How best to support parents in the management of standing frame usage in home settings: A mixed methods study.

BACKGROUND: An improved understanding of the current practice of standing frame use may have implications for supporting parents in managing standing frames. We aimed to investigate how parents of children with cerebral palsy perceive and manage standing frame use in home settings. METHODS: We conducted a mixed methods study with an explanatory sequential design, first collecting and analysing quantitative questionnaire data and then using these results to inform a qualitative follow-up phase to explain them. The questionnaire was answered by 103 parents of children with cerebral palsy across five countries, Denmark, Norway, Great Britain, Canada and the United States, and 12 Danish families participated in the subsequent interviews. A descriptive analysis was conducted using the questionnaire data. The qualitative data were analysed using a directed content analysis, enabling integration of the quantitative and qualitative data. RESULTS: The quantitative analysis showed that 89% of the parents felt confident with their child's standing frame, and 82% felt they had sufficient knowledge about how their child's standing frame could/should be used. However, the qualitative analysis showed that even when feeling confident, the parents experienced insecurity regarding whether their child was positioned correctly, and being responsible for positioning was challenging. CONCLUSION: Our study implies a need for providing educational materials to assist the parents in ensuring optimal positioning of their child in the standing frame to decrease insecurity. Additionally, our study suggests a need to provide more thorough information about the benefits of using a standing frame and ensure alignment of expectations in relation to the child's prognosis of functional independence.

Understanding frames: A qualitative exploration of standing frame use for young people with cerebral palsy in educational settings.

BACKGROUND: Consensus opinion supports standing frame use as part of postural management for nonambulant young people with cerebral palsy. Most young people with cerebral palsy in the United Kingdom, who use standing frames, use them at nursery or school, rather than at home. In this paper we report professionals' and parents' experiences and views of standing frame use specifically in educational settings. This research was conducted as part of a large mixed methods study to determine the acceptability and inform the design of a future trial of standing frames. METHODS: Qualitative methods were used: focus groups with educational professionals, parents and clinicians (paediatricians, physiotherapists and occupational therapists) were convened. Data were analysed thematically using framework analysis. RESULTS: Five focus groups were conducted. The overarching theme "flexibility" encompassed four subordinate themes: (i) "balancing education and therapy," which described the way education professionals had to juggle different priorities from health professionals within a multi-disciplinary team; (ii) "young people's autonomy," which highlighted participants' belief that standing frame use should be centred on the individual young person and their needs; (iii) "working within logistical boundaries," which demonstrated that "ideal" standing frame use was not always possible due to logistical issues (e.g., staffing and standing frame availability); and (iv) "competence and confidence," which highlighted that educational professionals felt that they lacked the training to confidently position young people in their standing frame. CONCLUSIONS: This paper highlights the complexity of standing frame use in the educational setting. If a standing frame programme is prescribed to be delivered in an educational setting, strong multidisciplinary and interagency communication is essential to balance therapy versus education. Training is required to ensure staff are competent in using the standing frame with the young person understanding their individual requirements. A flexible approach-inclusive of the young person's needs, logistical demands and resource-is necessary.

A study into the effectiveness of a postural care training programme aimed at improving knowledge, understanding and confidence in parents and school staff.

