Detalhe da pesquisa
1.
Prospective observational pilot study of quantitative light dosimetry in erythropoietic protoporphyria.
J Am Acad Dermatol
; 88(5): 1148-1151, 2023 05.
Artigo
Inglês
| MEDLINE | ID: mdl-36436693
2.
Observational pilot study of multi-wavelength wearable light dosimetry for erythropoietic protoporphyria.
Int J Dermatol
; 2024 Apr 11.
Artigo
Inglês
| MEDLINE | ID: mdl-38602089
3.
Light-Related Cutaneous Symptoms of Erythropoietic Protoporphyria and Associations With Light Sensitivity Measurements.
JAMA Dermatol
; 159(2): 204-208, 2023 02 01.
Artigo
Inglês
| MEDLINE | ID: mdl-36630131
4.
Quantifying the impact of symptomatic acute hepatic porphyria on well-being via patient-reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study.
JIMD Rep
; 64(1): 104-113, 2023 Jan.
Artigo
Inglês
| MEDLINE | ID: mdl-36636593
5.
Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts.
Adv Ther
; 39(9): 4330-4345, 2022 09.
Artigo
Inglês
| MEDLINE | ID: mdl-35907153
6.
Diagnosis and management of protoporphyria-related liver dysfunction in erythropoietic protoporphyria and x-linked protoporphyria: A patient-friendly summary of the 2023 evidence-based consensus guidelines.
Clin Liver Dis (Hoboken)
; 23(1): e0133, 2024.
Artigo
Inglês
| MEDLINE | ID: mdl-38487349