness is unpredictable and associated with repeating loads, such as medical procedures or treatment. Most of the patients report anxiety, especially young children have an increased risk of making a traumatic experience while undergoing medical treatment. A psychological support before, meanwhile and after can ensure compliance as well as reducing emotional and behavioral disorders. Even preventive impact is conceivable. Therefore psychological support has become a standard in pediatric cancer treatment. The current case report of the 10 year old Tom is a practical example how to support has undergoing medical procedures. The interventions described have the aim of stabilizing the patient and reducing his anxiety and discomfort. They also show an effect on self-efficacy.


Assuntos
Ansiedade/psicologia , Comportamento Cooperativo , Comunicação Interdisciplinar , Neoplasias/psicologia , Neoplasias/terapia , Dor/psicologia , Transtornos de Estresse Pós-Traumáticos/diagnóstico , Transtornos de Estresse Pós-Traumáticos/psicologia , Adaptação Psicológica , Ansiedade/diagnóstico , Nível de Alerta , Criança , Fantasia , Humanos , Masculino , Relações Pais-Filho , Cooperação do Paciente/psicologia , Prática Psicológica , Relações Profissional-Família , Psicoterapia , Terapia de Relaxamento , Apoio Social , Punção Espinal/psicologia , Transtornos de Estresse Pós-Traumáticos/prevenção & controle
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