BACKGROUND: Parents and school staff lack knowledge and confidence when providing postural care to physically disabled children. This can act as a barrier to the successful implementation of therapy. To address this problem, we developed a novel training programme to improve knowledge and confidence in providing postural care and evaluate the impact of the training programme in parents and school staff. METHODS: The postural care training programme included three elements: a 2-h interactive workshop facilitated by physiotherapists and occupational therapists, a follow-up home/school visit and a follow-up telephone call. The Understanding, Knowledge and Confidence in Providing Postural Care for Children with Disabilities questionnaire was utilized to evaluate the impact and includes subscales assessing knowledge and understanding, concerns and confidence in providing postural care. The Understanding, Knowledge and Confidence in Providing Postural Care for Children with Disabilities questionnaire was completed at baseline and 6 weeks later. The training programme was delivered to N = 75 parents and school staff. Of these, N = 65 completed both baseline and follow-up measures and were used in the data analysis. Participants and therapists were also invited to provide further feedback on the overall training programme via interviews and focus groups. RESULTS: Paired samples t-tests were used to determine statistically significant differences between baseline and follow-up scores for each of the three subscales. Mean levels of understanding and knowledge and confidence improved (P < 0.001), while concerns decreased (P < 0.001). Qualitative data were collected via interviews and group discussions providing an in-depth perspective on how participants experienced change. DISCUSSION: Results suggest improvement in knowledge, understanding and confidence in parents and school staff that care for children with significant physical postural care impairments.

A pilot study comparing custom contoured and planar support surfaces for pressure ulcer risk over the heels for night time postural management using interface pressure mapping and discomfort scores.

PURPOSE: Custom contouring techniques are effective for reducing pressure ulcer risk in wheelchair seating. These techniques may assist the management of pressure ulcer risk during sleep for night time postural management. OBJECTIVES: To investigate the effectiveness of custom contoured night time postural management components against planar support surfaces for pressure ulcer risk measures over the heels. METHOD: Supine posture was captured from five healthy participants using vacuum consolidation and 3-dimensional laser scanning. Custom contoured abduction wedges were carved from polyurethane and chipped foams. Pressure mapping and the visual analog scale were used to evaluate the effectiveness of the contoured foams in reducing pressure and discomfort under the posterior heel against standard planar support surfaces. RESULTS: Custom contoured shapes significantly reduced interface pressures (p < 0.05) and discomfort scores (p < 0.05) when compared to planar support surfaces. Polyurethane foam was the most effective material but it did not differ significantly from chipped foam. Linear regression revealed a significant relationship between the Peak Pressure Index and discomfort scores (r = 0.997, p = 0.003). CONCLUSIONS: The findings of this pilot study suggested that custom contoured shapes were more effective than planar surfaces at reducing pressure ulcer risk surrogate measures over the posterior heels with polyurethane foam being the most effective material investigated. It is recommended that Evazote foam should not be used as a support surface material for night time postural management.

An Exploration of Comfort and Discomfort Amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment.

BACKGROUND: The natural response to the intrusive bodily sensation is positional change. This study explored how children and young people (CYP) with intellectual disabilities had their comfort needs met when using adaptive positioning equipment. METHODS: Thirteen qualitative case studies were undertaken. A parent, a teacher/key worker and a therapist for each CYP were interviewed, and daily routines were observed, with selective video recording. Single case and cross case analyses were undertaken. RESULTS: Attentive caregivers read the behavioural expressions of the CYP and responded reassuringly, safeguarding them from discomforting experiences. Threats to comfort include the restrictive nature of some equipment accessories, positioning errors and procedural stretching. CONCLUSIONS: The same item of equipment can be both comfortable and uncomfortable. Given the social and interactional world in which the CYP live and learn, it is others who must accept responsibility for ensuring their optimal level of comfort.

The positioning information that should be provided to caregivers of adults with a physical disability on supply of custom-contoured seating, a Delphi study.

PURPOSE: This research aims to identify information that is important to provide on supply of custom-contoured seating. The way this information would be best communicated is also of interest. A two-round e-Delphi study was utilised to explore consensus. A panel of stakeholders from Ireland including experts in positioning clients in custom-contoured seating and caregivers were recruited. The first round consisted of open-ended questions and was analysed using thematic analysis. The second round employed a rating technique and 7-point Likert scale. Consensus was set a priori at 70% agreement. The way information should be communicated and by whom was rated in order of preference. MATERIALS AND METHODS: Fifteen participants were recruited, nine clinicians and four caregivers. Fifty-two statements under six themes (transfers = 10, positioning = 22, pressure care = 4, general use = 4, post-supply follow-up = 8, functional activity = 4) were generated in round 1 by 13/15 participants. Round 2 was completed by 10/15. 49/52 statements reached consensus and were deemed important. The ways information should be communicated and by whom was identified. Caregivers want individualised information whereas clinicians preferred a more generic approach. RESULTS AND CONCLUSIONS: There was a high degree of consensus on what information is required to support caregivers. The topics demonstrate the extensive information that should be provided. The preferred delivery method for primary caregivers was hands-on training with the opportunity to practice and take videos. Stakeholders differed in how they would prefer information delivered. Further research should evaluate the method of delivering training and its effectiveness.

