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1.
J Interprof Care ; 38(4): 695-704, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38734870

RESUMO

Bias in advanced heart failure therapy allocation results in inequitable outcomes for minoritized populations. The purpose of this study was to examine how bias is introduced during group decision-making with an interprofessional team using Breathett's Model of Heart Failure Decision-Making. This was a secondary qualitative descriptive analysis from a study focused on bias in advanced heart failure therapy allocation. Team meetings were recorded and transcribed from four heart failure centers. Breathett's Model was applied both deductively and inductively to transcripts (n = 12). Bias was identified during discussions about patient characteristics, clinical fragility, and prior clinical decision-making. Some patients were labeled as "good citizens" or as adherent/non-adherent while others benefited from strong advocacy from interprofessional team members. Social determinants of health also impacted therapy allocation. Interprofessional collaboration with advanced heart failure therapy allocation may be enhanced with the inclusion of patient advocates and limit of clinical decision-making using subjective data.


Assuntos
Insuficiência Cardíaca , Equipe de Assistência ao Paciente , Humanos , Insuficiência Cardíaca/terapia , Equipe de Assistência ao Paciente/organização & administração , Pesquisa Qualitativa , Relações Interprofissionais , Comportamento Cooperativo , Tomada de Decisão Clínica , Masculino , Feminino , Determinantes Sociais da Saúde , Tomada de Decisões , Processos Grupais , Pessoa de Meia-Idade
2.
J Transcult Nurs ; : 10436596241274116, 2024 Sep 13.
Artigo em Inglês | MEDLINE | ID: mdl-39268620

RESUMO

INTRODUCTION: Latinx Millennial caregivers are an understudied minority group in the United States. Due to life stage and cultural values, these caregivers struggle to balance conflicting priorities with career, family, and caregiving. They also face systemic barriers and healthcare disparities. METHODS: Participants (N = 29) were recruited locally and nationally. Qualitative data were collected using five focus groups and one individual interview. Interviews were analyzed by seven coders using thematic analysis with an inductive approach. RESULTS: Meta-themes included (a) the Latinx experience with culture, immigrant status, and structural barriers; and (b) being a super caregiver: being everything to everyone. Additional main themes were identified including family well-being, occupational and financial well-being, social support dynamics, challenges and rewards of family caregiving, and coping strategies. DISCUSSION: Clinical interventions for Latinx Millennial caregivers should address cultural background, value of family/community, and systemic barriers for care and support.

3.
Artigo em Inglês | MEDLINE | ID: mdl-37681786

RESUMO

As the U.S. population's demographics shift, young U.S. adults are increasingly engaged in informal caregiving for aging generations. Yet, there is little research on the unique experiences and needs of young adults who take on caregiving roles for adult cancer patients. Herein we demonstrate through a theoretical description that young adult cancer care partners deserve distinct recognition in the cancer control continuum given the psychological, physical, financial, and social features unique to their cancer experience.


Assuntos
Cuidadores , Neoplasias , Humanos , Adulto Jovem , Envelhecimento , Exame Físico , Reconhecimento Psicológico , Neoplasias/terapia
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