RESUMO
HIV status disclosure is often characterized as a dilemma. On the one hand, disclosure can promote health, social support, and psychological well-being. On the other, disclosure can lead to stigmatization, rejection, and other negative social interactions. Previous research has shown that HIV status disclosure is a reasoned process whereby the costs and benefits to oneself and to others are weighed. As such, understanding disclosure requires understanding the reasons for and against disclosure employed by people living with HIV (PLWH). In this study, disclosure among a population disproportionately affected by HIV in the Netherlands, namely African and Afro-Caribbean diaspora, was investigated. Reasons for nondisclosure were fear of stigmatization, previous negative experiences with disclosure, having observed the stigmatization of other PLWH, shame, the desire to protect others - particularly one's children and family - from stigmatization by association and/or worrying, and the belief that one's HIV status is a private matter. Participants reported disclosing because they were in a close and supportive relationship, disclosure led to emotional release, disclosure could lead to emotional or financial support, they felt a perceived duty to inform, and they had a desire to educate others about sexual risk-taking. The findings suggest that stigma plays an important role in disclosure decisions among these populations. They further point to a need for HIV-related stigma reduction interventions in African and Afro-Caribbean communities and culturally sensitive counseling for PLWH whereby caregivers do not automatically assume that disclosure is best but rather provide a safe environment in which the costs and benefits of disclosure can be weighed and strategies for disclosure can be developed, if perceived as beneficial by PLWH.
Assuntos
População Negra , Família/psicologia , Infecções por HIV/psicologia , Estereotipagem , Revelação da Verdade , Adolescente , Adulto , Idoso , Atitude Frente a Saúde , População Negra/etnologia , População Negra/psicologia , Região do Caribe/etnologia , Feminino , Infecções por HIV/etnologia , Humanos , Masculino , Pessoa de Meia-Idade , Países Baixos , Preconceito , Privacidade/psicologia , Vergonha , Isolamento Social/psicologia , Adulto JovemRESUMO
The advent of Covid-19 pandemic adversely affected many programs worldwide, public health, including programming for obstetric fistula were not spared. Obstetric fistula is an abnormal connection between the vagina and the bladder or the rectum resulting from obstetric causes, mainly prolonged obstructed labour. Zimbabwe has two obstetric fistula repair centers. Because the program uses specialist surgeons from outside the country, the repairs are organized in quarterly camps with a target to repair 90 women per quarter. This study aimed at assessing the impact of restrictions on movement and gathering of people brought about by the Cocid-19 pandemic and to characterize participants of the camp which was held in the midst of the Covid-19 pandemic at Mashoko Hospital. Specifically it looked at how Covid-19 pandemic affected programming for obstetric fistula repair and characterized participants of the fistula camp held in November to December 2020 at one of the repair centers. A review of the dataset and surgical log sheets for the camp and national obstetric fistula dataset was conducted. Variables of interest were extracted onto an excel spreadsheet and analyzed for frequencies and proportions. Data were presented in charts, tables and narratives. The study noted that Covid-19 pandemic negatively affected performance of fistula repairs greatly with only 25 women repaired in 2020 as compared to 313 in 2019. Ninety women were called to come for repairs but 52 did not manage to attend due to reasons related to the restriction of the Covid-19 pandemic lockdown. Two thirds of those women suffered from urinary incontinence while the other third had fecal incontinence. The successful repair rate was 92%. This study concluded that the pandemic greatly affected programming of fistula repair in the country and recommended the Ministry of Health and Child Care to institute measures to resume programming as soon as the situation allows.
Assuntos
COVID-19/epidemiologia , Programas Governamentais/estatística & dados numéricos , Programas Nacionais de Saúde/estatística & dados numéricos , Complicações do Trabalho de Parto/epidemiologia , Fístula Vesicovaginal , Adolescente , Adulto , Estudos Transversais , Feminino , Humanos , Pandemias , Gravidez , Estudos Retrospectivos , Fístula Vesicovaginal/epidemiologia , Fístula Vesicovaginal/cirurgia , Adulto Jovem , ZimbábueRESUMO
A cross-sectional qualitative study was conducted using in-depth interview guides at Chinhoyi Provincial Hospital, Zimbabwe to explore and understand health-seeking behaviors of women affected by obstetric fistula and to determine reasons why women lived with fistula. Study participants were women who had come for fistula repair between November and December 2019, who consented to participate in the study. In-depth interviews were conducted and analyzed using NVivo 10. Of the 29 women who came for the camp, 21 were enrolled. Mean period with fistula was 4.7 years (SD±12). Participants sought help from spiritual healers first before medical treatment but all sought medical care at one time during or after delivery. Reasons for staying with fistula included lack of knowledge of availability of repair services, lack of resources, and powerlessness in decision making. This study concluded that barriers to access should be addressed so that women get the treatment they require.
Assuntos
Fístula , Aceitação pelo Paciente de Cuidados de Saúde , Estudos Transversais , Feminino , Humanos , Gravidez , Pesquisa Qualitativa , ZimbábueRESUMO
HIV-related stigma in African and Afro-Caribbean diaspora communities in the Netherlands was investigated. Interviews with HIV-positive and HIV-negative community members demonstrated that HIV-related stigma manifests as social distance, physical distance, words and silence. The psychological consequences of HIV-related stigma among those diagnosed with HIV reported were emotional pain, sadness, loneliness, anger, frustration and internalised stigma. The social consequences included decreased social network size, limited social support and social isolation, and resulted from not only enacted stigma but also self-imposed social withdrawal. Also, poor treatment adherence was a health-related consequence. People living with HIV employed both problem-focused and emotion-focused coping strategies to mitigate the negative consequences of stigma. Problem-focused coping strategies included selective disclosure, disengagement, affiliating with similar others, seeking social support and, to a lesser extent, activism. Emotion-focused strategies included distraction, positive reappraisal, religious coping, external attributions, disidentification and acceptance. HIV-related stigma clearly permeates African and Afro-Caribbean communities in the Netherlands, and should be targeted for intervention.