Caregivers report a lack of guidance on postural management, which exacerbates their own health problems and results in underutilization of positioning equipment.Caregivers should be provided with information on transfers, positioning, pressure care, general chair use, post-supply follow-up, and the impact on functional activities when a new custom contoured seat is supplied.The preferred method of providing information to primary caregivers is to use hands-on training with the opportunity to practice and take videos during the supply appointment. Personalised information booklets or group training sessions may be most appropriate for additional caregivers.

Evidence-informed clinical perspectives on postural management for hip health in children and adults with non-ambulant cerebral palsy.

Postural management is a multi-disciplinary approach incorporating a comprehensive schedule of daily and night-time positions, equipment and physical activity to help maintain or improve body structures and function and increase activity and participation. Postural management may play a role in preventing contracture, deformity, pain, and asymmetry. This article provides an overview of the evidence supporting use of postural management to positively influence hip health in individuals with cerebral palsy, functioning as Gross Motor Classification System (GMFCS) levels IV or V. Sitting or lying without changing position for more than 8 hours, unsupported supine lying and asymmetrical or windswept postures are associated with pain and hip subluxation/dislocation. Although high-quality experimental research is still limited by many factors, there is limited evidence of harm, and most individuals at GMFCS IV or V require positioning supports to enable participation and function and ease caregiving. Clinical recommendations combining research and clinical opinion support the early use of comfortable positioning routines and/or equipment to reduce time spent in sustained asymmetrical or potentially harmful sitting and lying positions. Supported standing, active weightbearing and stepping are recommended to promote active movement and position change when possible, depending on individual, family and caregiver routines and preferences.

Effects of the standing program with hip abduction on hip acetabular development in children with spastic diplegia cerebral palsy.

PURPOSE: Early identification and intervention with conservative measures is important to help manage hip dysplasia in children with a high adductor and iliopsoas tone and delay in weight bearing. The effect of a daily standing program with hip abduction on hip acetabular development in ambulatory children with cerebral palsy was studied. METHOD: The participants were 26 children with spastic diplegia cerebral palsy (CP), classified at Level III according to the Gross Motor Function Classification System (GMFCS). Thirteen children stood with hip abduction at least 1 h daily from 12 to 14 months of age to 5 years with an individually fabricated standing frame with hip abduction. RESULTS: At the age of 5 years, radiologic results of the study group were compared with a comparison group of 13 children with spastic diplegia CP who had not taken part in a standing program. The migration percentage in all children who stood with abduction remained within stable limits (13-23%) at 5 years of age, in comparison to children who did not stand in abduction (12-47%) (p < 0.01). CONCLUSIONS: The results indicate that a daily standing program with hip abduction in the first 5 years may enhance acetabular development in ambulatory children with spastic diplegia CP. IMPLICATIONS FOR REHABILITATION: Abnormal acetabular development is a problem related to mobility problems and spasticity muscles around the hip. The literature suggests that postural management and standing programs could reduce levels of hip subluxation and increase function in children with cerebral palsy. A standing program with hip abduction can be a beneficial to develop more stable hips in children with spastic diplegic GMFCS level III.

Impact of freedom postures on active at the stages of labor of maternity outcomes / 中国现代医生

Objective To investigate the impact of the implementation of free-position active at the stages of labor maternity outcomes. Methods The proposed transvaginal delivery primipara 220 cases were randomly divided into intervention group and control group,each of 110 patients, the control group used conventional supine position of the active, intervention group treated with a free-position active management, the rate of first exposed decline, the first,second and third of the total labor time and, finally adopted the mode of delivery, birth weight, Apgar score, 24h postpartum hemorrhage, maternal and neonatal complications of fetal activity were observed. Results The intervention group decreased fetal speed were significantly faster than the control group (P<0.05), the first and second stage of labor and total labor were significantly shorter than the control group (P<0.05). In the intervention group, vaginal delivery rate was significantly higher than the control group (P<0.05), vaginal delivery, cesarean section rate were significantly lower than the control group(P<0.05),birth weight, Apgar score between two groups,the difference were not statistically significance (P>0.05). In the intervention group, 24 h postpartum hemorrhage were significantly less than the control group (P<0.05), hemorrhage, urinary retention, neonatal asphyxia were significantly lower than the control group (P<0 . 05). Conclusion The implementation of active labor freedom fetal position can help decrease shorten the production process,improve the rate of vaginal delivery,reduce maternal and neonatal morbidity .

Percepción del nivel cognoscitivo sobre manejo postural continuo en cuidadores de pacientes en silla de ruedas / Perception of cognition level about continuous postural management in caregivers of patients in wheelchairs

Introducción: Los pacientes con alteraciones neurológicas severas dependen del cuidado de terceros, muchas veces son las familias quienes asumen este rol, pero se desconoce cuánto logran integrar del manejo postural continuo. Objetivo: Determinar la percepción del nivel cognoscitivo de los cuidadores, en relación al manejo postural continuo, de pacientes en silla de ruedas, que asisten al Instituto Teletón Concepción, durante el año 2011. Pacientes y Métodos: Se realizó un estudio cualitativo fenomenológico con muestra de casos tipos en 8 cuidadores, que permitió profundizar en las experiencias individuales de estos, a través de entrevistas semi-estructuradas. Se realizó análisis semántico estructural sobre el discurso de los cuidadores. Resultados: Se estableció los códigos principales bajo los cuales los cuidadores comprenden el manejo postural continuo, el cual se entendió por el concepto de alineación corporal, la condición muscular del paciente y las expectativas de rehabilitación. Hay un mayor reconocimiento de los padres a la información entregada por sus pares, dándole mayor valor emocional. Las experiencias particulares de cada cuidador pueden ser una fuente positiva de refuerzo del programa de manejo postural continuo. Conclusiones: Los cuidadores refieren poseer amplios conocimientos del manejo postural continuo, pero no son capaces de detallar los aspectos básicos del mismo, evidenciando una falta de integración del conocimiento en esta área.

Introduction: Patients with severe neurological disorders depend on a third party for their care. Usually it is within their own families, that someone takes over that role, however, it is unknown to what extent they are able to integrate “continuous postural management”. Objective: To determine caregivers’ cognitive perception level with regards to “continuous postural management”, of patients who use wheelchairs and who attended Teletón Institute at Concepción, Chile, during the year 2011. Patients and Method: A phenomenological qualitative research using type cases samples in 8 caregivers was carried out. This made possible to go in depth with their individual experiences by conducting semi-structured interviews. A structural semantic analysis about the caregivers’ speech was done. Outcomes: Main codes under which caregivers understand “continuous postural management” were established. This was understood as the concept of body or corporal alignment, patients’ muscular condition and rehabilitation expectancies. There is greater acknowledgment from parents regarding information provided by their peers, which adds greater emotional value. Therefore, each caregiver’s individual experience may become a constructive strengthening source for the “continuous postural management” program. Conclusions: Caregivers reported having broad knowledge regarding “continuous posture management”, however they were unable to provide details about its basic characteristics, thus showing lack of knowledge integration in this area.